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Give Generously 2017
May 7, 2017 12:00 AM - June 30, 2017 11:00 PM

Give Generously 2017

We are delighted that our first project – a gene therapy clinical trial for Sanfilippo Type A – has received regulatory approval, but there is still much work to do. Please give generously this tax time.
   

By donating to the Sanfilippo Children's Foundation before the End of Financial Year (EOFY) on 30th June, you will be helping to raise vital research dollars for children battling the deadly condition Sanfilippo Syndrome.

 

We are delighted regulatory approval has been received for the Australian arm of the Sanfilippo Type A gene therapy trial and we hope this will be underway soon.

 

Sadly, not all Australian children with Sanfilippo will be eligible for the trial or the treatment. There is a strict eligibility criteria which means some children will not be eligible. A clinical trial is an experiment and even if it does work, this will be the first generation of treatment.

 

For other affected children, the disease is too far advanced for them to benefit from this particular treatment or they may have a sub-type of Sanfilippo that this trial does not address. We have not lost hope for these children. 

 

 

Alec is 10 years old and he has a very rare form of Sanfilippo. The current clinical trial only treats Sanfilippo Type A, so Alec cannot participate. It's for children like Alec that we continue the fight. 

 

You will also reduce your taxable income by donating to the Sanfilippo Children's Foundation at tax time. Please make an urgent gift today to help further advance resaerch and clinical trial options for all Sanfilippo children today.

 

All donations of $2 or more are tax deductible.

87 Donors

Margaret O
(148 days ago)
$100
Gillian D
(160 days ago)
$25
Donations 21.06.17 to 30.06.17
(162 days ago)
$4,305
Judy M
(163 days ago)
$200
David H
(163 days ago)
$2,000
Toula M
(163 days ago)
$50
Kelli C
(163 days ago)
$100
Dianne Ingrey
(165 days ago)
$25
Jeremy Ward
(166 days ago)
Keep up your great efforts!
$100
Susan A
(167 days ago)
$10
Margi L
(167 days ago)
$500
George S
(167 days ago)
$100
Sarah T
(167 days ago)
$100
Daniela V
(167 days ago)
$100
Anonymous
(167 days ago)
$100
Anonymous
(167 days ago)
$50
Peter Ng
(167 days ago)
Best wishes to all the children and affected families. Stay strong!
$50
Ollie and Sam
(168 days ago)
Fingers crossed for everyone over the next few weeks.
$500
Anonymous
(168 days ago)
$100
Gail Wiseman
(169 days ago)
Thinking of you and wishing you all the very best with your continued efforts. Gail
$250
The Nicholson Family
(169 days ago)
In our prayers
$50
Vanessa Tucker
(169 days ago)
Lets find a cure!
$100
MYLES THANA
(169 days ago)
Wish all your hard work will bring good results. Never give up.
$50
Christina Wilkie
(169 days ago)
$50
Gordon C
(169 days ago)
$100
Grant and Susanne
(169 days ago)
$100
Danielle Nelson
(169 days ago)
$25
Ma-Maa (Evelyn Maack)
(169 days ago)
$1,100
Donations 20.05.17 to 20.06.17
(170 days ago)
$3,900
Anon
(170 days ago)
$1,000
Alan W
(173 days ago)
$5,000
Collins Honda
(174 days ago)
$500
Jane C
(174 days ago)
$100
Geoff F
(174 days ago)
$100
Robyn O
(175 days ago)
$2,000
Tony S
(175 days ago)
$500
Brian M
(176 days ago)
$100
Bronwen B
(176 days ago)
$45
Angela K
(176 days ago)
$100
Judith W
(177 days ago)
$100
Trudie Long
(180 days ago)
A charity close to home, sending hope to our little mate Kyuss & his beautiful Sanfilippo friends x
$25
Julie Kaleel
(180 days ago)
$25
Gary Collins
(180 days ago)
We take far to much for granted. Keep up the good work for the kids and there parents
$300
Anonymous
(181 days ago)
$200
Linda W
(181 days ago)
$50
Leisa Cannon Cannon
(181 days ago)
$30
Anonymous
(181 days ago)
$100
Ann P
(181 days ago)
$50
Robert W
(181 days ago)
$20
Andrew A
(182 days ago)
$100
Margaret B
(182 days ago)
$25
Elizabeth B
(182 days ago)
$100
Anonymous
(183 days ago)
$25
Melinda G
(188 days ago)
$50
Doreen B
(188 days ago)
$25
Carmen L
(188 days ago)
$100
Maureen M
(189 days ago)
$100
Ana C
(189 days ago)
$100
Megan R
(189 days ago)
$100
Elisabeth P
(189 days ago)
$50
Mia L
(189 days ago)
$60
Alastair R
(189 days ago)
$200
Helen T
(189 days ago)
$100
John M
(189 days ago)
$30
Yvette G
(189 days ago)
$25
Michelle S
(189 days ago)
$50
Anonymous
(190 days ago)
$25
Mary Ann F
(191 days ago)
$50
Mary W
(191 days ago)
$50
Marie Murphy
(196 days ago)
$25
Anonymous
(197 days ago)
$200
Michael Tosh
(200 days ago)
Hope this helps.
$120
Barbara and John Hopwood
(201 days ago)
Best wishes and thank you for all your effort
$1,000
Anonymous
(203 days ago)
$100
Anonymous
(203 days ago)
$30
Anonymous
(203 days ago)
$250
Andrew Boatman
(203 days ago)
$50
GENE
(203 days ago)
$50
Mel cooper
(203 days ago)
Thinking of you always Nikki and kyuss! Sending all the luck in the world xx
$15
Anonymous
(203 days ago)
$50
Anonymous
(203 days ago)
$100
Wendy Routledge
(204 days ago)
ALWAYS hope
$50
ANN SCHRALE
(204 days ago)
$50
Rob
(204 days ago)
Best wishes to all
$25
Susan Rosenberg
(204 days ago)
I wish this disease didn't exist
$50
Agnes
(204 days ago)
$10
Ingrid Maack
(204 days ago)
Thinking of all our beautiful Sanfilippo children!
$50
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry