Hope for Isla & Jude
Isla and Jude are siblings with Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Isla and Jude by contributing to our campaign to raise funds for research into this childhood dementia.
Isla and Jude adore each other. It is unimaginable one may lose not only their sibling, but also their best friend. Without a treatment, they will not live to adulthood.
She loves swimming, singing, cuddling her therapy dog ‘Remy’, and playing with her brother, Jude. Isla has Sanfilippo Syndrome. Without treatment she will not live to adulthood.
Read more about this family in Good Weekend article here.
He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.
Read article about the challenges of life with two children battling Sanfilippo.
Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Nicholas W Shumeyko
Brenda And Bill Maloney And Family
Jo Greensill Greensill
Jordan And Tim Greer
Marnie Van Dyk
Jude's Birthday Facebook Fundraiser
Sam Donnell Birthday Facebook Fundraiser
S??bastien Izambard Official Fan Club
Mardi Darren Sofia Amali
Van Bogan Band Night Fundraiser
Tom Miles - Bunnings Bbq
Daniel And Madeline Engagement
Yasmin C 'meet Me In The Middle' 10k Walk
Toby Greenow's A Rat's Tale
Doggie Day @ The Bay Bbq & Stall
Kids Ot Bridge Run
Loom For Sanfilippo Aug 2015
Matteo Mini Marathon August 2015
Elisabeth Cavaleri Birthday Party Donations
Monica & Charles
North Curl Curl Netball Cake Stall May 2015
Nadine Miller - Sun Run 2016
Isla And Jude Birthday Campaign #10for10 And #8for8
Bunnings Balgowlah Cake Stall May 2015
Stylingthetribe Instagram Fashion Auction
Moziac Christmas Candle Fundraiser
Mozaic Christmas Fudnraiser
Sun Run - Nadine Miller
Kindy Kids Christmas Cards
Nikki's 250km Run For Isla And Jude
Carnival Fun Day Fundraiser
Jarrod Yates Growing Solo
Open Garden, Port Macquarie
Sony Music Australia
Dance For Hope Kids Disco (freshwater) Aug 2015
Sun Run 2015
Edgell Gems Run For Hope (sponsorship + Cake Stall) Bathurst Aug 2015
Pub2pub Fun Run (team Total) Aug 2015
Sun Run - Morgan And Oscar
Paddle For Isla & Jude - Fit State Of Mind Fundraiser
Back To School Trivia Night
Totally 80s Trivia
Donations Prior To January 2015
Oscar, Emma & Huey Stevenson
Violet, Jasmine And Zico
Nols, Stodd, Bella, Benny & Stitchy ??