Dialog Box

Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 9 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 7 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

97 Donors

Sustainable Open House Day
(39 days ago)
Kyneton Old Time Dance
(39 days ago)
Moziac Christmas Candle Fundraiser
(39 days ago)
Paddle for Isla & Jude - Fit State of Mind Fundraiser
(39 days ago)
(57 days ago)
(83 days ago)
Wishing everyone a very happy Christmas!
(110 days ago)
(261 days ago)
(328 days ago)
Well done guys!
Joe and Leanne Zautsen
(331 days ago)
All the best
(393 days ago)
Good luck to you!
(393 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(402 days ago)
Santa photos - Maloufs Pharmacy
(402 days ago)
Sonya Watson
(402 days ago)
Cookie fundraiser
Elke Klein
(403 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(403 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(403 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(403 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(403 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(506 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(506 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(509 days ago)
Fernando Montanelli
(555 days ago)
Monica & Charles
(604 days ago)
NB Council
(611 days ago)
Simon Waddington
(613 days ago)
sarah wilson
(614 days ago)
Allan D
(618 days ago)
Janice Ho
(633 days ago)
Sun Run - Morgan and Oscar
(656 days ago)
Sun Run - Nadine Miller
(656 days ago)
SunRun - Simon Franklin
(656 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(664 days ago)
Anne-Lies Jacobs
(667 days ago)
Happy Birthday Jude
Sandra Rutten
(668 days ago)
Margaret Consentino
(668 days ago)
Adam Papalia
(668 days ago)
Elke Klein General Store Fundraising
(675 days ago)
(680 days ago)
Elisabeth Cavaleri Birthday Party donations
(681 days ago)
(687 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(768 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(772 days ago)
Van Bogan Band Night Fundraiser
(803 days ago)
Sharon Avis
(811 days ago)
Darrell Babidge
(812 days ago)
Doggie Day at the Bay BBQ
(821 days ago)
Doggie Day @ The Bay BBQ & Stall
(824 days ago)
Tom Miles - Bunnings BBQ
(829 days ago)
Brad Selleck Memorial
(836 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(846 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(858 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(859 days ago)
Bella Thompson Birthday
(870 days ago)
Kids OT Bridge Run
(873 days ago)
Runforhope CIty2Surf
(914 days ago)
(925 days ago)
The Jayatilakes
(961 days ago)
With love, kisses and super big cuddles xxx
(989 days ago)
Roger and Bronwen Crouch
(992 days ago)
Olga Bell
(992 days ago)
Doreen Bailey
(992 days ago)
(1009 days ago)
Bunnings BBQ - Tom Miles and co
(1010 days ago)
(1039 days ago)
Jess mcnamee
(1045 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(1053 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(1079 days ago)
Katrina Baikie - Sun Run 2016
(1087 days ago)
Meg Sun Run 2016
(1087 days ago)
THEMA - Sun Run 2016
(1087 days ago)
Rhian - Sun Run 2016
(1087 days ago)
Ingrid - Sun Run 2016
(1087 days ago)
Nadine Miller - Sun Run 2016
(1087 days ago)
Daniel and Madeline Engagement
(1087 days ago)
Evelyn St Luke's Church Fete
(1087 days ago)
Brad Sellick Memorial
(1087 days ago)
Sally Hall Palm Beach-Manly Walk
(1087 days ago)
Kindy Kids Christmas Cards
(1087 days ago)
Jarrod Yates Growing Solo
(1087 days ago)
Totally 80s Trivia
(1087 days ago)
Open Garden, Port Macquarie
(1087 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(1087 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(1087 days ago)
Loom for Sanfilippo Aug 2015
(1087 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(1087 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(1087 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(1087 days ago)
Matteo Mini Marathon August 2015
(1087 days ago)
North Curl Curl Netball Cake Stall May 2015
(1087 days ago)
Bunnings Balgowlah Cake Stall May 2015
(1087 days ago)
StylingtheTribe Instagram fashion auction
(1087 days ago)
Sun Run 2015
(1087 days ago)
Cake Stall Bathurst Jan 2015
(1087 days ago)
Sony Music Australia
(1087 days ago)
Donations Prior to January 2015
(1487 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry