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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

77 Donors

Back to School Trivia Night
(78 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(78 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(80 days ago)
Fernando Montanelli
(127 days ago)
Monica & Charles
(176 days ago)
NB Council
(182 days ago)
Simon Waddington
(185 days ago)
sarah wilson
(186 days ago)
Allan D
(190 days ago)
Janice Ho
(205 days ago)
Sun Run - Morgan and Oscar
(228 days ago)
Sun Run - Nadine Miller
(228 days ago)
SunRun - Simon Franklin
(228 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(235 days ago)
Anne-Lies Jacobs
(239 days ago)
Happy Birthday Jude
Sandra Rutten
(240 days ago)
Margaret Consentino
(240 days ago)
Adam Papalia
(240 days ago)
Elke Klein General Store Fundraising
(246 days ago)
(252 days ago)
Elisabeth Cavaleri Birthday Party donations
(252 days ago)
(259 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(340 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(343 days ago)
Van Bogan Band Night Fundraiser
(375 days ago)
Sharon Avis
(383 days ago)
Darrell Babidge
(383 days ago)
Doggie Day at the Bay BBQ
(393 days ago)
Doggie Day @ The Bay BBQ & Stall
(395 days ago)
Tom Miles - Bunnings BBQ
(401 days ago)
Brad Selleck Memorial
(407 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(418 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(430 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(431 days ago)
Bella Thompson Birthday
(442 days ago)
Kids OT Bridge Run
(445 days ago)
Runforhope CIty2Surf
(485 days ago)
(497 days ago)
The Jayatilakes
(533 days ago)
With love, kisses and super big cuddles xxx
(561 days ago)
Roger and Bronwen Crouch
(564 days ago)
Olga Bell
(564 days ago)
Doreen Bailey
(564 days ago)
(580 days ago)
Bunnings BBQ - Tom Miles and co
(581 days ago)
(610 days ago)
Jess mcnamee
(616 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(624 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(651 days ago)
Katrina Baikie - Sun Run 2016
(659 days ago)
Meg Sun Run 2016
(659 days ago)
THEMA - Sun Run 2016
(659 days ago)
Rhian - Sun Run 2016
(659 days ago)
Ingrid - Sun Run 2016
(659 days ago)
Nadine Miller - Sun Run 2016
(659 days ago)
Daniel and Madeline Engagement
(659 days ago)
Evelyn St Luke's Church Fete
(659 days ago)
Brad Sellick Memorial
(659 days ago)
Sally Hall Palm Beach-Manly Walk
(659 days ago)
Kindy Kids Christmas Cards
(659 days ago)
Jarrod Yates Growing Solo
(659 days ago)
Totally 80s Trivia
(659 days ago)
Open Garden, Port Macquarie
(659 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(659 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(659 days ago)
Loom for Sanfilippo Aug 2015
(659 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(659 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(659 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(659 days ago)
Matteo Mini Marathon August 2015
(659 days ago)
North Curl Curl Netball Cake Stall May 2015
(659 days ago)
Bunnings Balgowlah Cake Stall May 2015
(659 days ago)
StylingtheTribe Instagram fashion auction
(659 days ago)
Sun Run 2015
(659 days ago)
Cake Stall Bathurst Jan 2015
(659 days ago)
Sony Music Australia
(659 days ago)
Donations Prior to January 2015
(1058 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry