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Hope for Alec
August 10, 2015 12:00 AM

Hope for Alec

Alec has Sanfilippo Syndrome Type C. Without a treatment, he will not live to adulthood. You can help save children like Alec by contributing to our campaign to raise funds for research in to this condition.
   

 

Alec has Sanfilpppo Sydrome Type C.  (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000. All funds raised via the Hope for Alec campaign will be put towards Type C research.

 

 

You can help


 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Alec campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Alec's story here

88 Donors

#10for$10 Alec birthday campaign
(24 days ago)
$1,510
Lyn Morrice
(27 days ago)
Happy 10th Birthday, Alec. Lots of love, From Grandma XXXXOOOO
$200
Des Ridgill and Kathy Riches
(32 days ago)
Hope for Alec!
$100
Andrew Payne
(43 days ago)
Christmas Donation.
$100
Roderick Yesberg
(43 days ago)
$50
Tamika Kent
(55 days ago)
#alliwantforchristmasisacure
$100
The Johnsons and The Dooleys
(56 days ago)
From our families to yours this Christmas, we wanted to donate our Secret Santa donations to Alec.
$570
Rose, Sandra, Martin and Robyn
(63 days ago)
$110
Carols by Glowstick at McDowall State School
(67 days ago)
$442
Michael and Robyn McAnany
(70 days ago)
$50
Roderick and Patricia Yesberg
(70 days ago)
$50
Ken & Lyn Davies
(71 days ago)
Michelle & Chris Never cease to be amazed by your fortitude and devotion.
$100
Secret Santa m8
(71 days ago)
$50
SJAccountants (Steve & Bry)
(72 days ago)
Secret Santa for your beautiful boy!
$200
Ferny Grove State School Student Council Disco
(84 days ago)
$2,951
Jess (parent from FGSS)
(91 days ago)
What a tough road, my thoughts are with you. I hope the new research brings you closer to a cure x
$50
Hilder Road State School Car Boot Sale
(98 days ago)
$322
Kylie Johnson
(98 days ago)
on behalf of our book sale
$516
Paperboat Press - Book & Bake Sale
(102 days ago)
$832
Ferny Grove State School Disco
(103 days ago)
$447
Liz
(126 days ago)
$100
Kathy Riches
(130 days ago)
$50
Tahlia Wyllie
(130 days ago)
$50
Crazy Hair Stall
(130 days ago)
$250
Fathers Day Stall
(132 days ago)
$286
Fairview RSL Care
(145 days ago)
$500
Maureen McAnany
(165 days ago)
$50
Michael Brown - Modplumb Solutions
(190 days ago)
sorry we didnt make tough mudder. A donation with love to you all.
$3,000
Maxine and Ken Swenson
(200 days ago)
XXOO
$100
Graham and Nancy Inhoff
(215 days ago)
$50
MacDowall State School Sports Carnivale Bake Stall
(222 days ago)
$900
Elizabeth Farrell
(243 days ago)
$20
Elizabeth Farrell
(243 days ago)
$20
Mitch Winterburn : Zac Pollard Tough Mudder
(277 days ago)
$100
Beavis Bartel Contributions
(278 days ago)
$1,265
MacDowall State School Mothers Day Stall
(278 days ago)
$1,436
Kathy Riches Tough Mudder sponsorship
(278 days ago)
$100
BBQ Anaconda Everton Park (Hope for Alec)
(278 days ago)
$1,325
Aunty Averil
(282 days ago)
$500
Tough Mudder 2016
(282 days ago)
$8,098
Burson Auto Parts
(327 days ago)
Proceeds from Sale of Donated Welder's Helmet
$70
Mark Tapley
(348 days ago)
$100
Hope for Alec Trivia Night
(348 days ago)
$6,113
Wade and Megan Pustolla
(356 days ago)
$70
Beavis & Bartels Newstead Towers Employee Contributions
(373 days ago)
$185
Beavis & Bartell Employee Contributions
(374 days ago)
$600
Beavis & Bartels SCUH Employee Contributions
(383 days ago)
$5,355
Cam
(392 days ago)
$500
Anonymous
(400 days ago)
$50
Masters BBQ Fundraiser
(413 days ago)
$1,324
Anonymous
(416 days ago)
$50
Nattrass, Manson, Morrice Families
(421 days ago)
In Lieu of Secret Santa Presents
$300
Roderick and Patricia Yesberg
(424 days ago)
In Lieu of Christmas Presents
$80
Eunice Ormond
(435 days ago)
$50
Monica
(436 days ago)
You are my secret Santa
$50
PB Family
(436 days ago)
Merry Christmas from the PB Family :)
$50
Secret Santa SJA
(436 days ago)
$100
SJA Secret Santa
(436 days ago)
$50
Secret Santa
(436 days ago)
$50
Secret Santa SJA
(440 days ago)
$50
Christmas Bake Sale Paperboat Press
(444 days ago)
$329
Lyn Morrice (Grandma)
(444 days ago)
We love that little man. His smile is priceless! XXXX
$1,000
Ian and Janet Bell
(445 days ago)
$100
Leigh
(447 days ago)
Sending hope and love
$100
Pam, Rose, Sandra, Martin and Robyn
(454 days ago)
$130
Ferny Grove State School
(454 days ago)
Student Council Disco (15/10/15)
$2,703
Graham Imhoff
(488 days ago)
$50
Ernie Broadhead
(488 days ago)
$50
McDowall State School
(488 days ago)
$600
Ferny Grove School Fundraising
(489 days ago)
$654
Jill, Jeremy and Jonah
(499 days ago)
From our family to yours we're all in this little boat together. xo
$250
Oliver Cochrane
(503 days ago)
My pocket money
$22
Stephanie & Celso Perez
(513 days ago)
Much love from the Perez family x
$250
Michael and Robyn Mcanany
(517 days ago)
$50
Glen Sales and Penelope Kirk
(519 days ago)
$600
Barry & Denise Riley (mackenzie's granperants)
(520 days ago)
We have heard so many wonderful stories about this strong little man we hope a cure is found in time
$50
Michelle Morrice
(522 days ago)
McDowall State School Spring Fair Stall
$582
Roderick Yesberg
(524 days ago)
In lieu of Father's Day and Birthday presents
$80
Mackenzie Watson
(529 days ago)
A month of no Sundaes
$510
Rhonnda and Roger Dooley
(532 days ago)
Hope all goes well for your little man.
$50
Monica & Gabriel
(539 days ago)
Keep dreaming and smiling Alec!
$50
Owen Nattrass
(544 days ago)
To a very special great grandson With love Oompa.
$2,000
Lyn Morrice
(544 days ago)
He has always been such an affectionate and lovable boy. XX Grandma
$50
Averil Nattrass
(545 days ago)
Alec you are a special boy and you are always in my thoughts Aunty Averil.
$500
Nan and Pop
(545 days ago)
Given with hope and love for our precious boy Alec.
$50
Carmen Smith
(551 days ago)
Keep smiling Alec! 😊
$15
Marg Frame
(553 days ago)
This little guy brightens my days more than I can say!!!
$50
Ingrid Maack
(554 days ago)
Thank you for joining the fight. Look forward to one day meeting this remarkable young man!
$20
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry