We are fundraising for a future without Sanfilippo Syndrome
2021 as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever.
Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of one day finding a cure but to also reach other families and know they are not alone. 💜
We are doing 5km a Day in May to support the work of the Sanfilippo Children’s Foundation! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
Your donation will fund vital research projects that show real promise in halting the progression of the disease; repairing damage caused by the condition; or improving the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to our Sponsors
$350
Assm
$300
Veljko Tomic
$300
Roo Group Pty Ltd
$263
Speedy Garage Services
$250
Megasealed Greaterwest
$210
Ozroof
Best of luck Mark
$158
Abdullah And Susan Tabikh
Best Wishes to Kye
$105
Mark Kazzi
$105
Anonymous
$105
Shane Brett
$105
Nick Agostino
$105
John Kulen
Great cause., 🙏
$105
Lisa Dixon
Good on you Mark. 👏 Hugs to Kye 🤗
$105
Joeshandyman
$105
Agc Auto Gate Centre
$105
Dimitri Kohilas
$105
Anonymous
$105
Josh Ong
Kye couldn’t have better parents! Much love
$105
Walford
We love you two Champions-The Walfords
$105
Rhonda And Craig Hoffman
Well done Grandma, such a beautiful family and cause ❤️❤️
$105
Jodie Horne
$105
Anonymous
$105
Kirsty Vella
$105
Reece Vella
Love you guys so much
$105
Kirsten Martyn
$100
Mandy Hasiuk
$53
Kristen Hardman
$53
Jack Hardman
$53
Francesca
Hope you're getting the support you need x
$20
Mark Henning
$53
Rose Henning
Great cause ❗️
$53
Elie Assaly
Great work
$53
Annette Dennis
$53
Narelle Doran
$53
Alex Lawrence
$53
The Window Guy
$53
Leonie Hardman
$53
Celeste Aviet
Great thing you’re doing Lee. Love you lots ❤️
$53
Sydney Muscle & Joint Clinic
🙌🏻🙏🏻❤️
$53
Corey Makelim
$53
Kim Dismond
$53
Joanne Bugg
$53
Ibrahim Massri
$53
Lindee Watmough
$53
Anonymous
$53
Rebecca Craig
$53
Eli
$50
Kerri
$50
Jude
Good on you legend.
$32
Kylie Moody
$26
Kristine Wunderlich Wunderlich
$26
Andrew Tieu
$26
Leanne Davies
Good luck Mark
$26
Virginia Napoleone
Inspiring !!!
$26
Stefanie Crisp
$26
Kylee Watmough
$26
Trevor Boci King
Hood oos lahd
$26
Anonymous
$25
Frank Polistina
Great work Rose
$16
Anonymous
$5
Anonymous
$5
