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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

234 Donors

Susan Markham
(1 days ago)
Hope for Kyuss
$250
HYSTRESS TIMBER & TRUSSES
(2 days ago)
A big hug to Kyuss from Uncle MarkyBoy & the team @ Hystress … we love the KyMan !!!!
$457
Nanyi & Hoppa
(7 days ago)
Much love to all of the Sanfilippo kids … special hugs & kisses to Kyuss … we love you Little Tiger.
$1,000
Adele Robertson
(19 days ago)
$150
Nanyi & Hoppa
(21 days ago)
Lots more hugs & kisses to Kyuss & all the Sanfilippo kids … xxxx
$1,000
Edison Bakehouse
(42 days ago)
$140
Nanyi & Hoppa
(47 days ago)
Always a special hug & a kiss to our little KyMan ... and for all the sanfilippo kids ... xxxx
$1,000
Graeme Johnson
(68 days ago)
Special hugs & kisses to our little KyMan ... we love you !!!!!
$1,000
Alastair and Nova Robinson
(78 days ago)
Love and Support to Kyuss and Family
$1,000
Edison Bakehouse
(81 days ago)
$140
Nanyi & Hoppa
(118 days ago)
Special hugs & kisses to our little KyMan & all the Sanfilippo kids ... xxxxx
$1,000
Edison Bakehouse
(119 days ago)
$120
HYSTRESS TIMBER & TRUSSES
(122 days ago)
Much love to KyMan & all the Sanfilippo kids ... Uncle MarkyBoy & the Team @ Hystress .... xxxx
$317
Edison Bakery
(180 days ago)
$120
Sharon James
(187 days ago)
Gemmi giraffe x
$25
Healesville Highschool Buisness Management class
(201 days ago)
Thanks to the awesome students who raised money via a Mother's Day stall! You guys rock xxx
$210
Sammy & Mike
(201 days ago)
Thanks for the footy auction support! Go Tiges!! xxx
$150
Linda
(201 days ago)
Thank you Linda for your Gemmi giraffe purchase and for being the most wonderful kinder teacher xx
$25
Edison Bakehouse
(207 days ago)
$120
Nanyi & Hoppa
(209 days ago)
Best wishes to all the Sanfilippo kids & their families ... Hellooooo to the special KyMan xxxx
$1,000
Uncle Chris & Angie Johnson
(234 days ago)
Thanks uncle Chris and Angie, love m&k
$50
Dad
(234 days ago)
Thank you khan, enjoy the bonsai!!!! Many thanks.
$50
Nanyi & Hoppa.
(245 days ago)
Best wishes to all the Sanfilippo kids & families .... special hugs & kisses to our little KyMan xxx
$1,000
Sammy & Mike's footy fundraiser
(250 days ago)
Thanks to everyone who participated in bidding and tagging people and for supporting our campaign xx
$200
Nanyi & Hoppa
(283 days ago)
More hugs & kisses to that little TIGER ... Mr Buttons and all the Sanfilippo kids ... xxxxx
$1,000
HyStress Timber & Trusses
(283 days ago)
Best wishes to our little KyMan and all the Sanfilippo kids. Uncle MarkyBoy & the team at Hystress.
$300
Sammy & Mikes memorabilia fundraiser
(290 days ago)
Thank you for all of your support! xxx
$700
Edison Bake House/Michael Johnson
(304 days ago)
$160
Wandin-Seville Community Bank
(313 days ago)
$1,000
Nanyi & Hoppa
(321 days ago)
Hugs & kisses to all the Sanfilippo kids ... always a special one for Mr Buttons ... we love you !!!
$1,000
Hystress Timber
(335 days ago)
$380
Edison Bake House/Michael Johnson
(347 days ago)
$120
5 Wishes Birthday Campaign
(348 days ago)
HAPPY BIRTHDAY from all your friends and family :)
$3,210
Nanyi & Hoppa
(363 days ago)
Best wishes to all the Sanfilippo kids ... hugs & kisses to our special Mr Buttons aka KyMan.
$1,000
Angela H
(364 days ago)
$10
Chung YEE
(366 days ago)
Happy Birthday, Big Boy!
$25
John and Jackie
(370 days ago)
$25
Alastair R
(376 days ago)
$200
McMahon Family
(381 days ago)
Thanks so much Tash & Andrew.
$40
Edison Bakehouse & Monbulk community
(381 days ago)
Big thank you for ongoing support
$130
Dad
(383 days ago)
Not just for my beautiful son, but all the beautiful Sanfilippo kiddies. Much love, Michael J.
$500
The Gilmore's
(404 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(406 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(407 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(437 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(438 days ago)
So much support, thank you
$110
Nanyi & Hop
(438 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(448 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(451 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(457 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(459 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(472 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(475 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(489 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(495 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(516 days ago)
$2,000
Dad
(525 days ago)
Dad and Adrian Wright.
$100
Anonymous
(526 days ago)
$25
Nanyi & Hop
(536 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(541 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(542 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(546 days ago)
Thank you all so much.
$100
Nanyi & Hop
(559 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(560 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(574 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(578 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(578 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(587 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(587 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(593 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(610 days ago)
Keep well guys!
$100
Footy auctions
(619 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(620 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(622 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(629 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(636 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(644 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(647 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(650 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(654 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(662 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(674 days ago)
Happy bday Kendal
$50
Raine kowhai
(674 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(674 days ago)
$50
Edison Bakehouse & Monbulk Community
(682 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(702 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(714 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(716 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(720 days ago)
$1,000
Dad
(732 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(747 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(756 days ago)
$20
Dad
(759 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(763 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(764 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(768 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(775 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(776 days ago)
$50
Dad
(780 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(781 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(809 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(809 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(816 days ago)
$769
Sue Steve & Raina
(824 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(830 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(830 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(845 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(851 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(851 days ago)
$245
John
(856 days ago)
$120
Anonymous
(857 days ago)
$500
Monbulk Community and Edison Bakehouse
(868 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(877 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(879 days ago)
$1,390
Nanyi & Hop
(885 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(889 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(891 days ago)
So much thank you's girls
$160
Soxwithsoul
(898 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(907 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(907 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(909 days ago)
$1,000
Noah and Ollie
(913 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(922 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(925 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(928 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(931 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(938 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(942 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(948 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(949 days ago)
$500
Monbulk community, Edison Bakehouse.
(957 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(962 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(962 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(963 days ago)
$2,500
Helen Newman
(971 days ago)
$205
Dad
(973 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(973 days ago)
Thank you all sososososo much.
$140
Dad
(976 days ago)
Wristbands ahoy
$160
Nana & Hop
(982 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(982 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(984 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(990 days ago)
Love you this much.
$180
Yetti
(998 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(1000 days ago)
$2,000
Dad.
(1012 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(1012 days ago)
$180
soxwithsoul
(1013 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(1013 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(1015 days ago)
$50
Dad
(1025 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(1030 days ago)
$160
Whitehorse City Council Social Club
(1035 days ago)
$365
Nan & Hop
(1041 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(1045 days ago)
$15,256
Michael Johnson
(1052 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(1053 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(1055 days ago)
$200
Anonymous
(1061 days ago)
$50
Bowens Bowen & Pommery
(1067 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(1068 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(1068 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(1071 days ago)
$854
Carlie Dicello
(1071 days ago)
$20
Edison Bakehouse & Monbulk community
(1071 days ago)
$170
Lucie & Thibau
(1071 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(1071 days ago)
$300
Amanda
(1077 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(1078 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(1082 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(1095 days ago)
$100
Dad
(1095 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(1096 days ago)
$15
Kerrie
(1100 days ago)
$20
My Majestic Boutique
(1104 days ago)
$210
Renault Australia
(1105 days ago)
$405
Nan & Hop
(1107 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(1110 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(1111 days ago)
$101
Freightnet International
(1112 days ago)
$500
Monbulk community and Edison Bakehouse
(1118 days ago)
$160
ryan papavs
(1118 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(1122 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(1127 days ago)
$20
Caroline Cirami
(1128 days ago)
With love & light xx
$20
Nanna & Hop
(1131 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(1132 days ago)
$20
Noah
(1133 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(1133 days ago)
$20
Kelly Rutledge
(1133 days ago)
$12
Adam & Ryan
(1139 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(1140 days ago)
$1,000
Danny Ventura
(1140 days ago)
$300
Monbulk community and Edison Bakehouse
(1149 days ago)
$120
Christina Xynos
(1151 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(1152 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(1153 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(1154 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(1156 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(1165 days ago)
Sending my love to you little man
$20
matthew grant
(1165 days ago)
All the best mj
$50
Jan & Stan Ockwell
(1167 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(1168 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(1168 days ago)
$200
Manny & Hop
(1170 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(1171 days ago)
Love you lots cheeky monkey
$50
Liz
(1172 days ago)
Touched by your story
$20
michael Johnson
(1173 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(1176 days ago)
Good Luck & keep smiling x
$100
Sam
(1176 days ago)
$50
Seville Cricket Club (members and players)
(1179 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(1179 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(1179 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(1179 days ago)
$10
Monbulk community and Edison Bakehouse
(1179 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(1181 days ago)
xxx
$500
Monbulk community & Edison bake house
(1181 days ago)
$270
Tragic English Cricket Supporter
(1181 days ago)
$5
Alisha
(1181 days ago)
Bissels
$20
katherine Sorrell
(1182 days ago)
$50
Julie Gillespie
(1182 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(1182 days ago)
$10
Tracy Brooks
(1182 days ago)
$20
Jenni Milne
(1182 days ago)
Thinking of you all xox
$30
Anonymous
(1182 days ago)
$30
Aunty Sue & Uncle Perry
(1182 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(1182 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(1182 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(1182 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(1182 days ago)
hugs xx
$10
Christy allan
(1183 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(1183 days ago)
xx
$20
Mell Dryden
(1183 days ago)
Where there is hope, there is a way xx
$20
Kate O
(1183 days ago)
$100
Pop & Nanna
(1183 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry