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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

210 Donors

Nanyi & Hoppa
(11 days ago)
More hugs & kisses to that little TIGER ... Mr Buttons and all the Sanfilippo kids ... xxxxx
$1,000
HyStress Timber & Trusses
(11 days ago)
Best wishes to our little KyMan and all the Sanfilippo kids. Uncle MarkyBoy & the team at Hystress.
$300
Sammy & Mikes memorabilia fundraiser
(18 days ago)
Thank you for all of your support! xxx
$700
Edison Bake House/Michael Johnson
(33 days ago)
$160
Wandin-Seville Community Bank
(42 days ago)
$1,000
Nanyi & Hoppa
(49 days ago)
Hugs & kisses to all the Sanfilippo kids ... always a special one for Mr Buttons ... we love you !!!
$1,000
Hystress Timber
(64 days ago)
$380
Edison Bake House/Michael Johnson
(76 days ago)
$120
5 Wishes Birthday Campaign
(77 days ago)
HAPPY BIRTHDAY from all your friends and family :)
$3,210
Nanyi & Hoppa
(91 days ago)
Best wishes to all the Sanfilippo kids ... hugs & kisses to our special Mr Buttons aka KyMan.
$1,000
Angela H
(93 days ago)
$10
Chung YEE
(94 days ago)
Happy Birthday, Big Boy!
$25
John and Jackie
(98 days ago)
$25
Alastair R
(105 days ago)
$200
McMahon Family
(110 days ago)
Thanks so much Tash & Andrew.
$40
Edison Bakehouse & Monbulk community
(110 days ago)
Big thank you for ongoing support
$130
Dad
(111 days ago)
Not just for my beautiful son, but all the beautiful Sanfilippo kiddies. Much love, Michael J.
$500
The Gilmore's
(132 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(134 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(135 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(166 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(167 days ago)
So much support, thank you
$110
Nanyi & Hop
(167 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(176 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(179 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(186 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(187 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(200 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(203 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(217 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(223 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(245 days ago)
$2,000
Dad
(253 days ago)
Dad and Adrian Wright.
$100
Anonymous
(254 days ago)
$25
Nanyi & Hop
(265 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(269 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(271 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(275 days ago)
Thank you all so much.
$100
Nanyi & Hop
(287 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(288 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(302 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(307 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(307 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(315 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(315 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(322 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(338 days ago)
Keep well guys!
$100
Footy auctions
(348 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(349 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(351 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(358 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(364 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(372 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(376 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(378 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(383 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(390 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(402 days ago)
Happy bday Kendal
$50
Raine kowhai
(402 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(402 days ago)
$50
Edison Bakehouse & Monbulk Community
(411 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(430 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(443 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(444 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(448 days ago)
$1,000
Dad
(460 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(475 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(484 days ago)
$20
Dad
(488 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(491 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(492 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(497 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(503 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(505 days ago)
$50
Dad
(509 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(510 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(538 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(538 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(545 days ago)
$769
Sue Steve & Raina
(552 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(558 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(558 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(574 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(579 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(580 days ago)
$245
John
(584 days ago)
$120
Anonymous
(586 days ago)
$500
Monbulk Community and Edison Bakehouse
(597 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(606 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(607 days ago)
$1,390
Nanyi & Hop
(614 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(618 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(620 days ago)
So much thank you's girls
$160
Soxwithsoul
(627 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(635 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(636 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(638 days ago)
$1,000
Noah and Ollie
(641 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(650 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(653 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(657 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(659 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(666 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(671 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(677 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(678 days ago)
$500
Monbulk community, Edison Bakehouse.
(686 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(690 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(690 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(692 days ago)
$2,500
Helen Newman
(700 days ago)
$205
Dad
(701 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(701 days ago)
Thank you all sososososo much.
$140
Dad
(705 days ago)
Wristbands ahoy
$160
Nana & Hop
(711 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(711 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(712 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(718 days ago)
Love you this much.
$180
Yetti
(726 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(728 days ago)
$2,000
Dad.
(740 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(740 days ago)
$180
soxwithsoul
(741 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(741 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(743 days ago)
$50
Dad
(754 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(758 days ago)
$160
Whitehorse City Council Social Club
(764 days ago)
$365
Nan & Hop
(770 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(774 days ago)
$15,256
Michael Johnson
(781 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(781 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(784 days ago)
$200
Anonymous
(790 days ago)
$50
Bowens Bowen & Pommery
(796 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(797 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(797 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(799 days ago)
$854
Carlie Dicello
(800 days ago)
$20
Edison Bakehouse & Monbulk community
(800 days ago)
$170
Lucie & Thibau
(800 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(800 days ago)
$300
Amanda
(805 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(807 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(810 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(824 days ago)
$100
Dad
(824 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(824 days ago)
$15
Kerrie
(828 days ago)
$20
My Majestic Boutique
(832 days ago)
$210
Renault Australia
(833 days ago)
$405
Nan & Hop
(835 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(839 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(840 days ago)
$101
Freightnet International
(841 days ago)
$500
Monbulk community and Edison Bakehouse
(846 days ago)
$160
ryan papavs
(846 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(851 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(855 days ago)
$20
Caroline Cirami
(857 days ago)
With love & light xx
$20
Nanna & Hop
(859 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(861 days ago)
$20
Noah
(861 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(861 days ago)
$20
Kelly Rutledge
(862 days ago)
$12
Adam & Ryan
(868 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(868 days ago)
$1,000
Danny Ventura
(868 days ago)
$300
Monbulk community and Edison Bakehouse
(877 days ago)
$120
Christina Xynos
(880 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(880 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(881 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(883 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(884 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(893 days ago)
Sending my love to you little man
$20
matthew grant
(893 days ago)
All the best mj
$50
Jan & Stan Ockwell
(896 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(896 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(896 days ago)
$200
Manny & Hop
(898 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(899 days ago)
Love you lots cheeky monkey
$50
Liz
(901 days ago)
Touched by your story
$20
michael Johnson
(902 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(905 days ago)
Good Luck & keep smiling x
$100
Sam
(905 days ago)
$50
Seville Cricket Club (members and players)
(907 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(908 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(908 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(908 days ago)
$10
Monbulk community and Edison Bakehouse
(908 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(909 days ago)
xxx
$500
Monbulk community & Edison bake house
(910 days ago)
$270
Tragic English Cricket Supporter
(910 days ago)
$5
Alisha
(910 days ago)
Bissels
$20
katherine Sorrell
(910 days ago)
$50
Julie Gillespie
(910 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(910 days ago)
$10
Tracy Brooks
(910 days ago)
$20
Jenni Milne
(910 days ago)
Thinking of you all xox
$30
Anonymous
(910 days ago)
$30
Aunty Sue & Uncle Perry
(910 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(911 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(911 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(911 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(911 days ago)
hugs xx
$10
Christy allan
(911 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(911 days ago)
xx
$20
Mell Dryden
(911 days ago)
Where there is hope, there is a way xx
$20
Kate O
(911 days ago)
$100
Pop & Nanna
(911 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry