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Give Generously 2017
May 7, 2017 12:00 AM - June 30, 2017 12:00 AM

Give Generously 2017

We are delighted that our first project – a gene therapy clinical trial for Sanfilippo Type A – has received regulatory approval, but there is still much work to do. Please give generously this tax time.
   

By donating to the Sanfilippo Children's Foundation before the End of Financial Year (EOFY) on 30th June, you will be helping to raise vital research dollars for children battling the deadly condition Sanfilippo Syndrome.

 

We are delighted regulatory approval has been received for the Australian arm of the Sanfilippo Type A gene therapy trial and we hope this will be underway soon.

 

Sadly, not all Australian children with Sanfilippo will be eligible for the trial or the treatment. There is a strict eligibility criteria which means some children will not be eligible. A clinical trial is an experiment and even if it does work, this will be the first generation of treatment.

 

For other affected children, the disease is too far advanced for them to benefit from this particular treatment or they may have a sub-type of Sanfilippo that this trial does not address. We have not lost hope for these children. 

 

 

Alec is 10 years old and he has a very rare form of Sanfilippo. The current clinical trial only treats Sanfilippo Type A, so Alec cannot participate. It's for children like Alec that we continue the fight. 

 

You will also reduce your taxable income by donating to the Sanfilippo Children's Foundation at tax time. Please make an urgent gift today to help further advance resaerch and clinical trial options for all Sanfilippo children today.

 

All donations of $2 or more are tax deductible.

57 Donors

Alan W
(3 days ago)
$5,000
Collins Honda
(3 days ago)
$500
Jane C
(3 days ago)
$100
Geoff F
(3 days ago)
$100
Robyn O
(4 days ago)
$2,000
Tony S
(4 days ago)
$500
Brian M
(6 days ago)
$100
Bronwen B
(6 days ago)
$45
Angela K
(6 days ago)
$100
Judith W
(6 days ago)
$100
Trudie Long
(9 days ago)
A charity close to home, sending hope to our little mate Kyuss & his beautiful Sanfilippo friends x
$25
Julie Kaleel
(10 days ago)
$25
Gary Collins
(10 days ago)
We take far to much for granted. Keep up the good work for the kids and there parents
$300
Anonymous
(10 days ago)
$200
Linda W
(10 days ago)
$50
Leisa Cannon Cannon
(10 days ago)
$30
Anonymous
(10 days ago)
$100
Ann P
(10 days ago)
$50
Robert W
(10 days ago)
$20
Andrew A
(11 days ago)
$100
Margaret B
(11 days ago)
$25
Elizabeth B
(11 days ago)
$100
Anonymous
(13 days ago)
$25
Melinda G
(17 days ago)
$50
Doreen B
(17 days ago)
$25
Carmen L
(18 days ago)
$100
Maureen M
(18 days ago)
$100
Ana C
(18 days ago)
$100
Megan R
(18 days ago)
$100
Elisabeth P
(18 days ago)
$50
Mia L
(18 days ago)
$60
Alastair R
(18 days ago)
$200
Helen T
(18 days ago)
$100
John M
(18 days ago)
$30
Yvette G
(18 days ago)
$25
Michelle S
(18 days ago)
$50
Anonymous
(19 days ago)
$25
Mary Ann F
(20 days ago)
$50
Mary W
(20 days ago)
$50
Marie Murphy
(26 days ago)
$25
Anonymous
(26 days ago)
$200
Michael Tosh
(29 days ago)
Hope this helps.
$120
Barbara and John Hopwood
(30 days ago)
Best wishes and thank you for all your effort
$1,000
Anonymous
(32 days ago)
$100
Anonymous
(32 days ago)
$30
Anonymous
(32 days ago)
$250
Andrew Boatman
(32 days ago)
$50
GENE
(33 days ago)
$50
Mel cooper
(33 days ago)
Thinking of you always Nikki and kyuss! Sending all the luck in the world xx
$15
Anonymous
(33 days ago)
$50
Anonymous
(33 days ago)
$100
Wendy Routledge
(33 days ago)
ALWAYS hope
$50
ANN SCHRALE
(33 days ago)
$50
Rob
(33 days ago)
Best wishes to all
$25
Susan Rosenberg
(33 days ago)
I wish this disease didn't exist
$50
Agnes
(33 days ago)
$10
Ingrid Maack
(33 days ago)
Thinking of all our beautiful Sanfilippo children!
$50
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry