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Give Generously 2017
May 7, 2017 12:00 AM - June 30, 2017 11:00 PM

Give Generously 2017

We are delighted that our first project – a gene therapy clinical trial for Sanfilippo Type A – has received regulatory approval, but there is still much work to do. Please give generously this tax time.
   

By donating to the Sanfilippo Children's Foundation before the End of Financial Year (EOFY) on 30th June, you will be helping to raise vital research dollars for children battling the deadly condition Sanfilippo Syndrome.

 

We are delighted regulatory approval has been received for the Australian arm of the Sanfilippo Type A gene therapy trial and we hope this will be underway soon.

 

Sadly, not all Australian children with Sanfilippo will be eligible for the trial or the treatment. There is a strict eligibility criteria which means some children will not be eligible. A clinical trial is an experiment and even if it does work, this will be the first generation of treatment.

 

For other affected children, the disease is too far advanced for them to benefit from this particular treatment or they may have a sub-type of Sanfilippo that this trial does not address. We have not lost hope for these children. 

 

 

Alec is 10 years old and he has a very rare form of Sanfilippo. The current clinical trial only treats Sanfilippo Type A, so Alec cannot participate. It's for children like Alec that we continue the fight. 

 

You will also reduce your taxable income by donating to the Sanfilippo Children's Foundation at tax time. Please make an urgent gift today to help further advance resaerch and clinical trial options for all Sanfilippo children today.

 

All donations of $2 or more are tax deductible.

87 Donors

Margaret O
(94 days ago)
$100
Gillian D
(107 days ago)
$25
Donations 21.06.17 to 30.06.17
(109 days ago)
$4,305
Judy M
(109 days ago)
$200
David H
(109 days ago)
$2,000
Toula M
(109 days ago)
$50
Kelli C
(109 days ago)
$100
Dianne Ingrey
(112 days ago)
$25
Jeremy Ward
(113 days ago)
Keep up your great efforts!
$100
Susan A
(113 days ago)
$10
Margi L
(113 days ago)
$500
George S
(113 days ago)
$100
Sarah T
(113 days ago)
$100
Daniela V
(113 days ago)
$100
Anonymous
(113 days ago)
$100
Anonymous
(113 days ago)
$50
Peter Ng
(114 days ago)
Best wishes to all the children and affected families. Stay strong!
$50
Ollie and Sam
(115 days ago)
Fingers crossed for everyone over the next few weeks.
$500
Anonymous
(115 days ago)
$100
Gail Wiseman
(115 days ago)
Thinking of you and wishing you all the very best with your continued efforts. Gail
$250
The Nicholson Family
(115 days ago)
In our prayers
$50
Vanessa Tucker
(115 days ago)
Lets find a cure!
$100
MYLES THANA
(115 days ago)
Wish all your hard work will bring good results. Never give up.
$50
Christina Wilkie
(115 days ago)
$50
Gordon C
(115 days ago)
$100
Grant and Susanne
(115 days ago)
$100
Danielle Nelson
(115 days ago)
$25
Ma-Maa (Evelyn Maack)
(116 days ago)
$1,100
Donations 20.05.17 to 20.06.17
(116 days ago)
$3,900
Anon
(116 days ago)
$1,000
Alan W
(120 days ago)
$5,000
Collins Honda
(120 days ago)
$500
Jane C
(120 days ago)
$100
Geoff F
(120 days ago)
$100
Robyn O
(121 days ago)
$2,000
Tony S
(121 days ago)
$500
Brian M
(123 days ago)
$100
Bronwen B
(123 days ago)
$45
Angela K
(123 days ago)
$100
Judith W
(123 days ago)
$100
Trudie Long
(126 days ago)
A charity close to home, sending hope to our little mate Kyuss & his beautiful Sanfilippo friends x
$25
Julie Kaleel
(127 days ago)
$25
Gary Collins
(127 days ago)
We take far to much for granted. Keep up the good work for the kids and there parents
$300
Anonymous
(127 days ago)
$200
Linda W
(127 days ago)
$50
Leisa Cannon Cannon
(127 days ago)
$30
Anonymous
(127 days ago)
$100
Ann P
(127 days ago)
$50
Robert W
(127 days ago)
$20
Andrew A
(128 days ago)
$100
Margaret B
(128 days ago)
$25
Elizabeth B
(128 days ago)
$100
Anonymous
(130 days ago)
$25
Melinda G
(134 days ago)
$50
Doreen B
(134 days ago)
$25
Carmen L
(135 days ago)
$100
Maureen M
(135 days ago)
$100
Ana C
(135 days ago)
$100
Megan R
(135 days ago)
$100
Elisabeth P
(135 days ago)
$50
Mia L
(135 days ago)
$60
Alastair R
(135 days ago)
$200
Helen T
(135 days ago)
$100
John M
(135 days ago)
$30
Yvette G
(135 days ago)
$25
Michelle S
(135 days ago)
$50
Anonymous
(136 days ago)
$25
Mary Ann F
(137 days ago)
$50
Mary W
(137 days ago)
$50
Marie Murphy
(143 days ago)
$25
Anonymous
(143 days ago)
$200
Michael Tosh
(146 days ago)
Hope this helps.
$120
Barbara and John Hopwood
(147 days ago)
Best wishes and thank you for all your effort
$1,000
Anonymous
(149 days ago)
$100
Anonymous
(150 days ago)
$30
Anonymous
(150 days ago)
$250
Andrew Boatman
(150 days ago)
$50
GENE
(150 days ago)
$50
Mel cooper
(150 days ago)
Thinking of you always Nikki and kyuss! Sending all the luck in the world xx
$15
Anonymous
(150 days ago)
$50
Anonymous
(150 days ago)
$100
Wendy Routledge
(150 days ago)
ALWAYS hope
$50
ANN SCHRALE
(150 days ago)
$50
Rob
(150 days ago)
Best wishes to all
$25
Susan Rosenberg
(150 days ago)
I wish this disease didn't exist
$50
Agnes
(150 days ago)
$10
Ingrid Maack
(150 days ago)
Thinking of all our beautiful Sanfilippo children!
$50
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry