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Hope for Alec
August 10, 2015 12:00 AM

Hope for Alec

Alec has Sanfilippo Syndrome Type C. Without a treatment, he will not live to adulthood. You can help save children like Alec by contributing to our campaign to raise funds for research in to this condition.
   

 

Alec has Sanfilpppo Sydrome Type C.  (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000. All funds raised via the Hope for Alec campaign will be put towards Type C research.

 

 

You can help


 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Alec campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Alec's story here

94 Donors

Carl Gibbs
(3 days ago)
$150
Matt Hendra For Henry Schein
(3 days ago)
$250
Lauren & Tom Cowan
(11 days ago)
With love & admiration
$50
Lynne Mackenzie
(15 days ago)
For Hope for Alec Team - Lucille
$100
Paper Boat Press - Bake Sale
(53 days ago)
$122
Cr Matt Constance - Moreton Bay Regional Council
(64 days ago)
$200
#10for$10 Alec birthday campaign
(118 days ago)
$1,510
Lyn Morrice
(121 days ago)
Happy 10th Birthday, Alec. Lots of love, From Grandma XXXXOOOO
$200
Des Ridgill and Kathy Riches
(127 days ago)
Hope for Alec!
$100
Andrew Payne
(138 days ago)
Christmas Donation.
$100
Roderick Yesberg
(138 days ago)
$50
Tamika Kent
(149 days ago)
#alliwantforchristmasisacure
$100
The Johnsons and The Dooleys
(150 days ago)
From our families to yours this Christmas, we wanted to donate our Secret Santa donations to Alec.
$570
Rose, Sandra, Martin and Robyn
(158 days ago)
$110
Carols by Glowstick at McDowall State School
(162 days ago)
$442
Michael and Robyn McAnany
(164 days ago)
$50
Roderick and Patricia Yesberg
(164 days ago)
$50
Ken & Lyn Davies
(165 days ago)
Michelle & Chris Never cease to be amazed by your fortitude and devotion.
$100
Secret Santa m8
(165 days ago)
$50
SJAccountants (Steve & Bry)
(166 days ago)
Secret Santa for your beautiful boy!
$200
Ferny Grove State School Student Council Disco
(179 days ago)
$2,951
Jess (parent from FGSS)
(186 days ago)
What a tough road, my thoughts are with you. I hope the new research brings you closer to a cure x
$50
Hilder Road State School Car Boot Sale
(192 days ago)
$322
Kylie Johnson
(193 days ago)
on behalf of our book sale
$516
Paperboat Press - Book & Bake Sale
(196 days ago)
$832
Ferny Grove State School Disco
(197 days ago)
$447
Liz
(221 days ago)
$100
Kathy Riches
(224 days ago)
$50
Tahlia Wyllie
(224 days ago)
$50
Crazy Hair Stall
(224 days ago)
$250
Fathers Day Stall
(227 days ago)
$286
Fairview RSL Care
(240 days ago)
$500
Maureen McAnany
(259 days ago)
$50
Michael Brown - Modplumb Solutions
(284 days ago)
sorry we didnt make tough mudder. A donation with love to you all.
$3,000
Maxine and Ken Swenson
(295 days ago)
XXOO
$100
Graham and Nancy Inhoff
(310 days ago)
$50
MacDowall State School Sports Carnivale Bake Stall
(317 days ago)
$900
Elizabeth Farrell
(338 days ago)
$20
Elizabeth Farrell
(338 days ago)
$20
Mitch Winterburn : Zac Pollard Tough Mudder
(371 days ago)
$100
Beavis Bartel Contributions
(373 days ago)
$1,265
MacDowall State School Mothers Day Stall
(373 days ago)
$1,436
Kathy Riches Tough Mudder sponsorship
(373 days ago)
$100
BBQ Anaconda Everton Park (Hope for Alec)
(373 days ago)
$1,325
Aunty Averil
(377 days ago)
$500
Tough Mudder 2016
(377 days ago)
$8,098
Burson Auto Parts
(421 days ago)
Proceeds from Sale of Donated Welder's Helmet
$70
Mark Tapley
(443 days ago)
$100
Hope for Alec Trivia Night
(443 days ago)
$6,113
Wade and Megan Pustolla
(450 days ago)
$70
Beavis & Bartels Newstead Towers Employee Contributions
(468 days ago)
$185
Beavis & Bartell Employee Contributions
(469 days ago)
$600
Beavis & Bartels SCUH Employee Contributions
(478 days ago)
$5,355
Cam
(486 days ago)
$500
Anonymous
(495 days ago)
$50
Masters BBQ Fundraiser
(508 days ago)
$1,324
Anonymous
(511 days ago)
$50
Nattrass, Manson, Morrice Families
(516 days ago)
In Lieu of Secret Santa Presents
$300
Roderick and Patricia Yesberg
(519 days ago)
In Lieu of Christmas Presents
$80
Eunice Ormond
(530 days ago)
$50
Monica
(530 days ago)
You are my secret Santa
$50
PB Family
(530 days ago)
Merry Christmas from the PB Family :)
$50
Secret Santa SJA
(530 days ago)
$100
SJA Secret Santa
(531 days ago)
$50
Secret Santa
(531 days ago)
$50
Secret Santa SJA
(535 days ago)
$50
Christmas Bake Sale Paperboat Press
(538 days ago)
$329
Lyn Morrice (Grandma)
(539 days ago)
We love that little man. His smile is priceless! XXXX
$1,000
Ian and Janet Bell
(539 days ago)
$100
Leigh
(541 days ago)
Sending hope and love
$100
Pam, Rose, Sandra, Martin and Robyn
(548 days ago)
$130
Ferny Grove State School
(549 days ago)
Student Council Disco (15/10/15)
$2,703
Graham Imhoff
(582 days ago)
$50
Ernie Broadhead
(582 days ago)
$50
McDowall State School
(583 days ago)
$600
Ferny Grove School Fundraising
(583 days ago)
$654
Jill, Jeremy and Jonah
(593 days ago)
From our family to yours we're all in this little boat together. xo
$250
Oliver Cochrane
(597 days ago)
My pocket money
$22
Stephanie & Celso Perez
(608 days ago)
Much love from the Perez family x
$250
Michael and Robyn Mcanany
(612 days ago)
$50
Glen Sales and Penelope Kirk
(613 days ago)
$600
Barry & Denise Riley (mackenzie's granperants)
(614 days ago)
We have heard so many wonderful stories about this strong little man we hope a cure is found in time
$50
Michelle Morrice
(617 days ago)
McDowall State School Spring Fair Stall
$582
Roderick Yesberg
(619 days ago)
In lieu of Father's Day and Birthday presents
$80
Mackenzie Watson
(623 days ago)
A month of no Sundaes
$510
Rhonnda and Roger Dooley
(627 days ago)
Hope all goes well for your little man.
$50
Monica & Gabriel
(633 days ago)
Keep dreaming and smiling Alec!
$50
Owen Nattrass
(638 days ago)
To a very special great grandson With love Oompa.
$2,000
Lyn Morrice
(639 days ago)
He has always been such an affectionate and lovable boy. XX Grandma
$50
Averil Nattrass
(639 days ago)
Alec you are a special boy and you are always in my thoughts Aunty Averil.
$500
Nan and Pop
(640 days ago)
Given with hope and love for our precious boy Alec.
$50
Carmen Smith
(645 days ago)
Keep smiling Alec! 😊
$15
Marg Frame
(648 days ago)
This little guy brightens my days more than I can say!!!
$50
Ingrid Maack
(648 days ago)
Thank you for joining the fight. Look forward to one day meeting this remarkable young man!
$20
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry