Hope for Alec
Alec has Sanfilippo Syndrome Type C. Without treatment, he will not live to adulthood. You can help children like Alec by contributing to our campaign to raise funds for research into this childhood dementia.
Alec has Sanfilppo Syndrome Type C. (There are four types of MPS III Sanfilippo Syndrome including Types A, B, C, D). Type C occurs in only 1 in every 1.5 million live births, while Types A and B occur in 1: 70,000. All funds raised via the Hope for Alec campaign will be put towards Type C research.
Alec loves camping. He likes to run but these days is unsteady on his feet. His mum, Michelle, says a smile from Alec makes the hardships of the day dissapear. If only Sanfilippo would dissapear!
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
Thare are lots of ways you can fundraise for the Hope for Alec campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
Read more about Alec's story here
Watch video of Alec’s mum Michelle sharing her family’s story here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
$105
Vinaya Lakkoju
$105
Mahalah’s Family
Big hugs to Alec. Love from the Dolby family
$53
Anna Laegel
$180
Brisbane Marathon Volunteers
$50
Elizabeth Farrell
$53
Elizabeth Farrell
$53
Emma & Paul
$105
Bryce Saltmarsh
I’m in awe of you Alec and Michelle.
$179
Jack Tuttle
Heroes Hollywood
$16
Ellen Rosenblatt
$53
Gen Olsen
$42
Katherine Roberts Roberts
$26
Fiona Lambert Lambert
$105
James Alan Macarthur Bowman Bowman
$105
Claudia Murray
With heart felt love to you x
$976
The Plant Bunker
Book sale 📚
$5
Naomi Miller
Your OLD music teacher who misses big ALEC hugs
$11
Josephine Devenish-meares
Thank you Alice for sharing Alec's story with us at MSM.
$16
Genevieve Mcilwain
$240
Ferny Grove State High School Student Council
two fundraisers held at school, organised by student council - Jellybean count and Sausage sizzle
$20
Mary Sheppard
$53
The Reids
For my little mate Alec.
$2
Emma Kirkman
$16
Jane Keating
Best wishes Alec.
$2
Anonymous
$105
Marg Frame
❤️
$1.29k
Drag Queen Bingo Fundraiser
$1.32k
Masters Bbq Fundraiser
$1.33k
Bbq Anaconda Everton Park (hope For Alec)
$1.44k
Macdowall State School Mothers Day Stall
$1.51k
#10for$10 Alec Birthday Campaign
$1.53k
Anytime Fitness - Albany Creek
$2k
Owen Nattrass
$2.41k
Ferny Grove State School
$2.7k
Ferny Grove State School
$2.7k
Ferny Grove State School
$2.95k
Ferny Grove State School Student Council Disco
$3k
Michael Brown - Modplumb Solutions
$4.12k
Tough Mudder For A Tough Mother 2018
$4.76k
Drag Queen Bingo Ticket Sales & Pizza
$5.01k
Drag Queen Bingo Event
$5.36k
Beavis & Bartels Scuh Employee Contributions
$6.11k
Hope For Alec Trivia Night
$8.1k
Tough Mudder 2016
$9.78k
Trivia Night
$11.55k
Tough Mudder For A Tough Mudder
$12.02k
Brisbane Tough Mudder 2017
$100
Kylie & Marty - Ginger & Archer
$100
Des & Kathy Riches
$100
Aunty Tess, Grandma And Great Aunty Averil
$100
Anonymous
$100
Michael And Robyn Mcanany
$100
Janet Bell
$100
Janet Bell
$100
Anthony O'reilly
$110
Rose, Sandra, Martin And Robyn
$122
Paper Boat Press - Bake Sale
$130
Pam, Rose, Sandra, Martin And Robyn
$145
Red Rooster Charity Box Donations
$150
Carl Gibbs
$150
Rent Star Property Management
$185
Beavis & Bartels Newstead Towers Employee Contributions
$200
Sjaccountants (steve & Bry)
$200
Lyn Morrice
$200
Cr Matt Constance - Moreton Bay Regional Council
$200
The Ascough Family
$200
Lyn Morrice
$200
Des & Kathy Riches
$220
Fgss Disco Glow Product Sales
$220
"the Plant Bunker" Book Sale
$250
Stephanie & Celso Perez
$250
Jill, Jeremy And Jonah
$250
Crazy Hair Stall
$250
Matt Hendra For Henry Schein
$250
Lyn Morrice (grandma)
$286
Fathers Day Stall
$300
Nattrass, Manson, Morrice Families
$300
Wanderers Travel Co
$307
Fgss Disco - Glow Products Sales
$322
Hilder Road State School Car Boot Sale
$323
Anonymous
$329
Christmas Bake Sale Paperboat Press
$366
Andrew Erickson
$400
Proceeds From Sale Of Glow Products Fgss Disco
$442
Carols By Glowstick At Mcdowall State School
$447
Ferny Grove State School Disco
$450
Brisbane Marathon Volunteers
$500
Averil Nattrass
$500
Cam
$500
Aunty Averil
$500
Fairview Rsl Care
$510
Mackenzie Watson
$516
Kylie Johnson
$570
The Johnsons And The Dooleys
$582
Michelle Morrice
$600
Glen Sales And Penelope Kirk
$600
Mcdowall State School
$600
Beavis & Bartell Employee Contributions
$654
Ferny Grove School Fundraising
$700
Hope this helps. Sending love.