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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Kendal Davey's $560.00
Soxwith soul $326.66
View all

160 Donors

Renee Gilmore
(17 hours ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(7 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(15 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(18 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(21 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(25 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(33 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(45 days ago)
Happy bday Kendal
$50
Raine kowhai
(45 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(45 days ago)
$50
Edison Bakehouse & Monbulk Community
(53 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(73 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(85 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(87 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(91 days ago)
$1,000
Dad
(103 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(118 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(127 days ago)
$20
Dad
(130 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(134 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(135 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(139 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(146 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(147 days ago)
$50
Dad
(151 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(152 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(180 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(180 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(187 days ago)
$769
Sue Steve & Raina
(195 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(201 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(201 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(216 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(222 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(222 days ago)
$245
John
(227 days ago)
$120
Anonymous
(228 days ago)
$500
Monbulk Community and Edison Bakehouse
(239 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(248 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(250 days ago)
$1,390
Nanyi & Hop
(256 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(260 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(262 days ago)
So much thank you's girls
$160
Soxwithsoul
(269 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(278 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(278 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(280 days ago)
$1,000
Noah and Ollie
(284 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(293 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(296 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(299 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(302 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(309 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(313 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(319 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(320 days ago)
$500
Monbulk community, Edison Bakehouse.
(328 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(333 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(333 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(334 days ago)
$2,500
Helen Newman
(342 days ago)
$205
Dad
(344 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(344 days ago)
Thank you all sososososo much.
$140
Dad
(347 days ago)
Wristbands ahoy
$160
Nana & Hop
(353 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(353 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(355 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(361 days ago)
Love you this much.
$180
Yetti
(369 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(371 days ago)
$2,000
Dad.
(383 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(383 days ago)
$180
soxwithsoul
(384 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(384 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(386 days ago)
$50
Dad
(396 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(401 days ago)
$160
Whitehorse City Council Social Club
(406 days ago)
$365
Nan & Hop
(412 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(416 days ago)
$15,256
Michael Johnson
(423 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(424 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(426 days ago)
$200
Anonymous
(432 days ago)
$50
Bowens Bowen & Pommery
(438 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(439 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(439 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(442 days ago)
$854
Carlie Dicello
(442 days ago)
$20
Edison Bakehouse & Monbulk community
(442 days ago)
$170
Lucie & Thibau
(442 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(442 days ago)
$300
Amanda
(448 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(449 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(453 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(466 days ago)
$100
Dad
(466 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(467 days ago)
$15
Kerrie
(471 days ago)
$20
My Majestic Boutique
(475 days ago)
$210
Renault Australia
(476 days ago)
$405
Nan & Hop
(478 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(481 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(482 days ago)
$101
Freightnet International
(483 days ago)
$500
Monbulk community and Edison Bakehouse
(489 days ago)
$160
ryan papavs
(489 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(493 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(498 days ago)
$20
Caroline Cirami
(499 days ago)
With love & light xx
$20
Nanna & Hop
(502 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(503 days ago)
$20
Noah
(504 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(504 days ago)
$20
Kelly Rutledge
(504 days ago)
$12
Adam & Ryan
(510 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(511 days ago)
$1,000
Danny Ventura
(511 days ago)
$300
Monbulk community and Edison Bakehouse
(520 days ago)
$120
Christina Xynos
(522 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(523 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(524 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(525 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(527 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(536 days ago)
Sending my love to you little man
$20
matthew grant
(536 days ago)
All the best mj
$50
Jan & Stan Ockwell
(538 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(539 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(539 days ago)
$200
Manny & Hop
(541 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(542 days ago)
Love you lots cheeky monkey
$50
Liz
(543 days ago)
Touched by your story
$20
michael Johnson
(544 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(547 days ago)
Good Luck & keep smiling x
$100
Sam
(547 days ago)
$50
Seville Cricket Club (members and players)
(550 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(550 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(550 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(550 days ago)
$10
Monbulk community and Edison Bakehouse
(550 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(552 days ago)
xxx
$500
Monbulk community & Edison bake house
(552 days ago)
$270
Tragic English Cricket Supporter
(552 days ago)
$5
Alisha
(552 days ago)
Bissels
$20
katherine Sorrell
(553 days ago)
$50
Julie Gillespie
(553 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(553 days ago)
$10
Tracy Brooks
(553 days ago)
$20
Jenni Milne
(553 days ago)
Thinking of you all xox
$30
Anonymous
(553 days ago)
$30
Aunty Sue & Uncle Perry
(553 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(553 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(553 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(553 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(553 days ago)
hugs xx
$10
Christy allan
(554 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(554 days ago)
xx
$20
Mell Dryden
(554 days ago)
Where there is hope, there is a way xx
$20
Kate O
(554 days ago)
$100
Pop & Nanna
(554 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

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Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry