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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

91 Donors

(23 days ago)
(174 days ago)
(241 days ago)
Well done guys!
Joe and Leanne Zautsen
(244 days ago)
All the best
(306 days ago)
Good luck to you!
(306 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(315 days ago)
Santa photos - Maloufs Pharmacy
(315 days ago)
Sonya Watson
(315 days ago)
Cookie fundraiser
Elke Klein
(316 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(316 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(316 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(316 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(316 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(419 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(419 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(422 days ago)
Fernando Montanelli
(468 days ago)
Monica & Charles
(517 days ago)
NB Council
(524 days ago)
Simon Waddington
(526 days ago)
sarah wilson
(527 days ago)
Allan D
(531 days ago)
Janice Ho
(546 days ago)
Sun Run - Morgan and Oscar
(569 days ago)
Sun Run - Nadine Miller
(569 days ago)
SunRun - Simon Franklin
(569 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(577 days ago)
Anne-Lies Jacobs
(580 days ago)
Happy Birthday Jude
Sandra Rutten
(581 days ago)
Margaret Consentino
(581 days ago)
Adam Papalia
(581 days ago)
Elke Klein General Store Fundraising
(588 days ago)
(593 days ago)
Elisabeth Cavaleri Birthday Party donations
(594 days ago)
(600 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(681 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(685 days ago)
Van Bogan Band Night Fundraiser
(716 days ago)
Sharon Avis
(724 days ago)
Darrell Babidge
(725 days ago)
Doggie Day at the Bay BBQ
(734 days ago)
Doggie Day @ The Bay BBQ & Stall
(737 days ago)
Tom Miles - Bunnings BBQ
(742 days ago)
Brad Selleck Memorial
(749 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(759 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(771 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(772 days ago)
Bella Thompson Birthday
(783 days ago)
Kids OT Bridge Run
(786 days ago)
Runforhope CIty2Surf
(827 days ago)
(838 days ago)
The Jayatilakes
(874 days ago)
With love, kisses and super big cuddles xxx
(902 days ago)
Roger and Bronwen Crouch
(905 days ago)
Olga Bell
(905 days ago)
Doreen Bailey
(905 days ago)
(922 days ago)
Bunnings BBQ - Tom Miles and co
(923 days ago)
(952 days ago)
Jess mcnamee
(958 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(966 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(992 days ago)
Katrina Baikie - Sun Run 2016
(1000 days ago)
Meg Sun Run 2016
(1000 days ago)
THEMA - Sun Run 2016
(1000 days ago)
Rhian - Sun Run 2016
(1000 days ago)
Ingrid - Sun Run 2016
(1000 days ago)
Nadine Miller - Sun Run 2016
(1000 days ago)
Daniel and Madeline Engagement
(1000 days ago)
Evelyn St Luke's Church Fete
(1000 days ago)
Brad Sellick Memorial
(1000 days ago)
Sally Hall Palm Beach-Manly Walk
(1000 days ago)
Kindy Kids Christmas Cards
(1000 days ago)
Jarrod Yates Growing Solo
(1000 days ago)
Totally 80s Trivia
(1000 days ago)
Open Garden, Port Macquarie
(1000 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(1000 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(1000 days ago)
Loom for Sanfilippo Aug 2015
(1000 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(1000 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(1000 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(1000 days ago)
Matteo Mini Marathon August 2015
(1000 days ago)
North Curl Curl Netball Cake Stall May 2015
(1000 days ago)
Bunnings Balgowlah Cake Stall May 2015
(1000 days ago)
StylingtheTribe Instagram fashion auction
(1000 days ago)
Sun Run 2015
(1000 days ago)
Cake Stall Bathurst Jan 2015
(1000 days ago)
Sony Music Australia
(1000 days ago)
Donations Prior to January 2015
(1400 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry