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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.
   

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 

 

 

 

 

Isla is 8 years old.

 

 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.

 

 

 

 

Jude is 6 years old.

 

He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.

 

 

 

 

Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.

 

 

 

You can help 

 

Online Donation

 

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.

 

Buy the Song

 

Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.

 

 

Run a Fundraiser

 

You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

 

Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

90 Donors

Anonymous
(114 days ago)
$100
Val
(181 days ago)
Well done guys!
$50
Joe and Leanne Zautsen
(184 days ago)
All the best
$25
Peter
(246 days ago)
Good luck to you!
$25
Tanya
(247 days ago)
Sending hope, love and prayers to your family
$25
Mozaic Christmas Fudnraiser
(255 days ago)
$3,300
Santa photos - Maloufs Pharmacy
(255 days ago)
$182
Sonya Watson
(255 days ago)
Cookie fundraiser
$385
Elke Klein
(256 days ago)
Elke Klein General Store fundraiser
$659
Billy Volo - 3 day trek
(256 days ago)
Two men and their dogs trekking for Isla and Jude
$630
Clare Claydon
(256 days ago)
Sustainability Open Day - for Isla and Jude
$846
Toby Greenow's A Rat's Tale
(256 days ago)
Rat's tail shave for Isla and Jude
$1,235
Nikki's 250km run for Isla and Jude
(256 days ago)
Patagonia ultra-marathon
$3,925
Back to School Trivia Night
(359 days ago)
Sandra Scriven and team
$18,000
Carnival Fun Day Fundraiser
(359 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
$4,191
Anna
(362 days ago)
$25
Fernando Montanelli
(409 days ago)
$25
Monica & Charles
(457 days ago)
$2,000
NB Council
(464 days ago)
$1,000
Simon Waddington
(466 days ago)
$25
sarah wilson
(467 days ago)
$20
Allan D
(471 days ago)
$216
Janice Ho
(486 days ago)
$50
Sun Run - Morgan and Oscar
(509 days ago)
$7,625
Sun Run - Nadine Miller
(509 days ago)
$3,515
SunRun - Simon Franklin
(509 days ago)
$775
Yasmin C 'Meet me in the Middle' 10k walk
(517 days ago)
$1,191
Anne-Lies Jacobs
(520 days ago)
Happy Birthday Jude
$100
Sandra Rutten
(521 days ago)
$150
Margaret Consentino
(521 days ago)
$250
Adam Papalia
(521 days ago)
$250
Elke Klein General Store Fundraising
(528 days ago)
$778
EK
(533 days ago)
$50
Elisabeth Cavaleri Birthday Party donations
(534 days ago)
$1,780
Nadine
(541 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
$50
Taylor Dunn
(621 days ago)
$85
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(625 days ago)
$381
Van Bogan Band Night Fundraiser
(656 days ago)
$1,015
Sharon Avis
(664 days ago)
$50
Darrell Babidge
(665 days ago)
$25
Doggie Day at the Bay BBQ
(674 days ago)
$100
Doggie Day @ The Bay BBQ & Stall
(677 days ago)
$1,320
Tom Miles - Bunnings BBQ
(682 days ago)
$1,070
Brad Selleck Memorial
(689 days ago)
$20
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(700 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
$171
TasNetworks
(711 days ago)
We delayed our contribution as we managed to increase it.
$550
Dan Park
(713 days ago)
$250
Bella Thompson Birthday
(723 days ago)
$450
Kids OT Bridge Run
(727 days ago)
$1,327
Runforhope CIty2Surf
(767 days ago)
$2,625
Julia
(779 days ago)
$25
The Jayatilakes
(814 days ago)
With love, kisses and super big cuddles xxx
$2,000
Anonymous
(842 days ago)
$12,500
Roger and Bronwen Crouch
(845 days ago)
$300
Olga Bell
(845 days ago)
$100
Doreen Bailey
(845 days ago)
$25
Anonymous
(862 days ago)
$250
Bunnings BBQ - Tom Miles and co
(863 days ago)
$590
Anonymous
(892 days ago)
$20
Jess mcnamee
(898 days ago)
Miss you guys! Lots of love and happy birthday jude
$100
Elsie Houston
(906 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
$50
Leanne - Run for Hope Half Marathon
(932 days ago)
$840
Katrina Baikie - Sun Run 2016
(940 days ago)
$420
Meg Sun Run 2016
(940 days ago)
$200
THEMA - Sun Run 2016
(940 days ago)
$900
Rhian - Sun Run 2016
(940 days ago)
$70
Ingrid - Sun Run 2016
(940 days ago)
$540
Nadine Miller - Sun Run 2016
(940 days ago)
$2,405
Daniel and Madeline Engagement
(940 days ago)
$1,080
Evelyn St Luke's Church Fete
(940 days ago)
$429
Brad Sellick Memorial
(940 days ago)
$200
Sally Hall Palm Beach-Manly Walk
(940 days ago)
$760
Kindy Kids Christmas Cards
(940 days ago)
$3,845
Jarrod Yates Growing Solo
(940 days ago)
$5,000
Totally 80s Trivia
(940 days ago)
$22,000
Open Garden, Port Macquarie
(940 days ago)
$5,115
Manly West Carnival Cake Stall (Oct 2015)
(940 days ago)
$1,000
Erin Colwell Blackmores Running Festival (Sep 2015)
(940 days ago)
$275
Loom for Sanfilippo Aug 2015
(940 days ago)
$1,420
Dance for Hope Kids Disco (Freshwater) Aug 2015
(940 days ago)
$6,500
Pub2Pub Fun Run (Team Total) Aug 2015
(940 days ago)
$7,156
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(940 days ago)
$7,114
Matteo Mini Marathon August 2015
(940 days ago)
$1,532
North Curl Curl Netball Cake Stall May 2015
(940 days ago)
$2,190
Bunnings Balgowlah Cake Stall May 2015
(940 days ago)
$2,820
StylingtheTribe Instagram fashion auction
(940 days ago)
$3,000
Sun Run 2015
(940 days ago)
$6,925
Cake Stall Bathurst Jan 2015
(940 days ago)
$1,000
Sony Music Australia
(940 days ago)
$5,436
Donations Prior to January 2015
(1340 days ago)
$50,371
Category: Campaigns
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry