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Hope for Kyuss

Hope for Kyuss

Kyuss has Sanfilippo Syndrome. Without a treatment, he will not live to adulthood. You can help save children like Kyuss by contributing to our campaign to raise funds for research in to this condition.
   

 

You can help

 

Online Donation

Donating online via our secure donation page is a fast, easy and safe way to donate for donors who would like to pay via credit. Click on Donate to Campaign button to make a donation.

 

Run a Fundraiser

You can run a fundraiser for the Hope for Kyuss campaign.  You can even set up your own fundraising page and seek sponsorship/donations from your network.  Click the Start Fundraising button to set up a fundraising page or contact us at info@sanfilippo.org.au to discuss your fundraising idea.

 

Read more about Kyuss's story here

Top Fundraisers

Soxwith soul $576.66
Kendal Davey's $560.00
View all

214 Donors

Uncle Chris & Angie Johnson
(23 days ago)
Thanks uncle Chris and Angie, love m&k
$50
Dad
(23 days ago)
Thank you khan, enjoy the bonsai!!!! Many thanks.
$50
Nanyi & Hoppa.
(34 days ago)
Best wishes to all the Sanfilippo kids & families .... special hugs & kisses to our little KyMan xxx
$1,000
Sammy & Mike's footy fundraiser
(39 days ago)
Thanks to everyone who participated in bidding and tagging people and for supporting our campaign xx
$200
Nanyi & Hoppa
(72 days ago)
More hugs & kisses to that little TIGER ... Mr Buttons and all the Sanfilippo kids ... xxxxx
$1,000
HyStress Timber & Trusses
(72 days ago)
Best wishes to our little KyMan and all the Sanfilippo kids. Uncle MarkyBoy & the team at Hystress.
$300
Sammy & Mikes memorabilia fundraiser
(79 days ago)
Thank you for all of your support! xxx
$700
Edison Bake House/Michael Johnson
(93 days ago)
$160
Wandin-Seville Community Bank
(102 days ago)
$1,000
Nanyi & Hoppa
(110 days ago)
Hugs & kisses to all the Sanfilippo kids ... always a special one for Mr Buttons ... we love you !!!
$1,000
Hystress Timber
(124 days ago)
$380
Edison Bake House/Michael Johnson
(136 days ago)
$120
5 Wishes Birthday Campaign
(137 days ago)
HAPPY BIRTHDAY from all your friends and family :)
$3,210
Nanyi & Hoppa
(152 days ago)
Best wishes to all the Sanfilippo kids ... hugs & kisses to our special Mr Buttons aka KyMan.
$1,000
Angela H
(153 days ago)
$10
Chung YEE
(155 days ago)
Happy Birthday, Big Boy!
$25
John and Jackie
(159 days ago)
$25
Alastair R
(165 days ago)
$200
McMahon Family
(170 days ago)
Thanks so much Tash & Andrew.
$40
Edison Bakehouse & Monbulk community
(170 days ago)
Big thank you for ongoing support
$130
Dad
(172 days ago)
Not just for my beautiful son, but all the beautiful Sanfilippo kiddies. Much love, Michael J.
$500
The Gilmore's
(193 days ago)
Let's celebrate... The trials are happening, whoop whoop xx
$50
Nanyi & Hoppa
(195 days ago)
Hugs & kisses to all the Sanfilippo kids ... especially to our little Champ ... Kyuss xxxxxxxxxxxx
$1,000
Edison Bakehouse & Monbulk Community
(196 days ago)
Thank you everybody!!!! Awesome.
$100
Carine Boustani
(226 days ago)
$100
Edison Bakehouse, monbulk community and Dad
(227 days ago)
So much support, thank you
$110
Nanyi & Hop
(227 days ago)
Hugs & kisses to our favourite little tiger .... Kyuss ... xxxx
$1,000
Andrea Archer
(237 days ago)
For Kyuss, love Harriet xxx
$50
Jade Vidal
(240 days ago)
Thank you Jade for your kind and generous donation
$50
Seville Cricket Club
(246 days ago)
Best wishes to Kyuss and his family from everyone at the Seville CC.
$200
Jodie Goodlet
(248 days ago)
Contribution of a small group of ladies! #hopeforkyuss
$250
Edison Bakehouse & Monbulk Community
(261 days ago)
So much small change all adds up, THANK YOU!!!!
$100
Nanyi & Hop
(264 days ago)
Much love, hugs & kisses to Kyuss & all the Sanfilippo kids ... special kiss from Billy boy !!!
$1,000
Greg Lacey
(278 days ago)
Happy 60th Gwenda , Grandmother to Kyuss
$100
Edison Bakehouse, monbulk community
(284 days ago)
THANK YOU!!!!!
$150
WILSON & BRADLEY
(305 days ago)
$2,000
Dad
(314 days ago)
Dad and Adrian Wright.
$100
Anonymous
(315 days ago)
$25
Nanyi & Hop
(325 days ago)
Hugs & Kisses to Kyuss and all the Sanfilippo kids ... Let's make 2017 hopes & dreams our year.
$1,000
Michelle Smith
(330 days ago)
With love to a very special little man and his inspiring mum Nikki. Heres hoping for a cure soon.
$50
Sammys online fundraiser
(331 days ago)
Thanks again to everyone involved! Enjoy your holidays and raffle winnings!
$634
Edison Bakehouse & Monbulk Community
(335 days ago)
Thank you all so much.
$100
Nanyi & Hop
(348 days ago)
Special Christmas hugs & kisses to all the Sanfilippo kids ... especially to our little tiger Kyuss.
$1,000
Renee and the boys
(349 days ago)
A friend wanted friends to give to a charity rather than receiving xmas gifts, what a rad idea x
$25
Monbulk Community & Edison Bakehouse
(363 days ago)
Thank you so much For you support everybody
$150
HyStress Timber & Trusses
(367 days ago)
Hugs & Kisses to Kyuss from Uncle MarkyBoy and the team at HyStress T&T.
$500
Alastair Robinson
(368 days ago)
We are praying for Kyuss and send him our love!
$500
Kilsyth stall
(376 days ago)
Thanks to everyone who came and supported the stall.
$200
Footy auction
(376 days ago)
Thanks again to everyone involved xxx
$610
Nanyi & Hop
(382 days ago)
Hugs & kisses to our Mr Buttons & all the Sanfilippo Kids.
$1,000
Tys
(399 days ago)
Keep well guys!
$100
Footy auctions
(408 days ago)
Thanks again to everyone involved
$300
Sheridan Gale
(409 days ago)
$20
Dad and Edison Bakehouse plus monbulk community
(411 days ago)
Thank you all so much!!!!!
$150
Renee Gilmore
(418 days ago)
Bridget Jones's Baby Movie fundraiser night and raffle
$2,551
Footy auctions
(425 days ago)
Thanks again to everyone who supported this fundraiser
$255
S├ębastien Izambard Official Fan Club Team
(433 days ago)
The Il Divo Fans for Charity give big hugs to little gentleman Kyuss!
$50
Nanyi & Hop
(436 days ago)
Hugs & kisses to Kyuss and his best new mate ... Hope the pooch ... Love to all the Sanfilippo kids!
$1,000
Tracca (Torrie's Sister :-) )
(439 days ago)
Sorry can't make it to next fund raiser. Will see you at the next one xxx
$50
Footy Auction
(443 days ago)
Thank you Sammy, Mike and everyone involved who have supported this campaign xxx
$502
Danny Ventura
(451 days ago)
Stay strong, H4K
$200
Steve & Torrie Hancock
(463 days ago)
Happy bday Kendal
$50
Raine kowhai
(463 days ago)
A donation towards kendal's 1st birthday
$20
Wattie Family
(463 days ago)
$50
Edison Bakehouse & Monbulk Community
(471 days ago)
Thank you all for your ongoing support.
$200
Nanyi & Hop
(491 days ago)
Best wishes to all the Sanfilippo kids ... & a big HELLO to KyMan ... hugs & kisses to you all !!!!
$1,000
Dad met jake
(503 days ago)
Handing out liberal paraphernalia. Thank you so much!!!!
$50
Kay and Simon
(505 days ago)
Met you at voting today, your little fella is a darling.
$20
Wandin Seville Financial Services
(509 days ago)
$1,000
Dad
(521 days ago)
Good job Edison Bakehouse and Monbulk community, 👍🏽👍🏽👍🏽👍🏽
$110
Nanyi & Hop
(536 days ago)
Thanks for supporting the Ky & the SCF .... special mention to Alan Thomas Owen .... onya Thommo !!
$1,655
Mal Lewis
(545 days ago)
$20
Dad
(548 days ago)
Much support from Edison Bakehouse and Monbulk community....
$120
Nanyi & Hop
(552 days ago)
Thank you everyone for your support ... Hugs & kisses to KyMan and to all the Sanfilippo kids xxxx.
$1,000
Lynda Eastwood
(553 days ago)
I have just read about Kyuss' condition & my heart goes out to you & all your family.
$100
The gilmores
(557 days ago)
Xxx
$50
Whitehorse Cake Bakers & Munchers
(564 days ago)
Thank you Catherine & Ladies for supporting the SCF & Kyuss ... very much appreciated !!!!
$738
Anonymous
(565 days ago)
$50
Dad
(569 days ago)
Thanks you Edison Bakehouse and People in Monbulk!!!!!!
$200
Aunty Gwen
(570 days ago)
Love ya heaps Ky boy. xx
$500
Brenda Bryant
(598 days ago)
Great news about the FDA Approval, fingers crossed xx
$250
Dad & monbulk community & Edison bakehouse
(598 days ago)
Thanks to all the monbulkians.
$150
Mt Evelyn Primary School Fundraiser
(605 days ago)
$769
Sue Steve & Raina
(613 days ago)
With Faith, Hope and Love always xoxo
$50
WinHort - Women in Horticulture Yarra Ranges
(619 days ago)
Thank you WinHort ladies for a great night, your support of Kyuss & very kind donation to the SCF.
$757
Nanyi & Hop
(619 days ago)
Thank you everyone for your support of Kyuss & the SCF ... hugs & kisses to our favourite Mr Buttons
$1,000
Dad, Edison Bakehouse and Monbulk Community
(634 days ago)
Thank you all for your support
$120
Jodie Goodlet/Cricket
(640 days ago)
Purple Stumps Cricket & Ladies Lunch
$2,653
Anonymous
(640 days ago)
$245
John
(645 days ago)
$120
Anonymous
(646 days ago)
$500
Monbulk Community and Edison Bakehouse
(657 days ago)
Thank you everyone!!!!!!!
$170
FishGeek Brett
(666 days ago)
I hope they find a cure for you little guy. Your dad tells me so much about you! Best wishes!
$50
Future Metals
(668 days ago)
$1,390
Nanyi & Hop
(675 days ago)
Continued thanks everyone ... Lots of love to all these beautiful kids. Hugs & kisses to Kyuss xxxx
$1,000
Alison Kahn
(678 days ago)
Nikki, you are such an inspiration to everyone especially your little man xxx
$50
Monbulk community & Edison Bakehouse
(680 days ago)
So much thank you's girls
$160
Soxwithsoul
(687 days ago)
Merry Christmas and aHappy New Year! Here's to 2016 being filled with beautiful memories.
$45
Caz
(696 days ago)
Get well soon
$10
Chris, Marina & Khaleesi
(696 days ago)
Merry Christmas little dude! Lots of hope for 2016!
$50
WILSON & BRADLEY
(698 days ago)
$1,000
Noah and Ollie
(702 days ago)
Merry Christmas, here's to much hope and love in 2016... We 💜 you ky man
$50
Dad
(711 days ago)
Big thanks to Edison Bakehouse and monbulk community
$120
Dad.
(714 days ago)
Selling bands and help from IGA Seville
$100
Alastair and Nova Robinson
(718 days ago)
Our prayers are with Kyuss and his family and send our love to all.
$1,000
Nanyi & Hop
(720 days ago)
Always a hug and a kiss for Mr Buttons! Thank you everyone for your continued support of the SCF.
$1,000
Dwyer Family
(727 days ago)
Loving my wristbands, key ring and stubby holder :) xx
$50
More bands with help from Aunty Kylie!!!!!
(731 days ago)
Thank you.....
$90
Edison Bakehouse Seville iga
(737 days ago)
Thank you for massive support!!!!!
$250
Signpoint Australia
(738 days ago)
$500
Monbulk community, Edison Bakehouse.
(746 days ago)
Amazing supportive people!!!!!!
$110
KyT Fundraiser
(751 days ago)
Thankyou one & all. Total fundraiser - $15,804 ... $3636 direct donations to SCF. Best day.
$12,168
The Ky Cup fundraiser
(751 days ago)
#peopleppoweredmedicine
$23,000
Robbie Heritage
(752 days ago)
$2,500
Helen Newman
(760 days ago)
$205
Dad
(762 days ago)
Spreading bands, spreading the word
$310
Edison Bakehouse and Monbulk Community
(762 days ago)
Thank you all sososososo much.
$140
Dad
(765 days ago)
Wristbands ahoy
$160
Nana & Hop
(771 days ago)
"In the jungle the mighty jungle a little tiger sleeps tonight ... and that little tiger is Kyuss!
$1,000
Dad, Rod 'drop saw' Heinrich, Seville IGA
(772 days ago)
Wristbands spreading the word
$200
Nanyi & Hop
(773 days ago)
Thank you everyone for supporting the SCF ... Special hugs & kisses to our favourite Mr Buttons!
$1,000
Monbulk community and wristbands.
(779 days ago)
Love you this much.
$180
Yetti
(787 days ago)
Sending you all strength and wishing you all a wonderful weekend ahead.
$30
Rotary Club of Wandin
(789 days ago)
$2,000
Dad.
(801 days ago)
Wristbands spreading the word
$270
Edison bake house and monbulk community
(801 days ago)
$180
soxwithsoul
(802 days ago)
Looking forward to being able to make more donation soon. :)
$45
NanYana & Hop .... (Little Tiger Speak)
(802 days ago)
Doing bits & pieces for our Little Tiger ... thank you everyone ... your support is the best!
$1,000
Gill Knight
(804 days ago)
$50
Dad
(814 days ago)
Selling bands for all the kids.
$170
Edison bake house & monbulk community
(819 days ago)
$160
Whitehorse City Council Social Club
(824 days ago)
$365
Nan & Hop
(830 days ago)
Thank you everyone for your fabulous support ..... more hugs & kisses to Mr Buttons!
$1,000
Ladies' Night Fundraiser
(834 days ago)
$15,256
Michael Johnson
(841 days ago)
Wristbands everywhere Ky man, love always, dad.
$580
Anon Whitehorse
(842 days ago)
My heart full of hope and support goes out to you all
$50
Edison Bakehouse and monbulk community
(844 days ago)
$200
Anonymous
(850 days ago)
$50
Bowens Bowen & Pommery
(856 days ago)
From Brett and team at Croydon Bowens store
$400
Tam's Cameo Night for Kyuss!
(857 days ago)
Thank you everyone ... sale of gifts & goods from the table ... great night in support of Kyman xxxx
$451
Nan & Hop
(857 days ago)
Thank you everyone for your support ... especially Aunty Rose ... hugs & kisses to you know who!
$1,000
Cameo night
(860 days ago)
$854
Carlie Dicello
(860 days ago)
$20
Edison Bakehouse & Monbulk community
(860 days ago)
$170
Lucie & Thibau
(860 days ago)
Thank you so much travellers
$100
We love you Tashy, ❤️❤️❤️❤️❤️
(860 days ago)
$300
Amanda
(866 days ago)
Sending lots of positive energy to your special little man x
$20
Sindy Redden-Vitale
(867 days ago)
we hope this donation helps in some way
$500
Nan & Hop
(871 days ago)
Thank you everyone for your support .... more hugs & kisses for Mr Buttons!
$1,000
monbulk community and Edison bakehouse
(884 days ago)
$100
Dad
(884 days ago)
Dad sold a tree to Steve Manassa
$50
Yetti
(885 days ago)
$15
Kerrie
(889 days ago)
$20
My Majestic Boutique
(893 days ago)
$210
Renault Australia
(894 days ago)
$405
Nan & Hop
(896 days ago)
Thank you everyone for your support ... hugs & kisses to Mr Buttons xxxxx
$1,000
Warren
(899 days ago)
$20
F1 Mortgage Brokers Pty Ltd
(900 days ago)
$101
Freightnet International
(901 days ago)
$500
Monbulk community and Edison Bakehouse
(907 days ago)
$160
ryan papavs
(907 days ago)
Unbelievable how inspiring you are little dude!
$50
Nan & Hop
(911 days ago)
Hugs & Kisses always to Mr Buttons!
$10,000
Yetti
(916 days ago)
$20
Caroline Cirami
(917 days ago)
With love & light xx
$20
Nanna & Hop
(920 days ago)
Thank you everyone for supporting the amazing "Mr Buttons" .... We love you all!
$1,000
Anonymous
(921 days ago)
$20
Noah
(922 days ago)
Love ya Brother from another Mother :)
$20
Anonymous
(922 days ago)
$20
Kelly Rutledge
(922 days ago)
$12
Adam & Ryan
(928 days ago)
backpackers from the UK.
$50
Lori Sanfilippo Awareness Gig
(929 days ago)
$1,000
Danny Ventura
(929 days ago)
$300
Monbulk community and Edison Bakehouse
(938 days ago)
$120
Christina Xynos
(940 days ago)
Hi Nikki and Kyuss. Thinking of you and sending lots of love.
$50
Gwen and Graham Gniel
(941 days ago)
We send our love and hope. Enjoy his cuddles and all the fun and love he brings into you life.
$100
Nanna & Hop
(942 days ago)
Sale of lavender & wheat bags and boxes. Thanks to Irene, Chris, Dulcie & Sophie .... xxxx to Kyuss
$1,000
Deepa
(943 days ago)
Wishing you my on going love and best wishes.. I am thinking about you ALL THE TIME!!
$500
Mike, Karen, Zoe Kate & Abbey
(945 days ago)
Best wishes Mike & Kyuss .... Hugs & kisses coming your way!
$100
Richard
(954 days ago)
Sending my love to you little man
$20
matthew grant
(954 days ago)
All the best mj
$50
Jan & Stan Ockwell
(956 days ago)
Only too happy to see a child have the right to grow through adult hood with the correct care.
$100
Sue Knight
(957 days ago)
GOOD LUCK Corowa Slimmers Club
$100
Monbulk Community & Edison Bakehouse
(957 days ago)
$200
Manny & Hop
(959 days ago)
Always a hug & a kiss for Mr Buttons!
$1,000
Aunty Kim
(960 days ago)
Love you lots cheeky monkey
$50
Liz
(961 days ago)
Touched by your story
$20
michael Johnson
(962 days ago)
for my beautiful boy and all the kids
$50
Ray & Iris Wallace
(965 days ago)
Good Luck & keep smiling x
$100
Sam
(965 days ago)
$50
Seville Cricket Club (members and players)
(968 days ago)
Looking after own , great SCC family, good luck little man. All our best.
$1,730
Che Dorval
(968 days ago)
You've got all my positive thoughts/vibes/love heading your way.
$20
Noah - best mates forever ✌
(968 days ago)
Mum hates me swearing, but I filled the swear jar up quick! if I keep it up we'll get funds fast 😉
$30
Anonymous
(968 days ago)
$10
Monbulk community and Edison Bakehouse
(968 days ago)
a big thank you everybody. Eternally grateful, Michael j
$143
Darren & Steph McIntyre & the boys at DARMAC
(970 days ago)
xxx
$500
Monbulk community & Edison bake house
(970 days ago)
$270
Tragic English Cricket Supporter
(970 days ago)
$5
Alisha
(970 days ago)
Bissels
$20
katherine Sorrell
(971 days ago)
$50
Julie Gillespie
(971 days ago)
I think of you and Kyuss often Nikki. Sending you hope, determination and positive thoughts.
$50
Donna aka Fairy Blossom
(971 days ago)
$10
Tracy Brooks
(971 days ago)
$20
Jenni Milne
(971 days ago)
Thinking of you all xox
$30
Anonymous
(971 days ago)
$30
Aunty Sue & Uncle Perry
(971 days ago)
Your 1st $1000
$70
Dizzlefizzle1981
(971 days ago)
Nikki you're so strong and a wonderful mother, your plight is heartbreaking. wanna help where I can!
$30
Katie, Jarrod, Dallas & Zara
(971 days ago)
We're behind you 110%. All our love. xo
$100
The Bin Guy
(971 days ago)
Our thoughts and prayers are with you Kyuss. Keep fighting little man. xx
$100
elaine
(971 days ago)
hugs xx
$10
Christy allan
(972 days ago)
I hope we can help. This is so sad. Xo
$50
Dimples & Whispers
(972 days ago)
xx
$20
Mell Dryden
(972 days ago)
Where there is hope, there is a way xx
$20
Kate O
(972 days ago)
$100
Pop & Nanna
(972 days ago)
Lavender bags made with love for our little Tiger
$500
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About

We are dedicated to progressing clinical research into the effective treatment of Mucopolysaccharidosis III, also known as MPSIII or Sanfilippo Syndrome.

Read More

Contact

PO Box 475
Freshwater
NSW 2096 Australia

P. 1800 664 878
E. online enquiry