Hope for Alec

Alec has Sanfilippo Syndrome Type C. Without treatment, he will not live to adulthood. You can help children like Alec by contributing to our campaign to raise funds for research into this childhood dementia.

Alec has Sanfilppo Syndrome Type C.  (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000. All funds raised via the Hope for Alec campaign will be put towards Type C research.

Alec loves camping. He likes to run but these days is unsteady on his feet. His mum, Michelle, says a smile from Alec makes the hardships of the day dissapear. If only Sanfilippo would dissapear!

You can help

Make an online donation

Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.

Host a fundraiser

Thare are lots of ways you can fundraise for the Hope for Alec campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here

Read more about Alec's story here

Follow Alec’s FB page here

Watch video of Alec’s mum Michelle sharing her family’s story here

A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal


Vinaya Lakkoju

Hope this helps. Sending love.


Mahalah’s Family

Big hugs to Alec. Love from the Dolby family


Anna Laegel


Brisbane Marathon Volunteers


Elizabeth Farrell


Elizabeth Farrell


Emma & Paul


Bryce Saltmarsh

I’m in awe of you Alec and Michelle.


Jack Tuttle

Heroes Hollywood


Ellen Rosenblatt


Gen Olsen


Katherine Roberts Roberts


Fiona Lambert Lambert


James Alan Macarthur Bowman Bowman


Claudia Murray

With heart felt love to you x


The Plant Bunker

Book sale 📚


Naomi Miller

Your OLD music teacher who misses big ALEC hugs


Josephine Devenish-meares

Thank you Alice for sharing Alec's story with us at MSM.


Genevieve Mcilwain


Ferny Grove State High School Student Council

two fundraisers held at school, organised by student council - Jellybean count and Sausage sizzle


Mary Sheppard


The Reids

For my little mate Alec.


Emma Kirkman


Jane Keating

Best wishes Alec.




Marg Frame



Drag Queen Bingo Fundraiser


Masters Bbq Fundraiser


Bbq Anaconda Everton Park (hope For Alec)


Macdowall State School Mothers Day Stall


#10for$10 Alec Birthday Campaign


Anytime Fitness - Albany Creek


Owen Nattrass


Ferny Grove State School


Ferny Grove State School


Ferny Grove State School


Ferny Grove State School Student Council Disco


Michael Brown - Modplumb Solutions


Tough Mudder For A Tough Mother 2018


Drag Queen Bingo Ticket Sales & Pizza


Drag Queen Bingo Event


Beavis & Bartels Scuh Employee Contributions


Hope For Alec Trivia Night


Tough Mudder 2016


Trivia Night


Tough Mudder For A Tough Mudder


Brisbane Tough Mudder 2017


Kylie & Marty - Ginger & Archer


Des & Kathy Riches


Aunty Tess, Grandma And Great Aunty Averil




Michael And Robyn Mcanany


Janet Bell


Janet Bell


Anthony O'reilly


Rose, Sandra, Martin And Robyn


Paper Boat Press - Bake Sale


Pam, Rose, Sandra, Martin And Robyn


Red Rooster Charity Box Donations


Carl Gibbs


Rent Star Property Management


Beavis & Bartels Newstead Towers Employee Contributions


Sjaccountants (steve & Bry)


Lyn Morrice


Cr Matt Constance - Moreton Bay Regional Council


The Ascough Family


Lyn Morrice


Des & Kathy Riches


Fgss Disco Glow Product Sales


"the Plant Bunker" Book Sale


Stephanie & Celso Perez


Jill, Jeremy And Jonah


Crazy Hair Stall


Matt Hendra For Henry Schein


Lyn Morrice (grandma)


Fathers Day Stall


Nattrass, Manson, Morrice Families


Wanderers Travel Co


Fgss Disco - Glow Products Sales


Hilder Road State School Car Boot Sale




Christmas Bake Sale Paperboat Press


Andrew Erickson


Proceeds From Sale Of Glow Products Fgss Disco


Carols By Glowstick At Mcdowall State School


Ferny Grove State School Disco


Brisbane Marathon Volunteers


Averil Nattrass




Aunty Averil


Fairview Rsl Care


Mackenzie Watson


Kylie Johnson


The Johnsons And The Dooleys


Michelle Morrice


Glen Sales And Penelope Kirk


Mcdowall State School


Beavis & Bartell Employee Contributions


Ferny Grove School Fundraising


Steven James Accountants Pty Ltd