Hope for Isla & Jude

Hope for Isla & Jude

Isla and Jude are siblings with Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Isla and Jude by contributing to our campaign to raise funds for research into this childhood dementia.

Isla and Jude adore each other.  It is unimaginable one may lose not only their sibling, but also their best friend. Without a treatment, they will not live to adulthood. 

Isla

She loves swimming, singing, cuddling her therapy dog ‘Remy’, and playing with her brother, Jude. Isla has Sanfilippo Syndrome. Without treatment she will not live to adulthood. 

Read more about this family in Good Weekend article here.

Jude

He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.

Read article about the challenges of life with two children battling Sanfilippo.

Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death. 

See more on Sanfilippo Syndrome.

You can help

Make an online donation

Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.

Host a fundraiser

Thare are lots of ways you can fundraise for the Hope for Alec campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here

Buy the Song

 Buy the song, 'This Woman's Work'.  All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.

A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal

$26

Linda Matthews

$16

Jane Keating

Keep smiling (and cuddling Remy) Isla and Jude.

$50

Jennifer Lee

Heartbreaking to read about your family in The Good Weekend. Pray for continued courage and a miracle. Pls take care of yourselves too.

$26

Kerry

Heartbreaking to watch the project and see your struggle and the difference in Isla. Big hugs to your family xxxx

$105

Vicki Gibson

Our hearts go out to you all - wishing you love and hope.

$105

Jordan And Tim Greer

After seeing the show tonight we couldn't help but contribute in some way. We hope for nothing but good things to come your way moving forward. Jordan and Tim.

$53

Imasha Hewavasam

$26

Anonymous

$26

Veronica Ilojoki

Hello just wanted to send al my love and hugs😍i now ho it go been sick i live periods Inn the hospitahl for many helht problems. Love from and hugs from a goung lady

$2

Anonymous

$105

Marnie Van Dyk

$1

Anonymous

$1.94k

Jude's Birthday Facebook Fundraiser

$330

Sam Donnell Birthday Facebook Fundraiser

$26

Lisa Jamieson

Very touched by your story. Our prayers are with you. In the middle of the Covid-19 pandemic our financial situation is rather uncertain but that is our only concern right now apart from staying home to avoid the infection rate getting worse. But this is not a hard thing for us compared to what you are going through! I’m deeply saddened and want to help. Our donation isn’t much but we really want to help. If we can donate more soon we will. Stay strong and keep up the wonderful fight and keep believing that miracles do happen!!!

$11

Ingrid Maack

$100

Anonymous

Dear Isla&Jude Your story is so heartbreaking but at the same time so inspiring to anyone who hears it. You have such wonderful mum and dad to fight for your life! I will pray for miracle to happen. Stay strong! With Love Anonymous me

$50

S??bastien Izambard Official Fan Club

$50

Paul Wilson

$50

Jillian Betts

$50

Tanya Kelly

$50

Alison Butt

$100

Mardi Darren Sofia Amali

$1.8k

Sonya Watson

$1,000

Nb Council

$1.02k

Van Bogan Band Night Fundraiser

$1.07k

Tom Miles - Bunnings Bbq

$1.08k

Daniel And Madeline Engagement

$1.19k

Yasmin C 'meet Me In The Middle' 10k Walk

$1.24k

Toby Greenow's A Rat's Tale

$1.32k

Doggie Day @ The Bay Bbq & Stall

$1.33k

Kids Ot Bridge Run

$1.42k

Loom For Sanfilippo Aug 2015

$1.53k

Matteo Mini Marathon August 2015

$1.78k

Elisabeth Cavaleri Birthday Party Donations

$2k

The Jayatilakes

$2k

Monica & Charles

$2.19k

North Curl Curl Netball Cake Stall May 2015

$2.41k

Nadine Miller - Sun Run 2016

$2.6k

Isla And Jude Birthday Campaign #10for10 And #8for8

$2.63k

Runforhope City2surf

$2.82k

Bunnings Balgowlah Cake Stall May 2015

$3k

Stylingthetribe Instagram Fashion Auction

$3k

Moziac Christmas Candle Fundraiser

$3.3k

Mozaic Christmas Fudnraiser

$3.52k

Sun Run - Nadine Miller

$3.85k

Kindy Kids Christmas Cards

$3.93k

Nikki's 250km Run For Isla And Jude

$4.19k

Carnival Fun Day Fundraiser

$5k

Jarrod Yates Growing Solo

$5.12k

Open Garden, Port Macquarie

$5.44k

Sony Music Australia

$6.5k

Dance For Hope Kids Disco (freshwater) Aug 2015

$6.93k

Sun Run 2015

$7.11k

Edgell Gems Run For Hope (sponsorship + Cake Stall) Bathurst Aug 2015

$7.16k

Pub2pub Fun Run (team Total) Aug 2015

$7.63k

Sun Run - Morgan And Oscar

$11.83k

Paddle For Isla & Jude - Fit State Of Mind Fundraiser

$12.5k

Anonymous

$18k

Back To School Trivia Night

$22k

Totally 80s Trivia

$50.37k

Donations Prior To January 2015

$20

Alison Treacher

$25

Anna

$25

Kim Black

$25

Michelle Clark

$25

Vanessa

$30

Oscar, Emma & Huey Stevenson

$30

Violet, Jasmine And Zico

$30

Tina

$40

Ingrid Maack

$50

Liam Flynn

$50

Nols, Stodd, Bella, Benny & Stitchy ??

$50

Penny Treacy

$50

Erene K

$25

Fernando Montanelli

$25

Anna

$25

Tanya

$25

Peter

$25

Joe And Leanne Zautsen

$25

Tilly And Her Grandma

$25

Julia Svanberg

$30

Janice Ho

$50

Elsie Houston

$50

Sharon Avis

$50

Nadine

$50

Ek

$50

Janice Ho

$50

Val

$50

Linda Uk

$70

Rhian - Sun Run 2016

$85

Taylor Dunn

$100

Jess Mcnamee

$100

Olga Bell

$100

Doggie Day At The Bay Bbq

$100

Anne-lies Jacobs

$100

Anonymous

$100

Freddie

$100

Anonymous

$100

Mrs 'archie'