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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

193 Donors

The Gilmore's
(13 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(16 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(16 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(47 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(48 days ago)
So much support, thank you
$110
Nanyi & Hop
(48 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(57 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(61 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(67 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(68 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(81 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(85 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(98 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(105 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(126 days ago)
$2,000
Dad
(135 days ago)
Dad and Adrian Wright.
$100
Anonymous
(135 days ago)
$25
Nanyi & Hop
(146 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(151 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(152 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(156 days ago)
Thank you all so much.
$100
Nanyi & Hop
(169 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(170 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(183 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(188 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(188 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(197 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(197 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(203 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(219 days ago)
Keep well guys!
$100
Footy auctions
(229 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(230 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(232 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(239 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(245 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(253 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(257 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(259 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(264 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(271 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(284 days ago)
Happy bday Kendal
$50
Raine kowhai
(284 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(284 days ago)
$50
Edison Bakehouse & Monbulk Community
(292 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(311 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(324 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(326 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(329 days ago)
$1,000
Dad
(342 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(357 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(365 days ago)
$20
Dad
(369 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(373 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(373 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(378 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(385 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(386 days ago)
$50
Dad
(390 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(391 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(419 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(419 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(426 days ago)
$769
Sue Steve & Raina
(434 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(440 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(440 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(455 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(461 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(461 days ago)
$245
John
(466 days ago)
$120
Anonymous
(467 days ago)
$500
Monbulk Community and Edison Bakehouse
(478 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(487 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(489 days ago)
$1,390
Nanyi & Hop
(495 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(499 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(501 days ago)
So much thank you's girls
$160
Soxwithsoul
(508 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(516 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(517 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(519 days ago)
$1,000
Noah and Ollie
(522 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(531 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(535 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(538 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(541 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(548 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(552 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(558 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(559 days ago)
$500
Monbulk community, Edison Bakehouse.
(567 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(572 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(572 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(573 days ago)
$2,500
Helen Newman
(581 days ago)
$205
Dad
(583 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(583 days ago)
Thank you all sososososo much.
$140
Dad
(586 days ago)
Wristbands ahoy
$160
Nana & Hop
(592 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(592 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(594 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(600 days ago)
Love you this much.
$180
Yetti
(607 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(610 days ago)
$2,000
Dad.
(621 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(621 days ago)
$180
soxwithsoul
(622 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(623 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(624 days ago)
$50
Dad
(635 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(639 days ago)
$160
Whitehorse City Council Social Club
(645 days ago)
$365
Nan & Hop
(651 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(655 days ago)
$15,256
Michael Johnson
(662 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(663 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(665 days ago)
$200
Anonymous
(671 days ago)
$50
Bowens Bowen & Pommery
(677 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(678 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(678 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(680 days ago)
$854
Carlie Dicello
(681 days ago)
$20
Edison Bakehouse & Monbulk community
(681 days ago)
$170
Lucie & Thibau
(681 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(681 days ago)
$300
Amanda
(687 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(688 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(691 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(705 days ago)
$100
Dad
(705 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(705 days ago)
$15
Kerrie
(709 days ago)
$20
My Majestic Boutique
(713 days ago)
$210
Renault Australia
(714 days ago)
$405
Nan & Hop
(717 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(720 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(721 days ago)
$101
Freightnet International
(722 days ago)
$500
Monbulk community and Edison Bakehouse
(727 days ago)
$160
ryan papavs
(727 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(732 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(736 days ago)
$20
Caroline Cirami
(738 days ago)
With love & light xx
$20
Nanna & Hop
(740 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(742 days ago)
$20
Noah
(743 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(743 days ago)
$20
Kelly Rutledge
(743 days ago)
$12
Adam & Ryan
(749 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(749 days ago)
$1,000
Danny Ventura
(749 days ago)
$300
Monbulk community and Edison Bakehouse
(758 days ago)
$120
Christina Xynos
(761 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(761 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(762 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(764 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(765 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(774 days ago)
Sending my love to you little man
$20
matthew grant
(775 days ago)
All the best mj
$50
Jan & Stan Ockwell
(777 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(777 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(778 days ago)
$200
Manny & Hop
(779 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(781 days ago)
Love you lots cheeky monkey
$50
Liz
(782 days ago)
Touched by your story
$20
michael Johnson
(783 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(786 days ago)
Good Luck & keep smiling x
$100
Sam
(786 days ago)
$50
Seville Cricket Club (members and players)
(789 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(789 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(789 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(789 days ago)
$10
Monbulk community and Edison Bakehouse
(789 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(791 days ago)
xxx
$500
Monbulk community & Edison bake house
(791 days ago)
$270
Tragic English Cricket Supporter
(791 days ago)
$5
Alisha
(791 days ago)
Bissels
$20
katherine Sorrell
(791 days ago)
$50
Julie Gillespie
(791 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(791 days ago)
$10
Tracy Brooks
(792 days ago)
$20
Jenni Milne
(792 days ago)
Thinking of you all xox
$30
Anonymous
(792 days ago)
$30
Aunty Sue & Uncle Perry
(792 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(792 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(792 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(792 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(792 days ago)
hugs xx
$10
Christy allan
(792 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(792 days ago)
xx
$20
Mell Dryden
(792 days ago)
Where there is hope, there is a way xx
$20
Kate O
(792 days ago)
$100
Pop & Nanna
(793 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry