Alec Morrice
Alec has Sanfilippo Syndrome Type C. Without treatment, he will not live to adulthood. You can help children like Alec by contributing to our campaign to raise funds for research into this childhood dementia.
Alec has Sanfilppo Syndrome Type C. (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000.
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Alec loves camping. He likes to run but these days is unsteady on his feet. His mum, Michelle, says a smile from Alec makes the hardships of the day dissapear. If only Sanfilippo would dissapear!
Alec entered our world almost two years to the day after his big sister Sienna. On the 8th January 2007, Alec arrived with all the hope we as parents could dream for his future. We had our pigeon pair, both healthy and beautiful. Our hearts were full and our lives couldn't have been more perfect.
After a long diagnostic odessy, on the 9th of January, 2015, a day after Alec's eighth birthday, we received the phone call that changed our lives. Alec had Sanfilippo Syndrome MPSIII Type C.
The initial impact of this news was one of shock and despair. We were mourning a loss that hadn't happened yet and blaming ourselves as we are the reason Alec has this condition. We also jumped head first into researching the condition to ensure we were fully informed. We have since realised that drowning in a sea of despair is not going to help Alec and what we want for his future.
We have learned to let go of those things that cause us stress and to enjoy the here and now. We are committed to making a future for our children filled with love and laughter and we surround ourselves with people who love our family and accept Alec. We do not treat Alec differently to his sister Sienna. Of course, some days are harder than others, but it is amazing how a smile and a cuddle from Alec, makes all these hardships melt away.
Our hope is for the advancement of clinical trials to help develop a treatment and hopefully one day a cure for this condition so that children with Sanfilippo can live a life that every child deserves. We hope the wider community can help spread the word and help us to make exactly this happen.
We also hope are that our son will be able to live a life surrounded by understanding and kindness. His life may not be the one that we previously dreamt for him but if it is one in which he has no fear or pain, feels loved and is full of things that bring him happiness, we could not wish for more!
Photography: Danielle O'Brien
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
Watch video of Alec’s mum Michelle sharing her family’s story here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
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Kathleen Riches And Des Ridgill
$100
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Kathleen Riches
$105
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Graham Imhoff
$50
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Kathleen Napper
$53
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Vinaya Lakkoju
Hope this helps. Sending love.
$105
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Mahalah’s Family
Big hugs to Alec. Love from the Dolby family
$105
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Anna Laegel
$53
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Brisbane Marathon Volunteers
$180
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Elizabeth Farrell
$50
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Elizabeth Farrell
$53
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Emma & Paul
$53
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Bryce Saltmarsh
I’m in awe of you Alec and Michelle.
$105
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Jack Tuttle
Heroes Hollywood
$179
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Ellen Rosenblatt
$16
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Gen Olsen
$53
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Katherine Roberts Roberts
$42
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Fiona Lambert Lambert
$26
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James Alan Macarthur Bowman Bowman
$105
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Claudia Murray
With heart felt love to you x
$105
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The Plant Bunker
Book sale đź“š
$976
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Naomi Miller
Your OLD music teacher who misses big ALEC hugs
$5
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Josephine Devenish-meares
Thank you Alice for sharing Alec's story with us at MSM.
$11
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Genevieve Mcilwain
$16
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Ferny Grove State High School Student Council
two fundraisers held at school, organised by student council - Jellybean count and Sausage sizzle
$240
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Mary Sheppard
$20
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The Reids
For my little mate Alec.
$53
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Emma Kirkman
$2
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Jane Keating
Best wishes Alec.
$16
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Anonymous
$2
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Marg Frame
❤️
$105
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Drag Queen Bingo Fundraiser
$1.29k
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Masters Bbq Fundraiser
$1.32k
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Bbq Anaconda Everton Park (hope For Alec)
$1.33k
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Macdowall State School Mothers Day Stall
$1.44k
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#10for$10 Alec Birthday Campaign
$1.51k
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Anytime Fitness - Albany Creek
$1.53k
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Owen Nattrass
$2k
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Ferny Grove State School
$2.41k
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Ferny Grove State School
$2.7k
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Ferny Grove State School
$2.7k
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Ferny Grove State School Student Council Disco
$2.95k
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Michael Brown - Modplumb Solutions
$3k
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Tough Mudder For A Tough Mother 2018
$4.12k
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Drag Queen Bingo Ticket Sales & Pizza
$4.76k
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Drag Queen Bingo Event
$5.01k
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Beavis & Bartels Scuh Employee Contributions
$5.36k
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Hope For Alec Trivia Night
$6.11k
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Tough Mudder 2016
$8.1k
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Trivia Night
$9.78k
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Tough Mudder For A Tough Mudder
$11.55k
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Brisbane Tough Mudder 2017
$12.02k
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Kylie & Marty - Ginger & Archer
$100
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Des & Kathy Riches
$100
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Aunty Tess, Grandma And Great Aunty Averil
$100
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Anonymous
$100
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Michael And Robyn Mcanany
$100
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Janet Bell
$100
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Janet Bell
$100
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Anthony O'reilly
$100
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Rose, Sandra, Martin And Robyn
$110
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Paper Boat Press - Bake Sale
$122
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Pam, Rose, Sandra, Martin And Robyn
$130
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Red Rooster Charity Box Donations
$145
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Carl Gibbs
$150
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Rent Star Property Management
$150
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Beavis & Bartels Newstead Towers Employee Contributions
$185
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Sjaccountants (steve & Bry)
$200
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Lyn Morrice
$200
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Cr Matt Constance - Moreton Bay Regional Council
$200
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The Ascough Family
$200
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Lyn Morrice
$200
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Des & Kathy Riches
$200
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Fgss Disco Glow Product Sales
$220
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"the Plant Bunker" Book Sale
$220
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Stephanie & Celso Perez
$250
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Jill, Jeremy And Jonah
$250
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Crazy Hair Stall
$250
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Matt Hendra For Henry Schein
$250
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Lyn Morrice (grandma)
$250
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Fathers Day Stall
$286
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Nattrass, Manson, Morrice Families
$300
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Wanderers Travel Co
$300
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Fgss Disco - Glow Products Sales
$307
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Hilder Road State School Car Boot Sale
$322
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Anonymous
$323
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Christmas Bake Sale Paperboat Press
$329
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Andrew Erickson
$366
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Proceeds From Sale Of Glow Products Fgss Disco
$400
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Carols By Glowstick At Mcdowall State School
$442
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Ferny Grove State School Disco
$447
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Brisbane Marathon Volunteers
$450
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Averil Nattrass
$500
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Cam
$500
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Aunty Averil
$500
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Fairview Rsl Care
$500
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Mackenzie Watson
$510
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Kylie Johnson
$516
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The Johnsons And The Dooleys
$570
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Michelle Morrice
$582
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Glen Sales And Penelope Kirk
$600