Dialog Box

Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

87 Donors

(58 days ago)
Good luck to you!
(59 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(67 days ago)
Santa photos - Maloufs Pharmacy
(67 days ago)
Sonya Watson
(67 days ago)
Cookie fundraiser
Elke Klein
(68 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(68 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(68 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(68 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(68 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(171 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(171 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(174 days ago)
Fernando Montanelli
(220 days ago)
Monica & Charles
(269 days ago)
NB Council
(276 days ago)
Simon Waddington
(278 days ago)
sarah wilson
(279 days ago)
Allan D
(283 days ago)
Janice Ho
(298 days ago)
Sun Run - Morgan and Oscar
(321 days ago)
Sun Run - Nadine Miller
(321 days ago)
SunRun - Simon Franklin
(321 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(329 days ago)
Anne-Lies Jacobs
(332 days ago)
Happy Birthday Jude
Sandra Rutten
(333 days ago)
Margaret Consentino
(333 days ago)
Adam Papalia
(333 days ago)
Elke Klein General Store Fundraising
(340 days ago)
(345 days ago)
Elisabeth Cavaleri Birthday Party donations
(346 days ago)
(352 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(433 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(437 days ago)
Van Bogan Band Night Fundraiser
(468 days ago)
Sharon Avis
(476 days ago)
Darrell Babidge
(477 days ago)
Doggie Day at the Bay BBQ
(486 days ago)
Doggie Day @ The Bay BBQ & Stall
(489 days ago)
Tom Miles - Bunnings BBQ
(494 days ago)
Brad Selleck Memorial
(501 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(511 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(523 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(524 days ago)
Bella Thompson Birthday
(535 days ago)
Kids OT Bridge Run
(538 days ago)
Runforhope CIty2Surf
(579 days ago)
(590 days ago)
The Jayatilakes
(626 days ago)
With love, kisses and super big cuddles xxx
(654 days ago)
Roger and Bronwen Crouch
(657 days ago)
Olga Bell
(657 days ago)
Doreen Bailey
(657 days ago)
(674 days ago)
Bunnings BBQ - Tom Miles and co
(675 days ago)
(704 days ago)
Jess mcnamee
(710 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(718 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(744 days ago)
Katrina Baikie - Sun Run 2016
(752 days ago)
Meg Sun Run 2016
(752 days ago)
THEMA - Sun Run 2016
(752 days ago)
Rhian - Sun Run 2016
(752 days ago)
Ingrid - Sun Run 2016
(752 days ago)
Nadine Miller - Sun Run 2016
(752 days ago)
Daniel and Madeline Engagement
(752 days ago)
Evelyn St Luke's Church Fete
(752 days ago)
Brad Sellick Memorial
(752 days ago)
Sally Hall Palm Beach-Manly Walk
(752 days ago)
Kindy Kids Christmas Cards
(752 days ago)
Jarrod Yates Growing Solo
(752 days ago)
Totally 80s Trivia
(752 days ago)
Open Garden, Port Macquarie
(752 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(752 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(752 days ago)
Loom for Sanfilippo Aug 2015
(752 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(752 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(752 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(752 days ago)
Matteo Mini Marathon August 2015
(752 days ago)
North Curl Curl Netball Cake Stall May 2015
(752 days ago)
Bunnings Balgowlah Cake Stall May 2015
(752 days ago)
StylingtheTribe Instagram fashion auction
(752 days ago)
Sun Run 2015
(752 days ago)
Cake Stall Bathurst Jan 2015
(752 days ago)
Sony Music Australia
(752 days ago)
Donations Prior to January 2015
(1152 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry