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Give Generously 2017
May 7, 2017 12:00 AM - June 30, 2017 11:00 PM

Give Generously 2017

We are delighted that our first project – a gene therapy clinical trial for Sanfilippo Type A – has received regulatory approval, but there is still much work to do. Please give generously this tax time.
   

By donating to the Sanfilippo Children's Foundation before the End of Financial Year (EOFY) on 30th June, you will be helping to raise vital research dollars for children battling the deadly condition Sanfilippo Syndrome.

 

We are delighted regulatory approval has been received for the Australian arm of the Sanfilippo Type A gene therapy trial and we hope this will be underway soon.

 

Sadly, not all Australian children with Sanfilippo will be eligible for the trial or the treatment. There is a strict eligibility criteria which means some children will not be eligible. A clinical trial is an experiment and even if it does work, this will be the first generation of treatment.

 

For other affected children, the disease is too far advanced for them to benefit from this particular treatment or they may have a sub-type of Sanfilippo that this trial does not address. We have not lost hope for these children. 

 

 

Alec is 10 years old and he has a very rare form of Sanfilippo. The current clinical trial only treats Sanfilippo Type A, so Alec cannot participate. It's for children like Alec that we continue the fight. 

 

You will also reduce your taxable income by donating to the Sanfilippo Children's Foundation at tax time. Please make an urgent gift today to help further advance resaerch and clinical trial options for all Sanfilippo children today.

 

All donations of $2 or more are tax deductible.

87 Donors

Margaret O
(219 days ago)
$100
Gillian D
(232 days ago)
$25
Donations 21.06.17 to 30.06.17
(234 days ago)
$4,305
Judy M
(234 days ago)
$200
David H
(234 days ago)
$2,000
Toula M
(234 days ago)
$50
Kelli C
(234 days ago)
$100
Dianne Ingrey
(237 days ago)
$25
Jeremy Ward
(238 days ago)
Keep up your great efforts!
$100
Susan A
(238 days ago)
$10
Margi L
(238 days ago)
$500
George S
(238 days ago)
$100
Sarah T
(238 days ago)
$100
Daniela V
(238 days ago)
$100
Anonymous
(238 days ago)
$100
Anonymous
(239 days ago)
$50
Peter Ng
(239 days ago)
Best wishes to all the children and affected families. Stay strong!
$50
Ollie and Sam
(240 days ago)
Fingers crossed for everyone over the next few weeks.
$500
Anonymous
(240 days ago)
$100
Gail Wiseman
(240 days ago)
Thinking of you and wishing you all the very best with your continued efforts. Gail
$250
The Nicholson Family
(240 days ago)
In our prayers
$50
Vanessa Tucker
(240 days ago)
Lets find a cure!
$100
MYLES THANA
(240 days ago)
Wish all your hard work will bring good results. Never give up.
$50
Christina Wilkie
(240 days ago)
$50
Gordon C
(240 days ago)
$100
Grant and Susanne
(240 days ago)
$100
Danielle Nelson
(240 days ago)
$25
Ma-Maa (Evelyn Maack)
(241 days ago)
$1,100
Donations 20.05.17 to 20.06.17
(241 days ago)
$3,900
Anon
(241 days ago)
$1,000
Alan W
(245 days ago)
$5,000
Collins Honda
(245 days ago)
$500
Jane C
(245 days ago)
$100
Geoff F
(245 days ago)
$100
Robyn O
(246 days ago)
$2,000
Tony S
(246 days ago)
$500
Brian M
(248 days ago)
$100
Bronwen B
(248 days ago)
$45
Angela K
(248 days ago)
$100
Judith W
(248 days ago)
$100
Trudie Long
(251 days ago)
A charity close to home, sending hope to our little mate Kyuss & his beautiful Sanfilippo friends x
$25
Julie Kaleel
(252 days ago)
$25
Gary Collins
(252 days ago)
We take far to much for granted. Keep up the good work for the kids and there parents
$300
Anonymous
(252 days ago)
$200
Linda W
(252 days ago)
$50
Leisa Cannon Cannon
(252 days ago)
$30
Anonymous
(252 days ago)
$100
Ann P
(252 days ago)
$50
Robert W
(252 days ago)
$20
Andrew A
(253 days ago)
$100
Margaret B
(253 days ago)
$25
Elizabeth B
(253 days ago)
$100
Anonymous
(255 days ago)
$25
Melinda G
(259 days ago)
$50
Doreen B
(259 days ago)
$25
Carmen L
(260 days ago)
$100
Maureen M
(260 days ago)
$100
Ana C
(260 days ago)
$100
Megan R
(260 days ago)
$100
Elisabeth P
(260 days ago)
$50
Mia L
(260 days ago)
$60
Alastair R
(260 days ago)
$200
Helen T
(260 days ago)
$100
John M
(260 days ago)
$30
Yvette G
(260 days ago)
$25
Michelle S
(260 days ago)
$50
Anonymous
(261 days ago)
$25
Mary Ann F
(262 days ago)
$50
Mary W
(262 days ago)
$50
Marie Murphy
(268 days ago)
$25
Anonymous
(268 days ago)
$200
Michael Tosh
(271 days ago)
Hope this helps.
$120
Barbara and John Hopwood
(272 days ago)
Best wishes and thank you for all your effort
$1,000
Anonymous
(274 days ago)
$100
Anonymous
(275 days ago)
$30
Anonymous
(275 days ago)
$250
Andrew Boatman
(275 days ago)
$50
GENE
(275 days ago)
$50
Mel cooper
(275 days ago)
Thinking of you always Nikki and kyuss! Sending all the luck in the world xx
$15
Anonymous
(275 days ago)
$50
Anonymous
(275 days ago)
$100
Wendy Routledge
(275 days ago)
ALWAYS hope
$50
ANN SCHRALE
(275 days ago)
$50
Rob
(275 days ago)
Best wishes to all
$25
Susan Rosenberg
(275 days ago)
I wish this disease didn't exist
$50
Agnes
(275 days ago)
$10
Ingrid Maack
(275 days ago)
Thinking of all our beautiful Sanfilippo children!
$50
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We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry