Dialog Box

Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. You can help save children like Isla and Jude by contributing to our campaign to raise funds for research in to this condition.

Isla and Jude are children with Sanfilippo Syndrome. Without a treatment, they will not live to adulthood. 





Isla is 8 years old.


 She loves dress-ups, singing and playing with her brother, Jude. Isla is looking forward to starting school next year. Isla has Sanfilippo Sydrome. Without treatment she will not live to adulthood. Read more about Isla's story here.





Jude is 6 years old.


He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read more about Jude's story here.





Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. See more on Sanfilippo Syndrome.




You can help 


Online Donation


Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on the button above to Donate to Campaign.


Buy the Song


Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.



Run a Fundraiser


You can run a fundraiser for the Hope for Isla and Jude campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button above to set up a fundraising page or contact us at to discuss your fundraising idea.



Top Fundraisers

Simon Davie $700.00
Kathy Wilkinson $275.00
View all

90 Donors

(111 days ago)
(177 days ago)
Well done guys!
Joe and Leanne Zautsen
(180 days ago)
All the best
(242 days ago)
Good luck to you!
(243 days ago)
Sending hope, love and prayers to your family
Mozaic Christmas Fudnraiser
(251 days ago)
Santa photos - Maloufs Pharmacy
(251 days ago)
Sonya Watson
(251 days ago)
Cookie fundraiser
Elke Klein
(253 days ago)
Elke Klein General Store fundraiser
Billy Volo - 3 day trek
(253 days ago)
Two men and their dogs trekking for Isla and Jude
Clare Claydon
(253 days ago)
Sustainability Open Day - for Isla and Jude
Toby Greenow's A Rat's Tale
(253 days ago)
Rat's tail shave for Isla and Jude
Nikki's 250km run for Isla and Jude
(253 days ago)
Patagonia ultra-marathon
Back to School Trivia Night
(355 days ago)
Sandra Scriven and team
Carnival Fun Day Fundraiser
(356 days ago)
To Isla and Judey, with love from Emily Bold and Sam Waller xx
(358 days ago)
Fernando Montanelli
(405 days ago)
Monica & Charles
(454 days ago)
NB Council
(460 days ago)
Simon Waddington
(463 days ago)
sarah wilson
(463 days ago)
Allan D
(467 days ago)
Janice Ho
(482 days ago)
Sun Run - Morgan and Oscar
(506 days ago)
Sun Run - Nadine Miller
(506 days ago)
SunRun - Simon Franklin
(506 days ago)
Yasmin C 'Meet me in the Middle' 10k walk
(513 days ago)
Anne-Lies Jacobs
(517 days ago)
Happy Birthday Jude
Sandra Rutten
(517 days ago)
Margaret Consentino
(517 days ago)
Adam Papalia
(517 days ago)
Elke Klein General Store Fundraising
(524 days ago)
(530 days ago)
Elisabeth Cavaleri Birthday Party donations
(530 days ago)
(537 days ago)
Wow Meg, I didn't know about Jude & Isla's story until tonight. My prayers are with them.
Taylor Dunn
(617 days ago)
Manly Markets Fundraiser - Karolyna, Sophia & Serena
(621 days ago)
Van Bogan Band Night Fundraiser
(652 days ago)
Sharon Avis
(661 days ago)
Darrell Babidge
(661 days ago)
Doggie Day at the Bay BBQ
(670 days ago)
Doggie Day @ The Bay BBQ & Stall
(673 days ago)
Tom Miles - Bunnings BBQ
(678 days ago)
Brad Selleck Memorial
(685 days ago)
SĂ©bastien Izambard Official Fan Club for Sebbyholics
(696 days ago)
From Sebbyholics/Il Divo Fans for Charity mug sales, with love!
(707 days ago)
We delayed our contribution as we managed to increase it.
Dan Park
(709 days ago)
Bella Thompson Birthday
(720 days ago)
Kids OT Bridge Run
(723 days ago)
Runforhope CIty2Surf
(763 days ago)
(775 days ago)
The Jayatilakes
(811 days ago)
With love, kisses and super big cuddles xxx
(838 days ago)
Roger and Bronwen Crouch
(841 days ago)
Olga Bell
(841 days ago)
Doreen Bailey
(841 days ago)
(858 days ago)
Bunnings BBQ - Tom Miles and co
(859 days ago)
(888 days ago)
Jess mcnamee
(894 days ago)
Miss you guys! Lots of love and happy birthday jude
Elsie Houston
(902 days ago)
My kids have played with Isla and Jude at Jacka Park before. They are beautiful and deserve health.
Leanne - Run for Hope Half Marathon
(929 days ago)
Katrina Baikie - Sun Run 2016
(936 days ago)
Meg Sun Run 2016
(936 days ago)
THEMA - Sun Run 2016
(936 days ago)
Rhian - Sun Run 2016
(936 days ago)
Ingrid - Sun Run 2016
(936 days ago)
Nadine Miller - Sun Run 2016
(936 days ago)
Daniel and Madeline Engagement
(936 days ago)
Evelyn St Luke's Church Fete
(936 days ago)
Brad Sellick Memorial
(936 days ago)
Sally Hall Palm Beach-Manly Walk
(936 days ago)
Kindy Kids Christmas Cards
(936 days ago)
Jarrod Yates Growing Solo
(936 days ago)
Totally 80s Trivia
(936 days ago)
Open Garden, Port Macquarie
(936 days ago)
Manly West Carnival Cake Stall (Oct 2015)
(936 days ago)
Erin Colwell Blackmores Running Festival (Sep 2015)
(936 days ago)
Loom for Sanfilippo Aug 2015
(936 days ago)
Dance for Hope Kids Disco (Freshwater) Aug 2015
(936 days ago)
Pub2Pub Fun Run (Team Total) Aug 2015
(936 days ago)
Edgell Gems Run for Hope (sponsorship + cake stall) Bathurst Aug 2015
(936 days ago)
Matteo Mini Marathon August 2015
(936 days ago)
North Curl Curl Netball Cake Stall May 2015
(936 days ago)
Bunnings Balgowlah Cake Stall May 2015
(936 days ago)
StylingtheTribe Instagram fashion auction
(936 days ago)
Sun Run 2015
(936 days ago)
Cake Stall Bathurst Jan 2015
(936 days ago)
Sony Music Australia
(937 days ago)
Donations Prior to January 2015
(1336 days ago)
Category: Campaigns
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
NSW 2096 Australia

P. 1800 664 878
E. online enquiry