Alec Morrice
Alec has Sanfilippo Syndrome Type C. Without treatment, he will not live to adulthood. You can help children like Alec by contributing to our campaign to raise funds for research into this childhood dementia.
Alec has Sanfilppo Syndrome Type C. (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000.
Alec loves camping. He likes to run but these days is unsteady on his feet. His mum, Michelle, says a smile from Alec makes the hardships of the day dissapear. If only Sanfilippo would dissapear!
Alec entered our world almost two years to the day after his big sister Sienna. On the 8th January 2007, Alec arrived with all the hope we as parents could dream for his future. We had our pigeon pair, both healthy and beautiful. Our hearts were full and our lives couldn't have been more perfect.
After a long diagnostic odessy, on the 9th of January, 2015, a day after Alec's eighth birthday, we received the phone call that changed our lives. Alec had Sanfilippo Syndrome MPSIII Type C.
The initial impact of this news was one of shock and despair. We were mourning a loss that hadn't happened yet and blaming ourselves as we are the reason Alec has this condition. We also jumped head first into researching the condition to ensure we were fully informed. We have since realised that drowning in a sea of despair is not going to help Alec and what we want for his future.
We have learned to let go of those things that cause us stress and to enjoy the here and now. We are committed to making a future for our children filled with love and laughter and we surround ourselves with people who love our family and accept Alec. We do not treat Alec differently to his sister Sienna. Of course, some days are harder than others, but it is amazing how a smile and a cuddle from Alec, makes all these hardships melt away.
Our hope is for the advancement of clinical trials to help develop a treatment and hopefully one day a cure for this condition so that children with Sanfilippo can live a life that every child deserves. We hope the wider community can help spread the word and help us to make exactly this happen.
We also hope are that our son will be able to live a life surrounded by understanding and kindness. His life may not be the one that we previously dreamt for him but if it is one in which he has no fear or pain, feels loved and is full of things that bring him happiness, we could not wish for more!
Photography: Danielle O'Brien
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
Watch video of Alec’s mum Michelle sharing her family’s story here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Graham Imhoff
$50
Kathleen Napper
$53
Vinaya Lakkoju
Hope this helps. Sending love.
$105
Mahalah’s Family
Big hugs to Alec. Love from the Dolby family
$105
Anna Laegel
$53
Brisbane Marathon Volunteers
$180
Elizabeth Farrell
$50
Elizabeth Farrell
$53
Emma & Paul
$53
Bryce Saltmarsh
I’m in awe of you Alec and Michelle.
$105
Jack Tuttle
Heroes Hollywood
$179
Ellen Rosenblatt
$16
Gen Olsen
$53
Katherine Roberts Roberts
$42
Fiona Lambert Lambert
$26
James Alan Macarthur Bowman Bowman
$105
Claudia Murray
With heart felt love to you x
$105
The Plant Bunker
Book sale đź“š
$976
Naomi Miller
Your OLD music teacher who misses big ALEC hugs
$5
Josephine Devenish-meares
Thank you Alice for sharing Alec's story with us at MSM.
$11
Genevieve Mcilwain
$16
Ferny Grove State High School Student Council
two fundraisers held at school, organised by student council - Jellybean count and Sausage sizzle
$240
Mary Sheppard
$20
The Reids
For my little mate Alec.
$53
Emma Kirkman
$2
Jane Keating
Best wishes Alec.
$16
Anonymous
$2
Marg Frame
❤️
$105
Drag Queen Bingo Fundraiser
$1.29k
Masters Bbq Fundraiser
$1.32k
Bbq Anaconda Everton Park (hope For Alec)
$1.33k
Macdowall State School Mothers Day Stall
$1.44k
#10for$10 Alec Birthday Campaign
$1.51k
Anytime Fitness - Albany Creek
$1.53k
Owen Nattrass
$2k
Ferny Grove State School
$2.41k
Ferny Grove State School
$2.7k
Ferny Grove State School
$2.7k
Ferny Grove State School Student Council Disco
$2.95k
Michael Brown - Modplumb Solutions
$3k
Tough Mudder For A Tough Mother 2018
$4.12k
Drag Queen Bingo Ticket Sales & Pizza
$4.76k
Drag Queen Bingo Event
$5.01k
Beavis & Bartels Scuh Employee Contributions
$5.36k
Hope For Alec Trivia Night
$6.11k
Tough Mudder 2016
$8.1k
Trivia Night
$9.78k
Tough Mudder For A Tough Mudder
$11.55k
Brisbane Tough Mudder 2017
$12.02k
Kylie & Marty - Ginger & Archer
$100
Des & Kathy Riches
$100
Aunty Tess, Grandma And Great Aunty Averil
$100
Anonymous
$100
Michael And Robyn Mcanany
$100
Janet Bell
$100
Janet Bell
$100
Anthony O'reilly
$100
Rose, Sandra, Martin And Robyn
$110
Paper Boat Press - Bake Sale
$122
Pam, Rose, Sandra, Martin And Robyn
$130
Red Rooster Charity Box Donations
$145
Carl Gibbs
$150
Rent Star Property Management
$150
Beavis & Bartels Newstead Towers Employee Contributions
$185
Sjaccountants (steve & Bry)
$200
Lyn Morrice
$200
Cr Matt Constance - Moreton Bay Regional Council
$200
The Ascough Family
$200
Lyn Morrice
$200
Des & Kathy Riches
$200
Fgss Disco Glow Product Sales
$220
"the Plant Bunker" Book Sale
$220
Stephanie & Celso Perez
$250
Jill, Jeremy And Jonah
$250
Crazy Hair Stall
$250
Matt Hendra For Henry Schein
$250
Lyn Morrice (grandma)
$250
Fathers Day Stall
$286
Nattrass, Manson, Morrice Families
$300
Wanderers Travel Co
$300
Fgss Disco - Glow Products Sales
$307
Hilder Road State School Car Boot Sale
$322
Anonymous
$323
Christmas Bake Sale Paperboat Press
$329
Andrew Erickson
$366
Proceeds From Sale Of Glow Products Fgss Disco
$400
Carols By Glowstick At Mcdowall State School
$442
Ferny Grove State School Disco
$447
Brisbane Marathon Volunteers
$450
Averil Nattrass
$500
Cam
$500
Aunty Averil
$500
Fairview Rsl Care
$500
Mackenzie Watson
$510
Kylie Johnson
$516
The Johnsons And The Dooleys
$570
Michelle Morrice
$582
Glen Sales And Penelope Kirk
$600
Mcdowall State School
$600
Beavis & Bartell Employee Contributions
$600
