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Isla & Jude's  birthday campaign
April 2, 2019 12:00 AM - April 30, 2019 12:00 AM

Isla & Jude's birthday campaign

Isla & Jude are turning 18! It's double digits for Isla, as she turns 10 this month, and little bother Jude turns 8. Most kids with Sanfilippo won't reach the age of 18 so this is a special year. Please join us in celebrating their joint birthday!
   

 

 

Isla and Jude both have Sanfilippo Syndrome, for which there is currently no approved treatment or cure. Birthdays are bittersweet for families of children battling Sanfilippo.  

While we don't know what the future holds for these two, we do know that Isla and Jude are loved and celebrated. Isla and Jude recently visited Sugar Republic in Sydney, where these photos were taken. They played in the ball pit, caught confetti, swung on the fairy floss swing and laughed and smiled as we sang their favourite song 'Happy Birthday' to them!  

 

Please join us in wishing Isla and Jude a happy birthday. You can leave a birthday message below and/or donate. 

 

Your contributions will help ensure a future in which families will have access to an approved treatment for Sanfilippo. A future in which families look forward to celebrating their child's birthday, without fearing it might be their last!

 

 

15 Donors

Paul Wilson
(11 days ago)
Happy birthday Isla and Jude! Wishing you many more xx
$50
Vanessa
(11 days ago)
Happy Birthday Isla and Jude
$25
Mardi Darren Sofia Amali
(11 days ago)
Happy 18th birthday to you both 🥳
$100
Michelle Clark
(12 days ago)
Happy birthday Isla and Jude 🎂
$25
Tina
(12 days ago)
Happy birthday beautiful Isla and gorgeous Jude. Xxx
$30
Violet, Jasmine and Zico
(12 days ago)
Happy birthday to our friends Isla and Jude. Wishing you both wonderful birthdays. Love always 💕
$30
S├ębastien Izambard Official Fan Club
(12 days ago)
Happy birthday lovely Isla & Jude!
$50
Erene K
(12 days ago)
Happy Birthday Isla & Jude! Love you guys :)
$50
Penny Treacy
(16 days ago)
Happy birthday Isla and Jude. My son Michael has Sanfilippo and has just turned 28.Wishing you many
$50
Nols, Stodd, Bella, Benny & Stitchy 🐶
(19 days ago)
Happy Birthday Isla & Jude! All our live always xxxxx
$50
Kim black
(19 days ago)
It's not much but every bit helps . Happy birthday to your beautiful children xxx
$25
Liam Flynn
(19 days ago)
#hopeforislaandjude
$50
Anna
(20 days ago)
Isla & Jude, May your Birthday’s be wonderful, filled with smiles, love and laughter. Happy Birthday
$25
Oscar, Emma & Huey Stevenson
(20 days ago)
Happy birthday Isla & Jude. 🥳 Lots of love from us xx
$30
Ingrid Maack
(20 days ago)
Happy Birthday dearest Isla and Judey-boy. We love you guys endlessly xx
$40
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry