Isla & Jude Donnell
Isla and Jude are siblings with Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Isla and Jude by contributing to our campaign to raise funds for research into this childhood dementia.
Isla and Jude adore each other. It is unimaginable one may lose not only their sibling, but also their best friend. Without a treatment, they will not live to adulthood.
When our son, Jude, was born in 2011 we felt our family was complete. Big sister, Isla, who was just under 2 at the time, fell in love with Jude immediately as did we all. We considered ourselves blessed having two happy, healthy children and we had such hope for our future. Isla loves cuddles with her therpay dog Remy and Jude is full of affection and makes friends wherever he goes.
When Isla was three we received the devastating news that turned our world upside down. She had Sanfilippo syndrome. Unfortunately, 4 weeks after Isla’s initial diagnosis we learnt that Jude had inherited this dreadful disease too and that both children were type A. The English language does not contain words that adequately describe the impact that this double diagnosis has had on our family, we were absolutely shattered and devastated and this is beyond anything we ever imagined possible.
At the moment there is no effective treatment available to “Sanfilippo children”. But around the world there are dedicated scientists, researchers, patient groups and families devoting their lives to changing this. We are proud to join this movement and will fight and fight and fight not only for our children, but for the others living under the spectre of Sanfilippo and future families who have not yet heard of this disease but will one day be faced with this agony.
Read more about this family in Good Weekend article here.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
There are lots of ways you can fundraise for the Hope for Isla and Jude campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
Buy the Song
Buy the song, 'This Woman's Work'. All proceeds from the sale of this song go directly to the Sanfilippo Children’s Foundation.
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
All the very best for your journey. Sending love from across the pacific xo
Sending love & hope
Hello! I saw your story on youtube. Sending hope from Greece. All the best to you, Valentina
Hello, my name is Charlie Hume and I am in year 6 and go to Harbord Public School. Isla was in my year and I remember her very well. I hope she is doing OK and still remembers me. My mum (Rachel) and I donated this money and I can’t wait for that day when I hear there is a cure. Thank you, from my mum and me.
Nicholas W Shumeyko
My thoughts and hopes are with everyone affected by this genetic disorder xx
Brenda And Bill Maloney And Family
Thinking of you all at this special time of the year xxx
Jo Greensill Greensill
With immense amounts of love, hope, and utter respect beaming from London xx
Only words: Love to you all.
Keep smiling (and cuddling Remy) Isla and Jude.
Heartbreaking to read about your family in The Good Weekend. Pray for continued courage and a miracle. Pls take care of yourselves too.
Heartbreaking to watch the project and see your struggle and the difference in Isla. Big hugs to your family xxxx
Our hearts go out to you all - wishing you love and hope.
Jordan And Tim Greer
After seeing the show tonight we couldn't help but contribute in some way. We hope for nothing but good things to come your way moving forward. Jordan and Tim.
Hello just wanted to send al my love and hugs😍i now ho it go been sick i live periods Inn the hospitahl for many helht problems. Love from and hugs from a goung lady
Marnie Van Dyk
Jude's Birthday Facebook Fundraiser
Sam Donnell Birthday Facebook Fundraiser
Very touched by your story. Our prayers are with you. In the middle of the Covid-19 pandemic our financial situation is rather uncertain but that is our only concern right now apart from staying home to avoid the infection rate getting worse. But this is not a hard thing for us compared to what you are going through! I’m deeply saddened and want to help. Our donation isn’t much but we really want to help. If we can donate more soon we will. Stay strong and keep up the wonderful fight and keep believing that miracles do happen!!!
Dear Isla&Jude Your story is so heartbreaking but at the same time so inspiring to anyone who hears it. You have such wonderful mum and dad to fight for your life! I will pray for miracle to happen. Stay strong! With Love Anonymous me
S??bastien Izambard Official Fan Club
Mardi Darren Sofia Amali
Van Bogan Band Night Fundraiser
Tom Miles - Bunnings Bbq
Daniel And Madeline Engagement
Yasmin C 'meet Me In The Middle' 10k Walk
Toby Greenow's A Rat's Tale
Doggie Day @ The Bay Bbq & Stall
Kids Ot Bridge Run
Loom For Sanfilippo Aug 2015
Matteo Mini Marathon August 2015
Elisabeth Cavaleri Birthday Party Donations
Monica & Charles
North Curl Curl Netball Cake Stall May 2015
Nadine Miller - Sun Run 2016
Isla And Jude Birthday Campaign #10for10 And #8for8
Bunnings Balgowlah Cake Stall May 2015
Stylingthetribe Instagram Fashion Auction
Moziac Christmas Candle Fundraiser
Mozaic Christmas Fudnraiser
Sun Run - Nadine Miller
Kindy Kids Christmas Cards
Nikki's 250km Run For Isla And Jude
Carnival Fun Day Fundraiser
Jarrod Yates Growing Solo
Open Garden, Port Macquarie
Sony Music Australia
Dance For Hope Kids Disco (freshwater) Aug 2015
Sun Run 2015
Edgell Gems Run For Hope (sponsorship + Cake Stall) Bathurst Aug 2015
Pub2pub Fun Run (team Total) Aug 2015
Sun Run - Morgan And Oscar
Paddle For Isla & Jude - Fit State Of Mind Fundraiser
Back To School Trivia Night
Totally 80s Trivia
Donations Prior To January 2015
Oscar, Emma & Huey Stevenson
Violet, Jasmine And Zico
Nols, Stodd, Bella, Benny & Stitchy ??