Hope for Isla & Jude
Isla and Jude are siblings with Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Isla and Jude by contributing to our campaign to raise funds for research into this childhood dementia.
Isla and Jude adore each other. It is unimaginable one may lose not only their sibling, but also their best friend. Without a treatment, they will not live to adulthood.
Isla
She loves swimming, singing, cuddling her therapy dog ‘Remy’, and playing with her brother, Jude. Isla has Sanfilippo Syndrome. Without treatment she will not live to adulthood.
Read more about this family in Good Weekend article here.
Jude
He is full of affection and boundless energy. Jude makes friends wherever he goes. Jude has Sanfilippo Syndrome. Without treatment he will not live to adulthood.
Read article about the challenges of life with two children battling Sanfilippo.
Today, seemingly healthy, Isla and Jude will soon begin to deteriorate at a rapid pace. Their bodies will lose the ability to break down cellular waste causing severe brain damage and ultimately a painful and premature death.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
Thare are lots of ways you can fundraise for the Hope for Alec campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
Buy the Song
Buy the song, 'This Woman's Work'. All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
$11
Valentina Giannakopoulou
$26
Anonymous
$32
Charlie Hume
Hello, my name is Charlie Hume and I am in year 6 and go to Harbord Public School. Isla was in my year and I remember her very well. I hope she is doing OK and still remembers me. My mum (Rachel) and I donated this money and I can’t wait for that day when I hear there is a cure. Thank you, from my mum and me.
$26
Nicholas W Shumeyko
$53
Anonymous
$26
Emma Syme
My thoughts and hopes are with everyone affected by this genetic disorder xx
$158
Tanya Vassallo
$105
Brenda And Bill Maloney And Family
Thinking of you all at this special time of the year xxx
$16
Jo Greensill Greensill
$500
Sam West
With immense amounts of love, hope, and utter respect beaming from London xx
$26
Anonymous
$53
Anonymous
Only words: Love to you all.
$2
Anonymous
$1,000
Anonymous
$53
Adams' Family
$26
Linda Matthews
$16
Jane Keating
Keep smiling (and cuddling Remy) Isla and Jude.
$50
Jennifer Lee
Heartbreaking to read about your family in The Good Weekend. Pray for continued courage and a miracle. Pls take care of yourselves too.
$26
Kerry
Heartbreaking to watch the project and see your struggle and the difference in Isla. Big hugs to your family xxxx
$105
Vicki Gibson
Our hearts go out to you all - wishing you love and hope.
$105
Jordan And Tim Greer
After seeing the show tonight we couldn't help but contribute in some way. We hope for nothing but good things to come your way moving forward. Jordan and Tim.
$53
Imasha Hewavasam
$26
Anonymous
$26
Veronica Ilojoki
Hello just wanted to send al my love and hugs😍i now ho it go been sick i live periods Inn the hospitahl for many helht problems. Love from and hugs from a goung lady
$2
Anonymous
$105
Marnie Van Dyk
$1
Anonymous
$1.94k
Jude's Birthday Facebook Fundraiser
$330
Sam Donnell Birthday Facebook Fundraiser
$26
Lisa Jamieson
Very touched by your story. Our prayers are with you. In the middle of the Covid-19 pandemic our financial situation is rather uncertain but that is our only concern right now apart from staying home to avoid the infection rate getting worse. But this is not a hard thing for us compared to what you are going through! I’m deeply saddened and want to help. Our donation isn’t much but we really want to help. If we can donate more soon we will. Stay strong and keep up the wonderful fight and keep believing that miracles do happen!!!
$11
Ingrid Maack
$100
Anonymous
Dear Isla&Jude Your story is so heartbreaking but at the same time so inspiring to anyone who hears it. You have such wonderful mum and dad to fight for your life! I will pray for miracle to happen. Stay strong! With Love Anonymous me
$50
S??bastien Izambard Official Fan Club
$50
Paul Wilson
$50
Jillian Betts
$50
Tanya Kelly
$50
Alison Butt
$100
Mardi Darren Sofia Amali
$1.8k
Sonya Watson
$1,000
Nb Council
$1.02k
Van Bogan Band Night Fundraiser
$1.07k
Tom Miles - Bunnings Bbq
$1.08k
Daniel And Madeline Engagement
$1.19k
Yasmin C 'meet Me In The Middle' 10k Walk
$1.24k
Toby Greenow's A Rat's Tale
$1.32k
Doggie Day @ The Bay Bbq & Stall
$1.33k
Kids Ot Bridge Run
$1.42k
Loom For Sanfilippo Aug 2015
$1.53k
Matteo Mini Marathon August 2015
$1.78k
Elisabeth Cavaleri Birthday Party Donations
$2k
The Jayatilakes
$2k
Monica & Charles
$2.19k
North Curl Curl Netball Cake Stall May 2015
$2.41k
Nadine Miller - Sun Run 2016
$2.6k
Isla And Jude Birthday Campaign #10for10 And #8for8
$2.63k
Runforhope City2surf
$2.82k
Bunnings Balgowlah Cake Stall May 2015
$3k
Stylingthetribe Instagram Fashion Auction
$3k
Moziac Christmas Candle Fundraiser
$3.3k
Mozaic Christmas Fudnraiser
$3.52k
Sun Run - Nadine Miller
$3.85k
Kindy Kids Christmas Cards
$3.93k
Nikki's 250km Run For Isla And Jude
$4.19k
Carnival Fun Day Fundraiser
$5k
Jarrod Yates Growing Solo
$5.12k
Open Garden, Port Macquarie
$5.44k
Sony Music Australia
$6.5k
Dance For Hope Kids Disco (freshwater) Aug 2015
$6.93k
Sun Run 2015
$7.11k
Edgell Gems Run For Hope (sponsorship + Cake Stall) Bathurst Aug 2015
$7.16k
Pub2pub Fun Run (team Total) Aug 2015
$7.63k
Sun Run - Morgan And Oscar
$11.83k
Paddle For Isla & Jude - Fit State Of Mind Fundraiser
$12.5k
Anonymous
$18k
Back To School Trivia Night
$22k
Totally 80s Trivia
$50.37k
Donations Prior To January 2015
$20
Alison Treacher
$25
Anna
$25
Kim Black
$25
Michelle Clark
$25
Vanessa
$30
Oscar, Emma & Huey Stevenson
$30
Violet, Jasmine And Zico
$30
Tina
$40
Ingrid Maack
$50
Liam Flynn
$50
Nols, Stodd, Bella, Benny & Stitchy ??
$50
Penny Treacy
$50
Erene K
$25
Fernando Montanelli
$25
Anna
$25
Tanya
$25
Peter
$25
Joe And Leanne Zautsen
$25
Tilly And Her Grandma
$25
Julia Svanberg
$30
Janice Ho
$50
Elsie Houston
$50
Hello! I saw your story on youtube. Sending hope from Greece. All the best to you, Valentina