CLOSE

Dialog Box

Loading...
Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

227 Donors

Graeme Johnson
(13 days ago)
Special hugs & kisses to our little KyMan ... we love you !!!!!
$1,000
Alastair and Nova Robinson
(24 days ago)
Love and Support to Kyuss and Family
$1,000
Edison Bakehouse
(27 days ago)
$140
Nanyi & Hoppa
(63 days ago)
Special hugs & kisses to our little KyMan & all the Sanfilippo kids ... xxxxx
$1,000
Edison Bakehouse
(65 days ago)
$120
HYSTRESS TIMBER & TRUSSES
(68 days ago)
Much love to KyMan & all the Sanfilippo kids ... Uncle MarkyBoy & the Team @ Hystress .... xxxx
$317
Edison Bakery
(125 days ago)
$120
Sharon James
(132 days ago)
Gemmi giraffe x
$25
Healesville Highschool Buisness Management class
(147 days ago)
Thanks to the awesome students who raised money via a Mother's Day stall! You guys rock xxx
$210
Sammy & Mike
(147 days ago)
Thanks for the footy auction support! Go Tiges!! xxx
$150
Linda
(147 days ago)
Thank you Linda for your Gemmi giraffe purchase and for being the most wonderful kinder teacher xx
$25
Edison Bakehouse
(152 days ago)
$120
Nanyi & Hoppa
(154 days ago)
Best wishes to all the Sanfilippo kids & their families ... Hellooooo to the special KyMan xxxx
$1,000
Uncle Chris & Angie Johnson
(179 days ago)
Thanks uncle Chris and Angie, love m&k
$50
Dad
(179 days ago)
Thank you khan, enjoy the bonsai!!!! Many thanks.
$50
Nanyi & Hoppa.
(190 days ago)
Best wishes to all the Sanfilippo kids & families .... special hugs & kisses to our little KyMan xxx
$1,000
Sammy & Mike's footy fundraiser
(196 days ago)
Thanks to everyone who participated in bidding and tagging people and for supporting our campaign xx
$200
Nanyi & Hoppa
(228 days ago)
More hugs & kisses to that little TIGER ... Mr Buttons and all the Sanfilippo kids ... xxxxx
$1,000
HyStress Timber & Trusses
(228 days ago)
Best wishes to our little KyMan and all the Sanfilippo kids. Uncle MarkyBoy & the team at Hystress.
$300
Sammy & Mikes memorabilia fundraiser
(235 days ago)
Thank you for all of your support! xxx
$700
Edison Bake House/Michael Johnson
(249 days ago)
$160
Wandin-Seville Community Bank
(259 days ago)
$1,000
Nanyi & Hoppa
(266 days ago)
Hugs & kisses to all the Sanfilippo kids ... always a special one for Mr Buttons ... we love you !!!
$1,000
Hystress Timber
(281 days ago)
$380
Edison Bake House/Michael Johnson
(293 days ago)
$120
5 Wishes Birthday Campaign
(294 days ago)
HAPPY BIRTHDAY from all your friends and family :)
$3,210
Nanyi & Hoppa
(308 days ago)
Best wishes to all the Sanfilippo kids ... hugs & kisses to our special Mr Buttons aka KyMan.
$1,000
Angela H
(310 days ago)
$10
Chung YEE
(311 days ago)
Happy Birthday, Big Boy!
$25
John and Jackie
(315 days ago)
$25
Alastair R
(321 days ago)
$200
McMahon Family
(327 days ago)
Thanks so much Tash & Andrew.
$40
Edison Bakehouse & Monbulk community
(327 days ago)
Big thank you for ongoing support
$130
Dad
(328 days ago)
Not just for my beautiful son, but all the beautiful Sanfilippo kiddies. Much love, Michael J.
$500
The Gilmore's
(349 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(351 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(352 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(383 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(384 days ago)
So much support, thank you
$110
Nanyi & Hop
(384 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(393 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(396 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(403 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(404 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(417 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(420 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(434 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(440 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(462 days ago)
$2,000
Dad
(470 days ago)
Dad and Adrian Wright.
$100
Anonymous
(471 days ago)
$25
Nanyi & Hop
(482 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(486 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(488 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(492 days ago)
Thank you all so much.
$100
Nanyi & Hop
(504 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(505 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(519 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(524 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(524 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(532 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(532 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(539 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(555 days ago)
Keep well guys!
$100
Footy auctions
(565 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(566 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(568 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(575 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(581 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(589 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(593 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(595 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(600 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(607 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(619 days ago)
Happy bday Kendal
$50
Raine kowhai
(619 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(619 days ago)
$50
Edison Bakehouse & Monbulk Community
(628 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(647 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(660 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(661 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(665 days ago)
$1,000
Dad
(677 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(692 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(701 days ago)
$20
Dad
(705 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(708 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(709 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(714 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(720 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(722 days ago)
$50
Dad
(726 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(727 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(755 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(755 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(762 days ago)
$769
Sue Steve & Raina
(769 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(775 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(775 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(791 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(796 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(796 days ago)
$245
John
(801 days ago)
$120
Anonymous
(803 days ago)
$500
Monbulk Community and Edison Bakehouse
(814 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(823 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(824 days ago)
$1,390
Nanyi & Hop
(831 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(835 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(836 days ago)
So much thank you's girls
$160
Soxwithsoul
(844 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(852 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(853 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(855 days ago)
$1,000
Noah and Ollie
(858 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(867 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(870 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(874 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(876 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(883 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(888 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(894 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(895 days ago)
$500
Monbulk community, Edison Bakehouse.
(903 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(907 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(907 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(909 days ago)
$2,500
Helen Newman
(916 days ago)
$205
Dad
(918 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(918 days ago)
Thank you all sososososo much.
$140
Dad
(922 days ago)
Wristbands ahoy
$160
Nana & Hop
(928 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(928 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(929 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(935 days ago)
Love you this much.
$180
Yetti
(943 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(945 days ago)
$2,000
Dad.
(957 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(957 days ago)
$180
soxwithsoul
(958 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(958 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(960 days ago)
$50
Dad
(971 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(975 days ago)
$160
Whitehorse City Council Social Club
(981 days ago)
$365
Nan & Hop
(987 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(990 days ago)
$15,256
Michael Johnson
(997 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(998 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(1001 days ago)
$200
Anonymous
(1007 days ago)
$50
Bowens Bowen & Pommery
(1012 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(1014 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(1014 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(1016 days ago)
$854
Carlie Dicello
(1017 days ago)
$20
Edison Bakehouse & Monbulk community
(1017 days ago)
$170
Lucie & Thibau
(1017 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(1017 days ago)
$300
Amanda
(1022 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(1024 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(1027 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(1041 days ago)
$100
Dad
(1041 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(1041 days ago)
$15
Kerrie
(1045 days ago)
$20
My Majestic Boutique
(1049 days ago)
$210
Renault Australia
(1050 days ago)
$405
Nan & Hop
(1052 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(1056 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(1056 days ago)
$101
Freightnet International
(1057 days ago)
$500
Monbulk community and Edison Bakehouse
(1063 days ago)
$160
ryan papavs
(1063 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(1068 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(1072 days ago)
$20
Caroline Cirami
(1074 days ago)
With love & light xx
$20
Nanna & Hop
(1076 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(1078 days ago)
$20
Noah
(1078 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(1078 days ago)
$20
Kelly Rutledge
(1079 days ago)
$12
Adam & Ryan
(1085 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(1085 days ago)
$1,000
Danny Ventura
(1085 days ago)
$300
Monbulk community and Edison Bakehouse
(1094 days ago)
$120
Christina Xynos
(1097 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(1097 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(1098 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(1099 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(1101 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(1110 days ago)
Sending my love to you little man
$20
matthew grant
(1110 days ago)
All the best mj
$50
Jan & Stan Ockwell
(1113 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(1113 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(1113 days ago)
$200
Manny & Hop
(1115 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(1116 days ago)
Love you lots cheeky monkey
$50
Liz
(1118 days ago)
Touched by your story
$20
michael Johnson
(1119 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(1122 days ago)
Good Luck & keep smiling x
$100
Sam
(1122 days ago)
$50
Seville Cricket Club (members and players)
(1124 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(1124 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(1125 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(1125 days ago)
$10
Monbulk community and Edison Bakehouse
(1125 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(1126 days ago)
xxx
$500
Monbulk community & Edison bake house
(1127 days ago)
$270
Tragic English Cricket Supporter
(1127 days ago)
$5
Alisha
(1127 days ago)
Bissels
$20
katherine Sorrell
(1127 days ago)
$50
Julie Gillespie
(1127 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(1127 days ago)
$10
Tracy Brooks
(1127 days ago)
$20
Jenni Milne
(1127 days ago)
Thinking of you all xox
$30
Anonymous
(1127 days ago)
$30
Aunty Sue & Uncle Perry
(1127 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(1128 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(1128 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(1128 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(1128 days ago)
hugs xx
$10
Christy allan
(1128 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(1128 days ago)
xx
$20
Mell Dryden
(1128 days ago)
Where there is hope, there is a way xx
$20
Kate O
(1128 days ago)
$100
Pop & Nanna
(1128 days ago)
Lavender bags made with love for our little Tiger
$500
Category: Campaigns
Tags:
Stay informed with our e-news

About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

Read More

Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry