CLOSE

Dialog Box

Loading...
Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

193 Donors

The Gilmore's
(19 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(21 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(22 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(53 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(54 days ago)
So much support, thank you
$110
Nanyi & Hop
(54 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(63 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(66 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(73 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(74 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(87 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(90 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(104 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(110 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(132 days ago)
$2,000
Dad
(140 days ago)
Dad and Adrian Wright.
$100
Anonymous
(141 days ago)
$25
Nanyi & Hop
(152 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(156 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(158 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(162 days ago)
Thank you all so much.
$100
Nanyi & Hop
(175 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(176 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(189 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(194 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(194 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(202 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(202 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(209 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(225 days ago)
Keep well guys!
$100
Footy auctions
(235 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(236 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(238 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(245 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(251 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(259 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(263 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(265 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(270 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(277 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(289 days ago)
Happy bday Kendal
$50
Raine kowhai
(289 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(290 days ago)
$50
Edison Bakehouse & Monbulk Community
(298 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(317 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(330 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(331 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(335 days ago)
$1,000
Dad
(348 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(362 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(371 days ago)
$20
Dad
(375 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(378 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(379 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(384 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(390 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(392 days ago)
$50
Dad
(396 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(397 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(425 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(425 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(432 days ago)
$769
Sue Steve & Raina
(440 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(446 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(446 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(461 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(467 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(467 days ago)
$245
John
(471 days ago)
$120
Anonymous
(473 days ago)
$500
Monbulk Community and Edison Bakehouse
(484 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(493 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(494 days ago)
$1,390
Nanyi & Hop
(501 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(505 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(507 days ago)
So much thank you's girls
$160
Soxwithsoul
(514 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(522 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(523 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(525 days ago)
$1,000
Noah and Ollie
(528 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(537 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(540 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(544 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(547 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(553 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(558 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(564 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(565 days ago)
$500
Monbulk community, Edison Bakehouse.
(573 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(577 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(578 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(579 days ago)
$2,500
Helen Newman
(587 days ago)
$205
Dad
(588 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(588 days ago)
Thank you all sososososo much.
$140
Dad
(592 days ago)
Wristbands ahoy
$160
Nana & Hop
(598 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(598 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(600 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(606 days ago)
Love you this much.
$180
Yetti
(613 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(615 days ago)
$2,000
Dad.
(627 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(627 days ago)
$180
soxwithsoul
(628 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(628 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(630 days ago)
$50
Dad
(641 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(645 days ago)
$160
Whitehorse City Council Social Club
(651 days ago)
$365
Nan & Hop
(657 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(661 days ago)
$15,256
Michael Johnson
(668 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(669 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(671 days ago)
$200
Anonymous
(677 days ago)
$50
Bowens Bowen & Pommery
(683 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(684 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(684 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(686 days ago)
$854
Carlie Dicello
(687 days ago)
$20
Edison Bakehouse & Monbulk community
(687 days ago)
$170
Lucie & Thibau
(687 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(687 days ago)
$300
Amanda
(693 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(694 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(697 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(711 days ago)
$100
Dad
(711 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(711 days ago)
$15
Kerrie
(715 days ago)
$20
My Majestic Boutique
(719 days ago)
$210
Renault Australia
(720 days ago)
$405
Nan & Hop
(722 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(726 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(727 days ago)
$101
Freightnet International
(728 days ago)
$500
Monbulk community and Edison Bakehouse
(733 days ago)
$160
ryan papavs
(733 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(738 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(742 days ago)
$20
Caroline Cirami
(744 days ago)
With love & light xx
$20
Nanna & Hop
(746 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(748 days ago)
$20
Noah
(748 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(748 days ago)
$20
Kelly Rutledge
(749 days ago)
$12
Adam & Ryan
(755 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(755 days ago)
$1,000
Danny Ventura
(755 days ago)
$300
Monbulk community and Edison Bakehouse
(764 days ago)
$120
Christina Xynos
(767 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(767 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(768 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(770 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(771 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(780 days ago)
Sending my love to you little man
$20
matthew grant
(780 days ago)
All the best mj
$50
Jan & Stan Ockwell
(783 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(783 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(783 days ago)
$200
Manny & Hop
(785 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(786 days ago)
Love you lots cheeky monkey
$50
Liz
(788 days ago)
Touched by your story
$20
michael Johnson
(789 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(792 days ago)
Good Luck & keep smiling x
$100
Sam
(792 days ago)
$50
Seville Cricket Club (members and players)
(794 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(795 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(795 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(795 days ago)
$10
Monbulk community and Edison Bakehouse
(795 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(796 days ago)
xxx
$500
Monbulk community & Edison bake house
(797 days ago)
$270
Tragic English Cricket Supporter
(797 days ago)
$5
Alisha
(797 days ago)
Bissels
$20
katherine Sorrell
(797 days ago)
$50
Julie Gillespie
(797 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(797 days ago)
$10
Tracy Brooks
(797 days ago)
$20
Jenni Milne
(797 days ago)
Thinking of you all xox
$30
Anonymous
(797 days ago)
$30
Aunty Sue & Uncle Perry
(798 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(798 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(798 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(798 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(798 days ago)
hugs xx
$10
Christy allan
(798 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(798 days ago)
xx
$20
Mell Dryden
(798 days ago)
Where there is hope, there is a way xx
$20
Kate O
(798 days ago)
$100
Pop & Nanna
(799 days ago)
Lavender bags made with love for our little Tiger
$500
Category: Campaigns
Tags:
Stay informed with our e-news

About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

Read More

Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry