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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $276.66
View all

149 Donors

Nanyi & Hop
(14 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(27 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(28 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(32 days ago)
$1,000
Dad
(44 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(59 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(68 days ago)
$20
Dad
(72 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(75 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(76 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(81 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(87 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(89 days ago)
$50
Dad
(93 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(94 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(122 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(122 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(129 days ago)
$769
Sue Steve & Raina
(136 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(142 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(142 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(158 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(163 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(164 days ago)
$245
John
(168 days ago)
$120
Anonymous
(170 days ago)
$500
Monbulk Community and Edison Bakehouse
(181 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(190 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(191 days ago)
$1,390
Nanyi & Hop
(198 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(202 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(204 days ago)
So much thank you's girls
$160
Soxwithsoul
(211 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(219 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(220 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(222 days ago)
$1,000
Noah and Ollie
(225 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(234 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(237 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(241 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(243 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(250 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(255 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(261 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(262 days ago)
$500
Monbulk community, Edison Bakehouse.
(270 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(274 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(274 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(276 days ago)
$2,500
Helen Newman
(284 days ago)
$205
Dad
(285 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(285 days ago)
Thank you all sososososo much.
$140
Dad
(289 days ago)
Wristbands ahoy
$160
Nana & Hop
(295 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(295 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(296 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(302 days ago)
Love you this much.
$180
Yetti
(310 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(312 days ago)
$2,000
Dad.
(324 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(324 days ago)
$180
soxwithsoul
(325 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(325 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(327 days ago)
$50
Dad
(338 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(342 days ago)
$160
Whitehorse City Council Social Club
(348 days ago)
$365
Nan & Hop
(354 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(358 days ago)
$15,256
Michael Johnson
(365 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(365 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(368 days ago)
$200
Anonymous
(374 days ago)
$50
Bowens Bowen & Pommery
(380 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(381 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(381 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(383 days ago)
$854
Carlie Dicello
(384 days ago)
$20
Edison Bakehouse & Monbulk community
(384 days ago)
$170
Lucie & Thibau
(384 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(384 days ago)
$300
Amanda
(389 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(391 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(394 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(408 days ago)
$100
Dad
(408 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(408 days ago)
$15
Kerrie
(412 days ago)
$20
My Majestic Boutique
(416 days ago)
$210
Renault Australia
(417 days ago)
$405
Nan & Hop
(419 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(423 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(424 days ago)
$101
Freightnet International
(425 days ago)
$500
Monbulk community and Edison Bakehouse
(430 days ago)
$160
ryan papavs
(430 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(435 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(439 days ago)
$20
Caroline Cirami
(441 days ago)
With love & light xx
$20
Nanna & Hop
(443 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(445 days ago)
$20
Noah
(445 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(445 days ago)
$20
Kelly Rutledge
(446 days ago)
$12
Adam & Ryan
(452 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(452 days ago)
$1,000
Danny Ventura
(452 days ago)
$300
Monbulk community and Edison Bakehouse
(461 days ago)
$120
Christina Xynos
(464 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(464 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(465 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(467 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(468 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(477 days ago)
Sending my love to you little man
$20
matthew grant
(477 days ago)
All the best mj
$50
Jan & Stan Ockwell
(480 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(480 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(480 days ago)
$200
Manny & Hop
(482 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(483 days ago)
Love you lots cheeky monkey
$50
Liz
(485 days ago)
Touched by your story
$20
michael Johnson
(486 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(489 days ago)
Good Luck & keep smiling x
$100
Sam
(489 days ago)
$50
Seville Cricket Club (members and players)
(491 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(492 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(492 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(492 days ago)
$10
Monbulk community and Edison Bakehouse
(492 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(493 days ago)
xxx
$500
Monbulk community & Edison bake house
(494 days ago)
$270
Tragic English Cricket Supporter
(494 days ago)
$5
Alisha
(494 days ago)
Bissels
$20
katherine Sorrell
(494 days ago)
$50
Julie Gillespie
(494 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(494 days ago)
$10
Tracy Brooks
(494 days ago)
$20
Jenni Milne
(494 days ago)
Thinking of you all xox
$30
Anonymous
(494 days ago)
$30
Aunty Sue & Uncle Perry
(494 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(495 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(495 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(495 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(495 days ago)
hugs xx
$10
Christy allan
(495 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(495 days ago)
xx
$20
Mell Dryden
(495 days ago)
Where there is hope, there is a way xx
$20
Kate O
(495 days ago)
$100
Pop & Nanna
(495 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry