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A W Edwards partners with Sanfilippo
January 20, 2017 12:00 AM - December 31, 2018 12:00 AM

A W Edwards partners with Sanfilippo

A W Edwards is proud to support the Sanfilippo Children's Foundation in its quest to fund medical research so a cure can be found for children battling Sanfilippo today and those born with it tomorrow.
   

              

 Click to DONATE to Project                   Click to DONATE to Project

 

A W Edwards is partnering with the Sanfilippo Children’s Foundation as its charity of choice for many of its current Projects.

 

This fundraising initiative will assist the Australian-based research group, the Sanfilippo Children's Foundation, to fund medical research for the rare and fatal childhood condition Sanfilippo Syndrome.

 

Two years ago, A W Edwards along with other Builders and Suppliers, organised its annual Charity Shield Barefoot Bowls Competition in support of the Sanfilippo Children's Foundation; raising an outstanding $90,000 – research dollars that have helped fund vital research projects. View photos from this fantastic event here 

 

A W Edwards is once again calling on its people to get onboard and help make a difference.

 

                                                      

What is Sanfilippo Syndrome?

 

Sanfilippo Syndrome is a rare, genetic condition that causes fatal brain damage. Born seemingly healthy, over time the brain gets progressively damaged. Children experience hyperactivity, sleeplessness, dementia, loss of speech and cognitive skills, mental retardation, cardiac issues, seizures, loss of mobility and finally death. There is currently no effective treatment or cure. Life expectancy is just 12-20 years. 

 

     

 

(Jude Donnell (aged 5) who is battling Sanfilippo Syndrome recently visited an A W Edwards construction site in Penrith, Sydney.)

 

Here's how you can HELP:

 

  • Attend one of the site fundraising BBQs
  • Join your site's team page and make a donation
  • Do a fun run or challenge to help raise additonal funds
  • Start your own fundraising page (see instructions below) 
  • Tell your family and friends about the work of the Sanfilippo Children's Foundation 

   

 

 

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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
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