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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $276.66
View all

146 Donors

Wandin Seville Financial Services
(3 days ago)
$1,000
Dad
(15 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(30 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(39 days ago)
$20
Dad
(42 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(46 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(47 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(51 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(58 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(59 days ago)
$50
Dad
(63 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(64 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(92 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(92 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(99 days ago)
$769
Sue Steve & Raina
(107 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(113 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(113 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(128 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(134 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(134 days ago)
$245
John
(139 days ago)
$120
Anonymous
(140 days ago)
$500
Monbulk Community and Edison Bakehouse
(151 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(160 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(162 days ago)
$1,390
Nanyi & Hop
(168 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(172 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(174 days ago)
So much thank you's girls
$160
Soxwithsoul
(181 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(190 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(190 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(192 days ago)
$1,000
Noah and Ollie
(196 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(205 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(208 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(211 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(214 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(221 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(225 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(231 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(232 days ago)
$500
Monbulk community, Edison Bakehouse.
(240 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(245 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(245 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(246 days ago)
$2,500
Helen Newman
(254 days ago)
$205
Dad
(256 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(256 days ago)
Thank you all sososososo much.
$140
Dad
(259 days ago)
Wristbands ahoy
$160
Nana & Hop
(265 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(265 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(267 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(273 days ago)
Love you this much.
$180
Yetti
(281 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(283 days ago)
$2,000
Dad.
(295 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(295 days ago)
$180
soxwithsoul
(296 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(296 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(298 days ago)
$50
Dad
(308 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(313 days ago)
$160
Whitehorse City Council Social Club
(318 days ago)
$365
Nan & Hop
(324 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(328 days ago)
$15,256
Michael Johnson
(335 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(336 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(338 days ago)
$200
Anonymous
(344 days ago)
$50
Bowens Bowen & Pommery
(350 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(351 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(351 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(354 days ago)
$854
Carlie Dicello
(354 days ago)
$20
Edison Bakehouse & Monbulk community
(354 days ago)
$170
Lucie & Thibau
(354 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(354 days ago)
$300
Amanda
(360 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(361 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(365 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(378 days ago)
$100
Dad
(378 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(379 days ago)
$15
Kerrie
(383 days ago)
$20
My Majestic Boutique
(387 days ago)
$210
Renault Australia
(388 days ago)
$405
Nan & Hop
(390 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(393 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(394 days ago)
$101
Freightnet International
(395 days ago)
$500
Monbulk community and Edison Bakehouse
(401 days ago)
$160
ryan papavs
(401 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(405 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(410 days ago)
$20
Caroline Cirami
(411 days ago)
With love & light xx
$20
Nanna & Hop
(414 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(415 days ago)
$20
Noah
(416 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(416 days ago)
$20
Kelly Rutledge
(416 days ago)
$12
Adam & Ryan
(422 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(423 days ago)
$1,000
Danny Ventura
(423 days ago)
$300
Monbulk community and Edison Bakehouse
(432 days ago)
$120
Christina Xynos
(434 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(435 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(436 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(437 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(439 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(448 days ago)
Sending my love to you little man
$20
matthew grant
(448 days ago)
All the best mj
$50
Jan & Stan Ockwell
(450 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(451 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(451 days ago)
$200
Manny & Hop
(453 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(454 days ago)
Love you lots cheeky monkey
$50
Liz
(455 days ago)
Touched by your story
$20
michael Johnson
(456 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(459 days ago)
Good Luck & keep smiling x
$100
Sam
(459 days ago)
$50
Seville Cricket Club (members and players)
(462 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(462 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(462 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(462 days ago)
$10
Monbulk community and Edison Bakehouse
(462 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(464 days ago)
xxx
$500
Monbulk community & Edison bake house
(464 days ago)
$270
Tragic English Cricket Supporter
(464 days ago)
$5
Alisha
(464 days ago)
Bissels
$20
katherine Sorrell
(465 days ago)
$50
Julie Gillespie
(465 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(465 days ago)
$10
Tracy Brooks
(465 days ago)
$20
Jenni Milne
(465 days ago)
Thinking of you all xox
$30
Anonymous
(465 days ago)
$30
Aunty Sue & Uncle Perry
(465 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(465 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(465 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(465 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(465 days ago)
hugs xx
$10
Christy allan
(466 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(466 days ago)
xx
$20
Mell Dryden
(466 days ago)
Where there is hope, there is a way xx
$20
Kate O
(466 days ago)
$100
Pop & Nanna
(466 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry