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Give Generously 2017
May 7, 2017 12:00 AM - June 30, 2017 11:00 PM

Give Generously 2017

We are delighted that our first project – a gene therapy clinical trial for Sanfilippo Type A – has received regulatory approval, but there is still much work to do. Please give generously this tax time.
   

By donating to the Sanfilippo Children's Foundation before the End of Financial Year (EOFY) on 30th June, you will be helping to raise vital research dollars for children battling the deadly condition Sanfilippo Syndrome.

 

We are delighted regulatory approval has been received for the Australian arm of the Sanfilippo Type A gene therapy trial and we hope this will be underway soon.

 

Sadly, not all Australian children with Sanfilippo will be eligible for the trial or the treatment. There is a strict eligibility criteria which means some children will not be eligible. A clinical trial is an experiment and even if it does work, this will be the first generation of treatment.

 

For other affected children, the disease is too far advanced for them to benefit from this particular treatment or they may have a sub-type of Sanfilippo that this trial does not address. We have not lost hope for these children. 

 

 

Alec is 10 years old and he has a very rare form of Sanfilippo. The current clinical trial only treats Sanfilippo Type A, so Alec cannot participate. It's for children like Alec that we continue the fight. 

 

You will also reduce your taxable income by donating to the Sanfilippo Children's Foundation at tax time. Please make an urgent gift today to help further advance resaerch and clinical trial options for all Sanfilippo children today.

 

All donations of $2 or more are tax deductible.

87 Donors

Margaret O
(281 days ago)
$100
Gillian D
(293 days ago)
$25
Donations 21.06.17 to 30.06.17
(295 days ago)
$4,305
Judy M
(295 days ago)
$200
David H
(296 days ago)
$2,000
Toula M
(296 days ago)
$50
Kelli C
(296 days ago)
$100
Dianne Ingrey
(298 days ago)
$25
Jeremy Ward
(299 days ago)
Keep up your great efforts!
$100
Susan A
(300 days ago)
$10
Margi L
(300 days ago)
$500
George S
(300 days ago)
$100
Sarah T
(300 days ago)
$100
Daniela V
(300 days ago)
$100
Anonymous
(300 days ago)
$100
Anonymous
(300 days ago)
$50
Peter Ng
(300 days ago)
Best wishes to all the children and affected families. Stay strong!
$50
Ollie and Sam
(301 days ago)
Fingers crossed for everyone over the next few weeks.
$500
Anonymous
(301 days ago)
$100
Gail Wiseman
(301 days ago)
Thinking of you and wishing you all the very best with your continued efforts. Gail
$250
The Nicholson Family
(302 days ago)
In our prayers
$50
Vanessa Tucker
(302 days ago)
Lets find a cure!
$100
MYLES THANA
(302 days ago)
Wish all your hard work will bring good results. Never give up.
$50
Christina Wilkie
(302 days ago)
$50
Gordon C
(302 days ago)
$100
Grant and Susanne
(302 days ago)
$100
Danielle Nelson
(302 days ago)
$25
Ma-Maa (Evelyn Maack)
(302 days ago)
$1,100
Donations 20.05.17 to 20.06.17
(302 days ago)
$3,900
Anon
(303 days ago)
$1,000
Alan W
(306 days ago)
$5,000
Collins Honda
(306 days ago)
$500
Jane C
(306 days ago)
$100
Geoff F
(307 days ago)
$100
Robyn O
(307 days ago)
$2,000
Tony S
(307 days ago)
$500
Brian M
(309 days ago)
$100
Bronwen B
(309 days ago)
$45
Angela K
(309 days ago)
$100
Judith W
(310 days ago)
$100
Trudie Long
(312 days ago)
A charity close to home, sending hope to our little mate Kyuss & his beautiful Sanfilippo friends x
$25
Julie Kaleel
(313 days ago)
$25
Gary Collins
(313 days ago)
We take far to much for granted. Keep up the good work for the kids and there parents
$300
Anonymous
(313 days ago)
$200
Linda W
(314 days ago)
$50
Leisa Cannon Cannon
(314 days ago)
$30
Anonymous
(314 days ago)
$100
Ann P
(314 days ago)
$50
Robert W
(314 days ago)
$20
Andrew A
(314 days ago)
$100
Margaret B
(314 days ago)
$25
Elizabeth B
(315 days ago)
$100
Anonymous
(316 days ago)
$25
Melinda G
(321 days ago)
$50
Doreen B
(321 days ago)
$25
Carmen L
(321 days ago)
$100
Maureen M
(321 days ago)
$100
Ana C
(321 days ago)
$100
Megan R
(321 days ago)
$100
Elisabeth P
(321 days ago)
$50
Mia L
(321 days ago)
$60
Alastair R
(321 days ago)
$200
Helen T
(322 days ago)
$100
John M
(322 days ago)
$30
Yvette G
(322 days ago)
$25
Michelle S
(322 days ago)
$50
Anonymous
(323 days ago)
$25
Mary Ann F
(324 days ago)
$50
Mary W
(324 days ago)
$50
Marie Murphy
(329 days ago)
$25
Anonymous
(329 days ago)
$200
Michael Tosh
(333 days ago)
Hope this helps.
$120
Barbara and John Hopwood
(334 days ago)
Best wishes and thank you for all your effort
$1,000
Anonymous
(336 days ago)
$100
Anonymous
(336 days ago)
$30
Anonymous
(336 days ago)
$250
Andrew Boatman
(336 days ago)
$50
GENE
(336 days ago)
$50
Mel cooper
(336 days ago)
Thinking of you always Nikki and kyuss! Sending all the luck in the world xx
$15
Anonymous
(336 days ago)
$50
Anonymous
(336 days ago)
$100
Wendy Routledge
(336 days ago)
ALWAYS hope
$50
ANN SCHRALE
(336 days ago)
$50
Rob
(336 days ago)
Best wishes to all
$25
Susan Rosenberg
(336 days ago)
I wish this disease didn't exist
$50
Agnes
(336 days ago)
$10
Ingrid Maack
(337 days ago)
Thinking of all our beautiful Sanfilippo children!
$50
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry