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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.
   

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 

 

 

 

 

Isla is 8 years old.

 

 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.

 

 

 

 

Jude is 6 years old.

 

He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.

 

 

 

 

Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.

 

 

 

You can help 

 

Online Donation

 

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.

 

Buy the Song

 

Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.

 

 

Run a Fundraiser

 

You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

 

Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

91 Donors

Anonymous
(18 days ago)
$200
Anonymous
(169 days ago)
$100
Val
(236 days ago)
Well done guys!
$50
Joe and Leanne Zautsen
(238 days ago)
All the best
$25
Peter
(301 days ago)
Good luck to you!
$25
Tanya
(301 days ago)
Sending hope, love and prayers to your family
$25
Mozaic Christmas Fudnraiser
(310 days ago)
$3,300
Santa photos - Maloufs Pharmacy
(310 days ago)
$182
Sonya Watson
(310 days ago)
Cookie fundraiser
$385
Elke Klein
(311 days ago)
Elke Klein General Store fundraiser
$659
Billy Volo - 3 day trek
(311 days ago)
Two men and their dogs trekking for Isla and Jude
$630
Clare Claydon
(311 days ago)
Sustainability Open Day - for Isla and Jude
$846
Toby Greenow's A Rat's Tale
(311 days ago)
Rat's tail shave for Isla and Jude
$1,235
Nikki's 250km run for Isla and Jude
(311 days ago)
Patagonia ultra-marathon
$3,925
Back to School Trivia Night
(414 days ago)
Sandra Scriven and team
$18,000
Carnival Fun Day Fundraiser
(414 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
$4,191
Anna
(416 days ago)
$25
Fernando Montanelli
(463 days ago)
$25
Monica & Charles
(512 days ago)
$2,000
NB Council
(519 days ago)
$1,000
Simon Waddington
(521 days ago)
$25
sarah wilson
(522 days ago)
$20
Allan D
(526 days ago)
$216
Janice Ho
(541 days ago)
$50
Sun Run - Morgan and Oscar
(564 days ago)
$7,625
Sun Run - Nadine Miller
(564 days ago)
$3,515
SunRun - Simon Franklin
(564 days ago)
$775
Yasmin C 'Meet me in the Middle' 10k walk
(571 days ago)
$1,191
Anne-Lies Jacobs
(575 days ago)
Happy Birthday Jude
$100
Sandra Rutten
(576 days ago)
$150
Margaret Consentino
(576 days ago)
$250
Adam Papalia
(576 days ago)
$250
Elke Klein General Store Fundraising
(583 days ago)
$778
EK
(588 days ago)
$50
Elisabeth Cavaleri Birthday Party donations
(589 days ago)
$1,780
Nadine
(595 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
$50
Taylor Dunn
(676 days ago)
$85
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(680 days ago)
$381
Van Bogan Band Night Fundraiser
(711 days ago)
$1,015
Sharon Avis
(719 days ago)
$50
Darrell Babidge
(719 days ago)
$25
Doggie Day at the Bay BBQ
(729 days ago)
$100
Doggie Day @ The Bay BBQ & Stall
(732 days ago)
$1,320
Tom Miles - Bunnings BBQ
(737 days ago)
$1,070
Brad Selleck Memorial
(744 days ago)
$20
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(754 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
$171
TasNetworks
(766 days ago)
We delayed our contribution as we managed to increase it.
$550
Dan Park
(767 days ago)
$250
Bella Thompson Birthday
(778 days ago)
$450
Kids OT Bridge Run
(781 days ago)
$1,327
Runforhope CIty2Surf
(821 days ago)
$2,625
Julia
(833 days ago)
$25
The Jayatilakes
(869 days ago)
With love, kisses and super big cuddles xxx
$2,000
Anonymous
(897 days ago)
$12,500
Roger and Bronwen Crouch
(900 days ago)
$300
Olga Bell
(900 days ago)
$100
Doreen Bailey
(900 days ago)
$25
Anonymous
(916 days ago)
$250
Bunnings BBQ - Tom Miles and co
(918 days ago)
$590
Anonymous
(947 days ago)
$20
Jess mcnamee
(953 days ago)
Miss you guys! Lots of love and happy birthday jude
$100
Elsie Houston
(961 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
$50
Leanne - Run for Hope Half Marathon
(987 days ago)
$840
Katrina Baikie - Sun Run 2016
(995 days ago)
$420
Meg Sun Run 2016
(995 days ago)
$200
THEMA - Sun Run 2016
(995 days ago)
$900
Rhian - Sun Run 2016
(995 days ago)
$70
Ingrid - Sun Run 2016
(995 days ago)
$540
Nadine Miller - Sun Run 2016
(995 days ago)
$2,405
Daniel and Madeline Engagement
(995 days ago)
$1,080
Evelyn St Luke's Church Fete
(995 days ago)
$429
Brad Sellick Memorial
(995 days ago)
$200
Sally Hall Palm Beach-Manly Walk
(995 days ago)
$760
Kindy Kids Christmas Cards
(995 days ago)
$3,845
Jarrod Yates Growing Solo
(995 days ago)
$5,000
Totally 80s Trivia
(995 days ago)
$22,000
Open Garden, Port Macquarie
(995 days ago)
$5,115
Manly West Carnival Cake Stall (Oct 2015)
(995 days ago)
$1,000
Erin Colwell Blackmores Running Festival (Sep 2015)
(995 days ago)
$275
Loom for Sanfilippo Aug 2015
(995 days ago)
$1,420
Dance for Hope Kids Disco (Freshwater) Aug 2015
(995 days ago)
$6,500
Pub2Pub Fun Run (Team Total) Aug 2015
(995 days ago)
$7,156
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(995 days ago)
$7,114
Matteo Mini Marathon August 2015
(995 days ago)
$1,532
North Curl Curl Netball Cake Stall May 2015
(995 days ago)
$2,190
Bunnings Balgowlah Cake Stall May 2015
(995 days ago)
$2,820
StylingtheTribe Instagram fashion auction
(995 days ago)
$3,000
Sun Run 2015
(995 days ago)
$6,925
Cake Stall Bathurst Jan 2015
(995 days ago)
$1,000
Sony Music Australia
(995 days ago)
$5,436
Donations Prior to January 2015
(1395 days ago)
$50,371
Category: Campaigns
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry