We are fundraising for a future without Sanfilippo Syndrome
2021 as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever.
Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of one day finding a cure but to also reach other families and know they are not alone. 💜
We are doing 5km a Day in May to support the work of the Sanfilippo Children’s Foundation! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
Your donation will fund vital research projects that show real promise in halting the progression of the disease; repairing damage caused by the condition; or improving the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to our Sponsors
$525
Melissa & Mitchell Beech
$350
Assm
$300
Veljko Tomic
$300
Roo Group Pty Ltd
$263
Jared Doolan
Good luck bruz
$263
Affordable Roofing & Guttering
Great Work Mark! All the best.. Affordable Roofing
$263
The Boxing Collector
To the best and strongest family!
$263
Speedy Garage Services
$263
Troy Errington
Hey mate, all of you are awesome. If you need ANYTHING please reach out mate.
$250
Anonymous
$250
Anonymous
$250
Megasealed Greaterwest
$210
Ozroof
Best of luck Mark
$200
David & Barbara Connor
$200
Jbuild Construction
Good luck to your husband.
$158
Abdullah And Susan Tabikh
Best Wishes to Kye
$158
Nikos Alexopoulos
Great work buddy
$158
Anonymous
$150
Precision Garage Doors And Gates
$131
Anonymous
Well done Kristen 🙂 You are inspiring and a great mother
$125
Max Brownson
$121
Coolibah Hotel
Well done . Coolibah hotel
$111
Isak Finnerty
Our family loves you all so much 💜
$105
Fran Satchell
$105
Warren Johnson
Kye could not have better parents. 😀👊🙏
$105
Mark Kazzi
$105
Jeremy Borzillo
$105
Anonymous
$105
Joel Horne
$105
Shane Brett
$105
Nick Agostino
$105
John Kulen
Great cause., 🙏
$105
Lisa Dixon
Good on you Mark. 👏 Hugs to Kye 🤗
$105
Joeshandyman
$105
Agc Auto Gate Centre
$105
Dimitri Kohilas
$105
Anonymous
$105
Josh Ong
Kye couldn’t have better parents! Much love
$105
Walford
We love you two Champions-The Walfords
$105
Rhonda And Craig Hoffman
Well done Grandma, such a beautiful family and cause ❤️❤️
$105
Jodie Horne
$105
Anonymous
$105
Kirsty Vella
$105
Reece Vella
Love you guys so much
$105
Kirsten Martyn
$105
Aqua-pro Plumbing Services
$105
Terri Hardman
Love you auntie boy 💜💜
$105
Craig Shaw
$100
Scott Graham
Up the Gulls
$100
Mandy Hasiuk
$100
Connect Electrical Solutions Trust
$84
Erin Starr
$53
Kristen Hardman
$53
Jack Hardman
$53
Francesca
Hope you're getting the support you need x
$53
Michelle Ellis
$53
Paige Vella
You both are amazing! Love & hugs x
$53
Kinda Buckman
I wish I could give more. Love you Jack and Kristen xx
$53
Amy Oram (love Marie Bridal)
❤️
$20
Mark Henning
$53
Rose Henning
Great cause ❗️
$53
Elie Assaly
Great work
$53
Billy Settineri
Great job mate keep it up from Billy and Luca 🥊
$53
Annette Dennis
$53
Narelle Doran
$53
Danielle Barna
$53
Sean & Jess Finnerty
Great work legends ❤️ ❤️
$53
Alex Lawrence
$53
The Window Guy
$53
Leonie Hardman
$53
Celeste Aviet
Great thing you’re doing Lee. Love you lots ❤️
$53
Sydney Muscle & Joint Clinic
🙌🏻🙏🏻❤️
$53
Corey Makelim
$53
Kim Dismond
$53
Joanne Bugg
$53
Ibrahim Massri
$53
Lindee Watmough
$53
Anonymous
$53
Rebecca Craig
$53
Eli
$53
Melanie Scothern
Go Nanny Hasiuk
$53
Stephen Arhipoff
$53
Sharon Hardman Vassel
Your doing brilliant ❤️
$53
J Zarb
$53
Cameron Meani
Love to you and Kristen. Love from Cam, Kay, Saxon and Hudson!
$53
Kerry Milne
$53
Alicia Blain
$53
Veronica Nazarenko
Good Luck Mark! Best wishes to Kye!!
$53
Teille Wickstein
$53
Colleen Neville
$53
Carmen Garton
Sending love and hope and hugs xxxx
$53
Joanne Bugg
$53
Lidia Ivancic
Love your work Corey!! What a good cause
$53
Anonymous
$53
Joshua Brincat
All the best.
$53
Andrew Moller
$53
Jenene And Neil Porter
You’ve got this xx
$53
Scott Holman
$53
Rhys Flory
$53
Rebecca Easey
$53
Jennifer Durrant
$53
Sharren Gra
$53
Melanie Scothern
Almost there go mummy Kristen 💙
$50
Michelle L
$50
Kath Scothern
$50
Kerri
$50
Jude
Good on you legend.
$50
Chad Baker
$50
Lisa Killeen
$50
Pippa Harrison
Awesome work Corey! Good luck on the kms
$50
Margo Evans
Love to Kye Margo & Jade
$50
Ali Khurshid
I haven't met you, but I salute you for your humanity
$32
Kylie Moody
$26
Loz
$26
Kristine Wunderlich Wunderlich
$26
Josh Ing
Amazing effort! Much love kye
$26
Renae Taylor
$26
Andrew Tieu
$26
Leanne Davies
Good luck Mark
$26
Hannah Casey
Amazing! Well done Jack and all the team!
$26
Virginia Napoleone
Inspiring !!!
$26
Stefanie Crisp
$26
Kylee Watmough
$26
Trevor Boci King
Hood oos lahd
$26
Anonymous
$26
Huong Giang
$26
Anonymous
$26
Jennifer Stapleton
Big love to you all from Jenn and the Jordan fam x
$26
Lakmali S
🧡
$26
Olivia Kimble
Great work Jack oxo
$26
Annie Henry
Sending hugs and prayers to Kye and his family.
$26
Kat Watson
$26
Tash
💕💕
$26
Naomi Arhipoff
$26
Minha Abbasi
$26
Emma Doherty
Wishing you all the best with your baby boys Journey. It hits my heart strings as my brother has a daughter born with a rare condition also - interstitial lung disease, and she will require both a heart and lung transplant in the next year or so. Wishing you all the best again. Best Wishes xxx
$26
Craig Nichelsen
$26
Anonymous
$25
Elise Galbraith
$25
Frank Polistina
Great work Rose
$25
Anonymous
$25
Adriana Assey
All the best
$21
Max Brownson
Hey mate, I know $20 isn't much but I hope even this little bit helps. Best of luck to you and your family.
$21
Colleen
$20
Anonymous
$16
Anonymous
$16
Patrick James
$11
Dimitri Alexopoulos
Great work jack, keep it up !
$11
Kylee Watmough
$11
Kylee Watmough
$11
Anonymous
$11
Scott & Daniela Wood - Steadfast Plumbing Services
What a great charity to raise funds for & I hope they get all the support behind them to make as much advancement as possible in the treatment of this rare childhood disease, to make the lives of those & their families affected, a little more bright & full of hope, happiness, love & warmth <3
$10
Rizvia Belal
$5
Anonymous
$5
