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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.
   

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 

 

 

 

 

Isla is 8 years old.

 

 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.

 

 

 

 

Jude is 6 years old.

 

He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.

 

 

 

 

Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.

 

 

 

You can help 

 

Online Donation

 

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.

 

Buy the Song

 

Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.

 

 

Run a Fundraiser

 

You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

 

Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

77 Donors

Back to School Trivia Night
(76 days ago)
Sandra Scriven and team
$18,000
Carnival Fun Day Fundraiser
(76 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
$4,191
Anna
(78 days ago)
$25
Fernando Montanelli
(125 days ago)
$25
Monica & Charles
(174 days ago)
$2,000
NB Council
(180 days ago)
$1,000
Simon Waddington
(183 days ago)
$25
sarah wilson
(184 days ago)
$20
Allan D
(188 days ago)
$216
Janice Ho
(203 days ago)
$50
Sun Run - Morgan and Oscar
(226 days ago)
$7,625
Sun Run - Nadine Miller
(226 days ago)
$3,515
SunRun - Simon Franklin
(226 days ago)
$775
Yasmin C 'Meet me in the Middle' 10k walk
(233 days ago)
$1,191
Anne-Lies Jacobs
(237 days ago)
Happy Birthday Jude
$100
Sandra Rutten
(238 days ago)
$150
Margaret Consentino
(238 days ago)
$250
Adam Papalia
(238 days ago)
$250
Elke Klein General Store Fundraising
(244 days ago)
$778
EK
(250 days ago)
$50
Elisabeth Cavaleri Birthday Party donations
(251 days ago)
$1,780
Nadine
(257 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
$50
Taylor Dunn
(338 days ago)
$85
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(341 days ago)
$381
Van Bogan Band Night Fundraiser
(373 days ago)
$1,015
Sharon Avis
(381 days ago)
$50
Darrell Babidge
(381 days ago)
$25
Doggie Day at the Bay BBQ
(391 days ago)
$100
Doggie Day @ The Bay BBQ & Stall
(393 days ago)
$1,320
Tom Miles - Bunnings BBQ
(399 days ago)
$1,070
Brad Selleck Memorial
(406 days ago)
$20
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(416 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
$171
TasNetworks
(428 days ago)
We delayed our contribution as we managed to increase it.
$550
Dan Park
(429 days ago)
$250
Bella Thompson Birthday
(440 days ago)
$450
Kids OT Bridge Run
(443 days ago)
$1,327
Runforhope CIty2Surf
(483 days ago)
$2,625
Julia
(495 days ago)
$25
The Jayatilakes
(531 days ago)
With love, kisses and super big cuddles xxx
$2,000
Anonymous
(559 days ago)
$12,500
Roger and Bronwen Crouch
(562 days ago)
$300
Olga Bell
(562 days ago)
$100
Doreen Bailey
(562 days ago)
$25
Anonymous
(578 days ago)
$250
Bunnings BBQ - Tom Miles and co
(579 days ago)
$590
Anonymous
(608 days ago)
$20
Jess mcnamee
(615 days ago)
Miss you guys! Lots of love and happy birthday jude
$100
Elsie Houston
(622 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
$50
Leanne - Run for Hope Half Marathon
(649 days ago)
$840
Katrina Baikie - Sun Run 2016
(657 days ago)
$420
Meg Sun Run 2016
(657 days ago)
$200
THEMA - Sun Run 2016
(657 days ago)
$900
Rhian - Sun Run 2016
(657 days ago)
$70
Ingrid - Sun Run 2016
(657 days ago)
$540
Nadine Miller - Sun Run 2016
(657 days ago)
$2,405
Daniel and Madeline Engagement
(657 days ago)
$1,080
Evelyn St Luke's Church Fete
(657 days ago)
$429
Brad Sellick Memorial
(657 days ago)
$200
Sally Hall Palm Beach-Manly Walk
(657 days ago)
$760
Kindy Kids Christmas Cards
(657 days ago)
$3,845
Jarrod Yates Growing Solo
(657 days ago)
$5,000
Totally 80s Trivia
(657 days ago)
$22,000
Open Garden, Port Macquarie
(657 days ago)
$5,115
Manly West Carnival Cake Stall (Oct 2015)
(657 days ago)
$1,000
Erin Colwell Blackmores Running Festival (Sep 2015)
(657 days ago)
$275
Loom for Sanfilippo Aug 2015
(657 days ago)
$1,420
Dance for Hope Kids Disco (Freshwater) Aug 2015
(657 days ago)
$6,500
Pub2Pub Fun Run (Team Total) Aug 2015
(657 days ago)
$7,156
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(657 days ago)
$7,114
Matteo Mini Marathon August 2015
(657 days ago)
$1,532
North Curl Curl Netball Cake Stall May 2015
(657 days ago)
$2,190
Bunnings Balgowlah Cake Stall May 2015
(657 days ago)
$2,820
StylingtheTribe Instagram fashion auction
(657 days ago)
$3,000
Sun Run 2015
(657 days ago)
$6,925
Cake Stall Bathurst Jan 2015
(657 days ago)
$1,000
Sony Music Australia
(657 days ago)
$5,436
Donations Prior to January 2015
(1056 days ago)
$50,371
Category: Campaigns
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry