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Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

90 Donors

(79 days ago)
(145 days ago)
Well done guys!
Joe and Leanne Zautsen
(148 days ago)
All the best
(210 days ago)
Good luck to you!
(211 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(219 days ago)
Santa photos - Maloufs Pharmacy
(219 days ago)
Sonya Watson
(219 days ago)
Cookie fundraiser
Elke Klein
(220 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(221 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(221 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(221 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(221 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(323 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(324 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(326 days ago)
Fernando Montanelli
(373 days ago)
Monica & Charles
(422 days ago)
NB Council
(428 days ago)
Simon Waddington
(431 days ago)
sarah wilson
(431 days ago)
Allan D
(435 days ago)
Janice Ho
(450 days ago)
Sun Run - Morgan and Oscar
(474 days ago)
Sun Run - Nadine Miller
(474 days ago)
SunRun - Simon Franklin
(474 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(481 days ago)
Anne-Lies Jacobs
(484 days ago)
Happy Birthday Jude
Sandra Rutten
(485 days ago)
Margaret Consentino
(485 days ago)
Adam Papalia
(485 days ago)
Elke Klein General Store Fundraising
(492 days ago)
(498 days ago)
Elisabeth Cavaleri Birthday Party donations
(498 days ago)
(505 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(585 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(589 days ago)
Van Bogan Band Night Fundraiser
(620 days ago)
Sharon Avis
(629 days ago)
Darrell Babidge
(629 days ago)
Doggie Day at the Bay BBQ
(638 days ago)
Doggie Day @ The Bay BBQ & Stall
(641 days ago)
Tom Miles - Bunnings BBQ
(646 days ago)
Brad Selleck Memorial
(653 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(664 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(675 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(677 days ago)
Bella Thompson Birthday
(688 days ago)
Kids OT Bridge Run
(691 days ago)
Runforhope CIty2Surf
(731 days ago)
(743 days ago)
The Jayatilakes
(779 days ago)
With love, kisses and super big cuddles xxx
(806 days ago)
Roger and Bronwen Crouch
(809 days ago)
Olga Bell
(809 days ago)
Doreen Bailey
(809 days ago)
(826 days ago)
Bunnings BBQ - Tom Miles and co
(827 days ago)
(856 days ago)
Jess mcnamee
(862 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(870 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(897 days ago)
Katrina Baikie - Sun Run 2016
(904 days ago)
Meg Sun Run 2016
(904 days ago)
THEMA - Sun Run 2016
(904 days ago)
Rhian - Sun Run 2016
(904 days ago)
Ingrid - Sun Run 2016
(904 days ago)
Nadine Miller - Sun Run 2016
(904 days ago)
Daniel and Madeline Engagement
(904 days ago)
Evelyn St Luke's Church Fete
(904 days ago)
Brad Sellick Memorial
(904 days ago)
Sally Hall Palm Beach-Manly Walk
(904 days ago)
Kindy Kids Christmas Cards
(904 days ago)
Jarrod Yates Growing Solo
(904 days ago)
Totally 80s Trivia
(904 days ago)
Open Garden, Port Macquarie
(904 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(904 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(904 days ago)
Loom for Sanfilippo Aug 2015
(904 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(904 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(904 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(904 days ago)
Matteo Mini Marathon August 2015
(904 days ago)
North Curl Curl Netball Cake Stall May 2015
(904 days ago)
Bunnings Balgowlah Cake Stall May 2015
(904 days ago)
StylingtheTribe Instagram fashion auction
(904 days ago)
Sun Run 2015
(904 days ago)
Cake Stall Bathurst Jan 2015
(904 days ago)
Sony Music Australia
(905 days ago)
Donations Prior to January 2015
(1304 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry