What is Sanfilippo?
Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most children never reach adulthood. There is currently no treatment or cure available to children diagnosed with this devastating disease. But there is hope.
With your help we've committed nearly $5.9 million to 34 projects in the search for treatments and a cure for Sanfilippo
Read more about our research strategy and the projects that your generous support makes possible.
Read more about our annual competitive research grant program
Giving hope to children with Sanfilippo
Become a regular giver
Become a Star for Sanfilippo and join our supporters making a regular donation to our research program.
Include a gift in your will
Give hope to children with Sanfilippo and their families by including a gift in your will.
Host a birthday fundraiser
Whatever you're celebrating, consider asking for a donation in lieu of a gift
Volunteer from home
Whether it's a few hours or a few days, we have skilled volunteering opportunities available now.