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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $139.16
View all

143 Donors

Mal Lewis
(1 days ago)
$20
Dad
(4 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(8 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(9 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(14 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(20 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(22 days ago)
$50
Dad
(25 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(26 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(54 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(55 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(62 days ago)
$769
Sue Steve & Raina
(69 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(75 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(75 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(90 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(96 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(96 days ago)
$245
John
(101 days ago)
$120
Anonymous
(102 days ago)
$500
Monbulk Community and Edison Bakehouse
(113 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(122 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(124 days ago)
$1,390
Nanyi & Hop
(131 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(134 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(136 days ago)
So much thank you's girls
$160
Soxwithsoul
(144 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(152 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(153 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(155 days ago)
$1,000
Noah and Ollie
(158 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(167 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(170 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(174 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(176 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(183 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(187 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(194 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(195 days ago)
$500
Monbulk community, Edison Bakehouse.
(203 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(207 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(207 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(208 days ago)
$2,500
Helen Newman
(216 days ago)
$205
Dad
(218 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(218 days ago)
Thank you all sososososo much.
$140
Dad
(222 days ago)
Wristbands ahoy
$160
Nana & Hop
(228 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(228 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(229 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(235 days ago)
Love you this much.
$180
Yetti
(243 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(245 days ago)
$2,000
Dad.
(257 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(257 days ago)
$180
soxwithsoul
(258 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(258 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(260 days ago)
$50
Dad
(271 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(275 days ago)
$160
Whitehorse City Council Social Club
(281 days ago)
$365
Nan & Hop
(287 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(290 days ago)
$15,256
Michael Johnson
(297 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(298 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(301 days ago)
$200
Anonymous
(307 days ago)
$50
Bowens Bowen & Pommery
(312 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(314 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(314 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(316 days ago)
$854
Carlie Dicello
(316 days ago)
$20
Edison Bakehouse & Monbulk community
(317 days ago)
$170
Lucie & Thibau
(317 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(317 days ago)
$300
Amanda
(322 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(324 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(327 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(340 days ago)
$100
Dad
(341 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(341 days ago)
$15
Kerrie
(345 days ago)
$20
My Majestic Boutique
(349 days ago)
$210
Renault Australia
(350 days ago)
$405
Nan & Hop
(352 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(356 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(356 days ago)
$101
Freightnet International
(357 days ago)
$500
Monbulk community and Edison Bakehouse
(363 days ago)
$160
ryan papavs
(363 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(368 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(372 days ago)
$20
Caroline Cirami
(374 days ago)
With love & light xx
$20
Nanna & Hop
(376 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(378 days ago)
$20
Noah
(378 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(378 days ago)
$20
Kelly Rutledge
(378 days ago)
$12
Adam & Ryan
(385 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(385 days ago)
$1,000
Danny Ventura
(385 days ago)
$300
Monbulk community and Edison Bakehouse
(394 days ago)
$120
Christina Xynos
(397 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(397 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(398 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(399 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(401 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(410 days ago)
Sending my love to you little man
$20
matthew grant
(410 days ago)
All the best mj
$50
Jan & Stan Ockwell
(413 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(413 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(413 days ago)
$200
Manny & Hop
(415 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(416 days ago)
Love you lots cheeky monkey
$50
Liz
(418 days ago)
Touched by your story
$20
michael Johnson
(418 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(422 days ago)
Good Luck & keep smiling x
$100
Sam
(422 days ago)
$50
Seville Cricket Club (members and players)
(424 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(424 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(424 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(425 days ago)
$10
Monbulk community and Edison Bakehouse
(425 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(426 days ago)
xxx
$500
Monbulk community & Edison bake house
(426 days ago)
$270
Tragic English Cricket Supporter
(426 days ago)
$5
Alisha
(427 days ago)
Bissels
$20
katherine Sorrell
(427 days ago)
$50
Julie Gillespie
(427 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(427 days ago)
$10
Tracy Brooks
(427 days ago)
$20
Jenni Milne
(427 days ago)
Thinking of you all xox
$30
Anonymous
(427 days ago)
$30
Aunty Sue & Uncle Perry
(427 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(427 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(427 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(428 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(428 days ago)
hugs xx
$10
Christy allan
(428 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(428 days ago)
xx
$20
Mell Dryden
(428 days ago)
Where there is hope, there is a way xx
$20
Kate O
(428 days ago)
$100
Pop & Nanna
(428 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry