The Pioneer team enjoyed a
special visit from a very important little guest, as they announced the latest
SFSuper Series event – The Big Feet & Little Feet Spring To It Fun Run.
Kate Page and her 11-month-old baby
daughter Matilda Page together with Matilda’s loving grandmother Jill Bowman,
attended the launch to share their Sanfilippo story and introduce Matilda – the
youngest known child in the country to be diagnosed with this catastrophic
Pioneer team members and their families
will come together to pound the pavement at the Spring To It event on 2nd September
to help raise much-needed research dollars.
“We all loved meeting the beautiful Matilda
and we were incredibly moved by Kate’s courage to share her story. Our team and
their families can’t wait to lace up their sneakers and get involved in the
Spring to It Fun Run to raise vital funds to help Tilly and others with
Sanfilippo Syndrome,” said Pioneer Credit Managing Director, Keith John.
This is a fantastic event for the SFSuper
Series and the Sanfilippo Children’s Foundation, according to the SFSuper
Series Relationship Manager, Jo Bilous.
“We are thrilled to have Pioneer Credit
take on this challenge. It’s not the hardest or longest run in Western
Australia but it is a run we think is achievable for everyone. Last year the
Pioneer Sydney team joined us for our Big Feet and Little Feet event
and had great fun. Our events have historically been on the east coast, so we
are super excited to see the launch of our Series in WA,” Ms Bilous said.
The SFSuper Series has been a great success for the Sanfilippo Children’s
Foundation, raising $650,000 to date.
“Our goal in 2018 is to take that total to
close to $1 million and have at least 450 participants run, cycle, walk, swim
and sweat it out all in the name of eradicating Sanfilippo,” said Executive
Director of the Sanfilippo Children’s Foundation, Megan Donnell.
Sanfilippo Syndrome is a rare genetic
condition that causes fatal brain damage in children. It’s referred to as a
childhood disease as most patients never reach adulthood. Life expectancy for
children with Sanfilippo is typically just 12-20 years.
The Sanfilippo Children’s Foundation was
established by Sydney mother Megan Donnell in 2013 following the shock
diagnosis of both her beautiful children, Isla and Jude Donnell with
Born seemingly healthy, over time the brain
gets progressively damaged. Children experience hyperactivity, sleeplessness,
dementia, loss of speech and cognitive skills, mental retardation, cardiac
issues, seizures, loss of mobility and finally death.
The SFSuper Series, supported by Pioneer
Credit, will now add the Spring to It Fun Run to its existing line up of events
which include the Pub2Pub as part of Big Feet and Little Feet family fun
run on 26th August, the Surf Coast Century ultra marathon on
15th September, the Gears & Beers Cycling Festival on 30th
September, a 24-hour CrossFit challenge Endure24 on 26-27th October,
and the Coogee Island Challenge swim event on 25th November.