Raised so far
See the sunrise from the top of Australia!
Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope...
Join us 19-21 Nov 2021 for the Sanfilippo Sunrise Summit and make a difference to children living with Sanfilippo Syndrome and their families.
We will start this incredible adventure under the light of the stars, then we will trek to the peak of Australia’s highest mountain, Mount Kosciuszko, in time to see the sunrise. Following well-worn tracks, we'll trek up above Lake Cootapatamba — Australia’s highest lake, between the rolling peaks of Ram’s Head and Etheridge Ranges, past historic huts, granite rock formations and weathered snow gums along a gently winding path to the summit.
Best of all, with every step you take towards the summit, you’ll raise vital funds to drive research for a world without Sanfilippo Syndrome.
We respectfully acknowledge the Ngarigo people as the Traditional Owners and Custodians of what is now known as the Snowy Monaro region. We thank them for sharing this beautiful land with us.
How it works
Register for the Sanfilippo Sunrise Summit
We have partnered with the adventure company, Inspired Adventures, for the Sanfilippo Sunrise Summit. They will be there throughout the journey offering fundraising and travel support every step of the way. Alongside your new philanthropic journey, you will also embrace your inner adventurer by taking part in a physically and mentally demanding challenge.
Setup your fundraising page
Your fundraising target is $2,500. This will make an enormous difference in helping us to achieve our purpose to drive research for a world without Sanfilippo. It may seem like a big challenge but you will be completely supported by the Inspired Adventures team. You'll have dedicated 1-1 fundraising support from the time you sign up right through until your adventure begins.