Dialog Box

Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 9 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 7 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

97 Donors

Sustainable Open House Day
(104 days ago)
Kyneton Old Time Dance
(104 days ago)
Moziac Christmas Candle Fundraiser
(104 days ago)
Paddle for Isla & Jude - Fit State of Mind Fundraiser
(104 days ago)
(122 days ago)
(148 days ago)
Wishing everyone a very happy Christmas!
(175 days ago)
(326 days ago)
(393 days ago)
Well done guys!
Joe and Leanne Zautsen
(396 days ago)
All the best
(458 days ago)
Good luck to you!
(459 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(467 days ago)
Santa photos - Maloufs Pharmacy
(467 days ago)
Sonya Watson
(467 days ago)
Cookie fundraiser
Elke Klein
(468 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(468 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(468 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(469 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(469 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(571 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(571 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(574 days ago)
Fernando Montanelli
(621 days ago)
Monica & Charles
(669 days ago)
NB Council
(676 days ago)
Simon Waddington
(678 days ago)
sarah wilson
(679 days ago)
Allan D
(683 days ago)
Janice Ho
(698 days ago)
Sun Run - Morgan and Oscar
(721 days ago)
Sun Run - Nadine Miller
(721 days ago)
SunRun - Simon Franklin
(721 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(729 days ago)
Anne-Lies Jacobs
(732 days ago)
Happy Birthday Jude
Sandra Rutten
(733 days ago)
Margaret Consentino
(733 days ago)
Adam Papalia
(733 days ago)
Elke Klein General Store Fundraising
(740 days ago)
(745 days ago)
Elisabeth Cavaleri Birthday Party donations
(746 days ago)
(753 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(833 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(837 days ago)
Van Bogan Band Night Fundraiser
(868 days ago)
Sharon Avis
(876 days ago)
Darrell Babidge
(877 days ago)
Doggie Day at the Bay BBQ
(886 days ago)
Doggie Day @ The Bay BBQ & Stall
(889 days ago)
Tom Miles - Bunnings BBQ
(894 days ago)
Brad Selleck Memorial
(901 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(912 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(923 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(925 days ago)
Bella Thompson Birthday
(936 days ago)
Kids OT Bridge Run
(939 days ago)
Runforhope CIty2Surf
(979 days ago)
(991 days ago)
The Jayatilakes
(1026 days ago)
With love, kisses and super big cuddles xxx
(1054 days ago)
Roger and Bronwen Crouch
(1057 days ago)
Olga Bell
(1057 days ago)
Doreen Bailey
(1057 days ago)
(1074 days ago)
Bunnings BBQ - Tom Miles and co
(1075 days ago)
(1104 days ago)
Jess mcnamee
(1110 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(1118 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(1144 days ago)
Katrina Baikie - Sun Run 2016
(1152 days ago)
Meg Sun Run 2016
(1152 days ago)
THEMA - Sun Run 2016
(1152 days ago)
Rhian - Sun Run 2016
(1152 days ago)
Ingrid - Sun Run 2016
(1152 days ago)
Nadine Miller - Sun Run 2016
(1152 days ago)
Daniel and Madeline Engagement
(1152 days ago)
Evelyn St Luke's Church Fete
(1152 days ago)
Brad Sellick Memorial
(1152 days ago)
Sally Hall Palm Beach-Manly Walk
(1152 days ago)
Kindy Kids Christmas Cards
(1152 days ago)
Jarrod Yates Growing Solo
(1152 days ago)
Totally 80s Trivia
(1152 days ago)
Open Garden, Port Macquarie
(1152 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(1152 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(1152 days ago)
Loom for Sanfilippo Aug 2015
(1152 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(1152 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(1152 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(1152 days ago)
Matteo Mini Marathon August 2015
(1152 days ago)
North Curl Curl Netball Cake Stall May 2015
(1152 days ago)
Bunnings Balgowlah Cake Stall May 2015
(1152 days ago)
StylingtheTribe Instagram fashion auction
(1152 days ago)
Sun Run 2015
(1152 days ago)
Cake Stall Bathurst Jan 2015
(1152 days ago)
Sony Music Australia
(1152 days ago)
Donations Prior to January 2015
(1552 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry