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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

172 Donors

Nanyi & Hop
(3 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(4 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(18 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(22 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(22 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(31 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(31 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(37 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(54 days ago)
Keep well guys!
$100
Footy auctions
(63 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(64 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(66 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(73 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(80 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(88 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(91 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(94 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(98 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(106 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(118 days ago)
Happy bday Kendal
$50
Raine kowhai
(118 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(118 days ago)
$50
Edison Bakehouse & Monbulk Community
(126 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(146 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(158 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(160 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(163 days ago)
$1,000
Dad
(176 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(191 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(200 days ago)
$20
Dad
(203 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(207 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(207 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(212 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(219 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(220 days ago)
$50
Dad
(224 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(225 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(253 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(253 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(260 days ago)
$769
Sue Steve & Raina
(268 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(274 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(274 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(289 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(295 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(295 days ago)
$245
John
(300 days ago)
$120
Anonymous
(301 days ago)
$500
Monbulk Community and Edison Bakehouse
(312 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(321 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(323 days ago)
$1,390
Nanyi & Hop
(329 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(333 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(335 days ago)
So much thank you's girls
$160
Soxwithsoul
(342 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(351 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(351 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(353 days ago)
$1,000
Noah and Ollie
(357 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(366 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(369 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(372 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(375 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(382 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(386 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(392 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(393 days ago)
$500
Monbulk community, Edison Bakehouse.
(401 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(406 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(406 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(407 days ago)
$2,500
Helen Newman
(415 days ago)
$205
Dad
(417 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(417 days ago)
Thank you all sososososo much.
$140
Dad
(420 days ago)
Wristbands ahoy
$160
Nana & Hop
(426 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(426 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(428 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(434 days ago)
Love you this much.
$180
Yetti
(442 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(444 days ago)
$2,000
Dad.
(456 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(456 days ago)
$180
soxwithsoul
(457 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(457 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(459 days ago)
$50
Dad
(469 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(474 days ago)
$160
Whitehorse City Council Social Club
(479 days ago)
$365
Nan & Hop
(485 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(489 days ago)
$15,256
Michael Johnson
(496 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(497 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(499 days ago)
$200
Anonymous
(505 days ago)
$50
Bowens Bowen & Pommery
(511 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(512 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(512 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(515 days ago)
$854
Carlie Dicello
(515 days ago)
$20
Edison Bakehouse & Monbulk community
(515 days ago)
$170
Lucie & Thibau
(515 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(515 days ago)
$300
Amanda
(521 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(522 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(526 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(539 days ago)
$100
Dad
(539 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(540 days ago)
$15
Kerrie
(544 days ago)
$20
My Majestic Boutique
(548 days ago)
$210
Renault Australia
(549 days ago)
$405
Nan & Hop
(551 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(554 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(555 days ago)
$101
Freightnet International
(556 days ago)
$500
Monbulk community and Edison Bakehouse
(562 days ago)
$160
ryan papavs
(562 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(566 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(571 days ago)
$20
Caroline Cirami
(572 days ago)
With love & light xx
$20
Nanna & Hop
(575 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(576 days ago)
$20
Noah
(577 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(577 days ago)
$20
Kelly Rutledge
(577 days ago)
$12
Adam & Ryan
(583 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(584 days ago)
$1,000
Danny Ventura
(584 days ago)
$300
Monbulk community and Edison Bakehouse
(593 days ago)
$120
Christina Xynos
(595 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(596 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(597 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(598 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(600 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(609 days ago)
Sending my love to you little man
$20
matthew grant
(609 days ago)
All the best mj
$50
Jan & Stan Ockwell
(611 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(612 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(612 days ago)
$200
Manny & Hop
(614 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(615 days ago)
Love you lots cheeky monkey
$50
Liz
(616 days ago)
Touched by your story
$20
michael Johnson
(617 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(620 days ago)
Good Luck & keep smiling x
$100
Sam
(620 days ago)
$50
Seville Cricket Club (members and players)
(623 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(623 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(623 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(623 days ago)
$10
Monbulk community and Edison Bakehouse
(623 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(625 days ago)
xxx
$500
Monbulk community & Edison bake house
(625 days ago)
$270
Tragic English Cricket Supporter
(625 days ago)
$5
Alisha
(625 days ago)
Bissels
$20
katherine Sorrell
(626 days ago)
$50
Julie Gillespie
(626 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(626 days ago)
$10
Tracy Brooks
(626 days ago)
$20
Jenni Milne
(626 days ago)
Thinking of you all xox
$30
Anonymous
(626 days ago)
$30
Aunty Sue & Uncle Perry
(626 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(626 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(626 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(626 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(626 days ago)
hugs xx
$10
Christy allan
(627 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(627 days ago)
xx
$20
Mell Dryden
(627 days ago)
Where there is hope, there is a way xx
$20
Kate O
(627 days ago)
$100
Pop & Nanna
(627 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry