Dialog Box

Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

87 Donors

(57 days ago)
Good luck to you!
(57 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(66 days ago)
Santa photos - Maloufs Pharmacy
(66 days ago)
Sonya Watson
(66 days ago)
Cookie fundraiser
Elke Klein
(67 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(67 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(67 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(67 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(67 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(170 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(170 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(172 days ago)
Fernando Montanelli
(219 days ago)
Monica & Charles
(268 days ago)
NB Council
(275 days ago)
Simon Waddington
(277 days ago)
sarah wilson
(278 days ago)
Allan D
(282 days ago)
Janice Ho
(297 days ago)
Sun Run - Morgan and Oscar
(320 days ago)
Sun Run - Nadine Miller
(320 days ago)
SunRun - Simon Franklin
(320 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(327 days ago)
Anne-Lies Jacobs
(331 days ago)
Happy Birthday Jude
Sandra Rutten
(332 days ago)
Margaret Consentino
(332 days ago)
Adam Papalia
(332 days ago)
Elke Klein General Store Fundraising
(339 days ago)
(344 days ago)
Elisabeth Cavaleri Birthday Party donations
(345 days ago)
(351 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(432 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(436 days ago)
Van Bogan Band Night Fundraiser
(467 days ago)
Sharon Avis
(475 days ago)
Darrell Babidge
(475 days ago)
Doggie Day at the Bay BBQ
(485 days ago)
Doggie Day @ The Bay BBQ & Stall
(488 days ago)
Tom Miles - Bunnings BBQ
(493 days ago)
Brad Selleck Memorial
(500 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(510 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(522 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(523 days ago)
Bella Thompson Birthday
(534 days ago)
Kids OT Bridge Run
(537 days ago)
Runforhope CIty2Surf
(577 days ago)
(589 days ago)
The Jayatilakes
(625 days ago)
With love, kisses and super big cuddles xxx
(653 days ago)
Roger and Bronwen Crouch
(656 days ago)
Olga Bell
(656 days ago)
Doreen Bailey
(656 days ago)
(672 days ago)
Bunnings BBQ - Tom Miles and co
(674 days ago)
(703 days ago)
Jess mcnamee
(709 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(717 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(743 days ago)
Katrina Baikie - Sun Run 2016
(751 days ago)
Meg Sun Run 2016
(751 days ago)
THEMA - Sun Run 2016
(751 days ago)
Rhian - Sun Run 2016
(751 days ago)
Ingrid - Sun Run 2016
(751 days ago)
Nadine Miller - Sun Run 2016
(751 days ago)
Daniel and Madeline Engagement
(751 days ago)
Evelyn St Luke's Church Fete
(751 days ago)
Brad Sellick Memorial
(751 days ago)
Sally Hall Palm Beach-Manly Walk
(751 days ago)
Kindy Kids Christmas Cards
(751 days ago)
Jarrod Yates Growing Solo
(751 days ago)
Totally 80s Trivia
(751 days ago)
Open Garden, Port Macquarie
(751 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(751 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(751 days ago)
Loom for Sanfilippo Aug 2015
(751 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(751 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(751 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(751 days ago)
Matteo Mini Marathon August 2015
(751 days ago)
North Curl Curl Netball Cake Stall May 2015
(751 days ago)
Bunnings Balgowlah Cake Stall May 2015
(751 days ago)
StylingtheTribe Instagram fashion auction
(751 days ago)
Sun Run 2015
(751 days ago)
Cake Stall Bathurst Jan 2015
(751 days ago)
Sony Music Australia
(751 days ago)
Donations Prior to January 2015
(1151 days ago)
Category: Campaigns
Stay informed with our e-news


We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

Read More


PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry