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Hope for Alec
August 10, 2015 12:00 AM

Hope for Alec

Alec has Sanfilippo Syndrome Type C. Without a treatment, he will not live to adulthood. You can help save children like Alec by contributing to our campaign to raise funds for research in to this condition.
   

 

Alec has Sanfilpppo Sydrome Type C.  (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000. All funds raised via the Hope for Alec campaign will be put towards Type C research.

 

 

You can help


 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Alec campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Alec's story here

107 Donors

Michael and Robyn McAnany
(1 days ago)
$50
Trivia Night
(1 days ago)
$9,778
Anonymous
(5 days ago)
$323
Ferny Grove State School
(22 days ago)
Disco Glow Product Sales
$50
Steven James Accountants Pty Ltd
(26 days ago)
$700
I love McDowall Facebook Page
(37 days ago)
Campaign on Facebook for every like I Love McDowall received, we'd donate $1. Madeleine Hicks RE
$52
Rent Star Property Management
(39 days ago)
$150
Roderick and Patricia Yesberg
(45 days ago)
$100
Liz Conners
(49 days ago)
$50
Michael & Robyn McAnany
(91 days ago)
$50
Brisbane Tough Mudder 2017
(95 days ago)
$12,015
Peter Wheeler
(106 days ago)
$20
Andrew Erickson
(107 days ago)
$366
Carl Gibbs
(122 days ago)
$150
Matt Hendra For Henry Schein
(122 days ago)
$250
Lauren & Tom Cowan
(130 days ago)
With love & admiration
$50
Lynne Mackenzie
(134 days ago)
For Hope for Alec Team - Lucille
$100
Paper Boat Press - Bake Sale
(172 days ago)
$122
Cr Matt Constance - Moreton Bay Regional Council
(183 days ago)
$200
#10for$10 Alec birthday campaign
(238 days ago)
$1,510
Lyn Morrice
(240 days ago)
Happy 10th Birthday, Alec. Lots of love, From Grandma XXXXOOOO
$200
Des Ridgill and Kathy Riches
(246 days ago)
Hope for Alec!
$100
Andrew Payne
(257 days ago)
Christmas Donation.
$100
Roderick Yesberg
(257 days ago)
$50
Tamika Kent
(268 days ago)
#alliwantforchristmasisacure
$100
The Johnsons and The Dooleys
(269 days ago)
From our families to yours this Christmas, we wanted to donate our Secret Santa donations to Alec.
$570
Rose, Sandra, Martin and Robyn
(277 days ago)
$110
Carols by Glowstick at McDowall State School
(281 days ago)
$442
Michael and Robyn McAnany
(283 days ago)
$50
Roderick and Patricia Yesberg
(283 days ago)
$50
Ken & Lyn Davies
(284 days ago)
Michelle & Chris Never cease to be amazed by your fortitude and devotion.
$100
Secret Santa m8
(284 days ago)
$50
SJAccountants (Steve & Bry)
(285 days ago)
Secret Santa for your beautiful boy!
$200
Ferny Grove State School Student Council Disco
(298 days ago)
$2,951
Jess (parent from FGSS)
(305 days ago)
What a tough road, my thoughts are with you. I hope the new research brings you closer to a cure x
$50
Hilder Road State School Car Boot Sale
(311 days ago)
$322
Kylie Johnson
(312 days ago)
on behalf of our book sale
$516
Paperboat Press - Book & Bake Sale
(315 days ago)
$832
Ferny Grove State School Disco
(316 days ago)
$447
Liz
(340 days ago)
$100
Kathy Riches
(343 days ago)
$50
Tahlia Wyllie
(343 days ago)
$50
Crazy Hair Stall
(344 days ago)
$250
Fathers Day Stall
(346 days ago)
$286
Fairview RSL Care
(359 days ago)
$500
Maureen McAnany
(378 days ago)
$50
Michael Brown - Modplumb Solutions
(403 days ago)
sorry we didnt make tough mudder. A donation with love to you all.
$3,000
Maxine and Ken Swenson
(414 days ago)
XXOO
$100
Graham and Nancy Inhoff
(429 days ago)
$50
MacDowall State School Sports Carnivale Bake Stall
(436 days ago)
$900
Elizabeth Farrell
(457 days ago)
$20
Elizabeth Farrell
(457 days ago)
$20
Mitch Winterburn : Zac Pollard Tough Mudder
(490 days ago)
$100
Beavis Bartel Contributions
(492 days ago)
$1,265
MacDowall State School Mothers Day Stall
(492 days ago)
$1,436
Kathy Riches Tough Mudder sponsorship
(492 days ago)
$100
BBQ Anaconda Everton Park (Hope for Alec)
(492 days ago)
$1,325
Aunty Averil
(496 days ago)
$500
Tough Mudder 2016
(496 days ago)
$8,098
Burson Auto Parts
(540 days ago)
Proceeds from Sale of Donated Welder's Helmet
$70
Mark Tapley
(562 days ago)
$100
Hope for Alec Trivia Night
(562 days ago)
$6,113
Wade and Megan Pustolla
(569 days ago)
$70
Beavis & Bartels Newstead Towers Employee Contributions
(587 days ago)
$185
Beavis & Bartell Employee Contributions
(588 days ago)
$600
Beavis & Bartels SCUH Employee Contributions
(597 days ago)
$5,355
Cam
(605 days ago)
$500
Anonymous
(614 days ago)
$50
Masters BBQ Fundraiser
(627 days ago)
$1,324
Anonymous
(630 days ago)
$50
Nattrass, Manson, Morrice Families
(635 days ago)
In Lieu of Secret Santa Presents
$300
Roderick and Patricia Yesberg
(638 days ago)
In Lieu of Christmas Presents
$80
Eunice Ormond
(649 days ago)
$50
Monica
(649 days ago)
You are my secret Santa
$50
PB Family
(649 days ago)
Merry Christmas from the PB Family :)
$50
Secret Santa SJA
(650 days ago)
$100
SJA Secret Santa
(650 days ago)
$50
Secret Santa
(650 days ago)
$50
Secret Santa SJA
(654 days ago)
$50
Christmas Bake Sale Paperboat Press
(657 days ago)
$329
Lyn Morrice (Grandma)
(658 days ago)
We love that little man. His smile is priceless! XXXX
$1,000
Ian and Janet Bell
(658 days ago)
$100
Leigh
(660 days ago)
Sending hope and love
$100
Pam, Rose, Sandra, Martin and Robyn
(667 days ago)
$130
Ferny Grove State School
(668 days ago)
Student Council Disco (15/10/15)
$2,703
Graham Imhoff
(701 days ago)
$50
Ernie Broadhead
(701 days ago)
$50
McDowall State School
(702 days ago)
$600
Ferny Grove School Fundraising
(702 days ago)
$654
Jill, Jeremy and Jonah
(712 days ago)
From our family to yours we're all in this little boat together. xo
$250
Oliver Cochrane
(716 days ago)
My pocket money
$22
Stephanie & Celso Perez
(727 days ago)
Much love from the Perez family x
$250
Michael and Robyn Mcanany
(731 days ago)
$50
Glen Sales and Penelope Kirk
(732 days ago)
$600
Barry & Denise Riley (mackenzie's granperants)
(733 days ago)
We have heard so many wonderful stories about this strong little man we hope a cure is found in time
$50
Michelle Morrice
(736 days ago)
McDowall State School Spring Fair Stall
$582
Roderick Yesberg
(738 days ago)
In lieu of Father's Day and Birthday presents
$80
Mackenzie Watson
(742 days ago)
A month of no Sundaes
$510
Rhonnda and Roger Dooley
(746 days ago)
Hope all goes well for your little man.
$50
Monica & Gabriel
(752 days ago)
Keep dreaming and smiling Alec!
$50
Owen Nattrass
(757 days ago)
To a very special great grandson With love Oompa.
$2,000
Lyn Morrice
(758 days ago)
He has always been such an affectionate and lovable boy. XX Grandma
$50
Averil Nattrass
(758 days ago)
Alec you are a special boy and you are always in my thoughts Aunty Averil.
$500
Nan and Pop
(759 days ago)
Given with hope and love for our precious boy Alec.
$50
Carmen Smith
(764 days ago)
Keep smiling Alec! 😊
$15
Marg Frame
(767 days ago)
This little guy brightens my days more than I can say!!!
$50
Ingrid Maack
(767 days ago)
Thank you for joining the fight. Look forward to one day meeting this remarkable young man!
$20
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

Read More

Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry