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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

179 Donors

WILSON & BRADLEY
(5 days ago)
$2,000
Dad
(14 days ago)
Dad and Adrian Wright.
$100
Anonymous
(15 days ago)
$25
Nanyi & Hop
(26 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(30 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(31 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(35 days ago)
Thank you all so much.
$100
Nanyi & Hop
(48 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(49 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(63 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(68 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(68 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(76 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(76 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(82 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(99 days ago)
Keep well guys!
$100
Footy auctions
(108 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(109 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(111 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(118 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(125 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(133 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(136 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(139 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(143 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(151 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(163 days ago)
Happy bday Kendal
$50
Raine kowhai
(163 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(163 days ago)
$50
Edison Bakehouse & Monbulk Community
(171 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(191 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(203 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(205 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(209 days ago)
$1,000
Dad
(221 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(236 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(245 days ago)
$20
Dad
(248 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(252 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(253 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(258 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(264 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(265 days ago)
$50
Dad
(269 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(270 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(298 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(298 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(305 days ago)
$769
Sue Steve & Raina
(313 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(319 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(319 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(334 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(340 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(340 days ago)
$245
John
(345 days ago)
$120
Anonymous
(346 days ago)
$500
Monbulk Community and Edison Bakehouse
(357 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(366 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(368 days ago)
$1,390
Nanyi & Hop
(375 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(378 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(380 days ago)
So much thank you's girls
$160
Soxwithsoul
(387 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(396 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(396 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(399 days ago)
$1,000
Noah and Ollie
(402 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(411 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(414 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(418 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(420 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(427 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(431 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(437 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(439 days ago)
$500
Monbulk community, Edison Bakehouse.
(447 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(451 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(451 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(452 days ago)
$2,500
Helen Newman
(460 days ago)
$205
Dad
(462 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(462 days ago)
Thank you all sososososo much.
$140
Dad
(465 days ago)
Wristbands ahoy
$160
Nana & Hop
(472 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(472 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(473 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(479 days ago)
Love you this much.
$180
Yetti
(487 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(489 days ago)
$2,000
Dad.
(501 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(501 days ago)
$180
soxwithsoul
(502 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(502 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(504 days ago)
$50
Dad
(514 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(519 days ago)
$160
Whitehorse City Council Social Club
(524 days ago)
$365
Nan & Hop
(530 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(534 days ago)
$15,256
Michael Johnson
(541 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(542 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(544 days ago)
$200
Anonymous
(550 days ago)
$50
Bowens Bowen & Pommery
(556 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(557 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(557 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(560 days ago)
$854
Carlie Dicello
(560 days ago)
$20
Edison Bakehouse & Monbulk community
(560 days ago)
$170
Lucie & Thibau
(560 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(560 days ago)
$300
Amanda
(566 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(567 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(571 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(584 days ago)
$100
Dad
(584 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(585 days ago)
$15
Kerrie
(589 days ago)
$20
My Majestic Boutique
(593 days ago)
$210
Renault Australia
(594 days ago)
$405
Nan & Hop
(596 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(599 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(600 days ago)
$101
Freightnet International
(601 days ago)
$500
Monbulk community and Edison Bakehouse
(607 days ago)
$160
ryan papavs
(607 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(611 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(616 days ago)
$20
Caroline Cirami
(617 days ago)
With love & light xx
$20
Nanna & Hop
(620 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(621 days ago)
$20
Noah
(622 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(622 days ago)
$20
Kelly Rutledge
(622 days ago)
$12
Adam & Ryan
(628 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(629 days ago)
$1,000
Danny Ventura
(629 days ago)
$300
Monbulk community and Edison Bakehouse
(638 days ago)
$120
Christina Xynos
(640 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(641 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(642 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(643 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(645 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(654 days ago)
Sending my love to you little man
$20
matthew grant
(654 days ago)
All the best mj
$50
Jan & Stan Ockwell
(656 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(657 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(657 days ago)
$200
Manny & Hop
(659 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(660 days ago)
Love you lots cheeky monkey
$50
Liz
(661 days ago)
Touched by your story
$20
michael Johnson
(662 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(665 days ago)
Good Luck & keep smiling x
$100
Sam
(666 days ago)
$50
Seville Cricket Club (members and players)
(668 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(668 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(668 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(668 days ago)
$10
Monbulk community and Edison Bakehouse
(668 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(670 days ago)
xxx
$500
Monbulk community & Edison bake house
(670 days ago)
$270
Tragic English Cricket Supporter
(670 days ago)
$5
Alisha
(671 days ago)
Bissels
$20
katherine Sorrell
(671 days ago)
$50
Julie Gillespie
(671 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(671 days ago)
$10
Tracy Brooks
(671 days ago)
$20
Jenni Milne
(671 days ago)
Thinking of you all xox
$30
Anonymous
(671 days ago)
$30
Aunty Sue & Uncle Perry
(671 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(671 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(671 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(671 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(672 days ago)
hugs xx
$10
Christy allan
(672 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(672 days ago)
xx
$20
Mell Dryden
(672 days ago)
Where there is hope, there is a way xx
$20
Kate O
(672 days ago)
$100
Pop & Nanna
(672 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry