Isla & Jude Donnell
Isla and Jude are siblings with Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Isla and Jude by contributing to our campaign to raise funds for research into this childhood dementia.
Isla and Jude adore each other. It is unimaginable one may lose not only their sibling, but also their best friend. Without a treatment, they will not live to adulthood.
When our son, Jude, was born in 2011 we felt our family was complete. Big sister, Isla, who was just under 2 at the time, fell in love with Jude immediately as did we all. We considered ourselves blessed having two happy, healthy children and we had such hope for our future. Isla loves cuddles with her therpay dog Remy and Jude is full of affection and makes friends wherever he goes.
When Isla was three we received the devastating news that turned our world upside down. She had Sanfilippo syndrome. Unfortunately, 4 weeks after Isla’s initial diagnosis we learnt that Jude had inherited this dreadful disease too and that both children were type A. The English language does not contain words that adequately describe the impact that this double diagnosis has had on our family, we were absolutely shattered and devastated and this is beyond anything we ever imagined possible.
At the moment there is no effective treatment available to “Sanfilippo children”. But around the world there are dedicated scientists, researchers, patient groups and families devoting their lives to changing this. We are proud to join this movement and will fight and fight and fight not only for our children, but for the others living under the spectre of Sanfilippo and future families who have not yet heard of this disease but will one day be faced with this agony.
Read more about this family in Good Weekend article here.
You can help
Make an online donation
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Host a fundraiser
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Nicholas W Shumeyko
Brenda And Bill Maloney And Family
Jo Greensill Greensill
Jordan And Tim Greer
Marnie Van Dyk
Jude's Birthday Facebook Fundraiser
Sam Donnell Birthday Facebook Fundraiser
S??bastien Izambard Official Fan Club
Mardi Darren Sofia Amali
Van Bogan Band Night Fundraiser
Tom Miles - Bunnings Bbq
Daniel And Madeline Engagement
Yasmin C 'meet Me In The Middle' 10k Walk
Toby Greenow's A Rat's Tale
Doggie Day @ The Bay Bbq & Stall
Kids Ot Bridge Run
Loom For Sanfilippo Aug 2015
Matteo Mini Marathon August 2015
Elisabeth Cavaleri Birthday Party Donations
Monica & Charles
North Curl Curl Netball Cake Stall May 2015
Nadine Miller - Sun Run 2016
Isla And Jude Birthday Campaign #10for10 And #8for8
Bunnings Balgowlah Cake Stall May 2015
Stylingthetribe Instagram Fashion Auction
Moziac Christmas Candle Fundraiser
Mozaic Christmas Fudnraiser
Sun Run - Nadine Miller
Kindy Kids Christmas Cards
Nikki's 250km Run For Isla And Jude
Carnival Fun Day Fundraiser
Jarrod Yates Growing Solo
Open Garden, Port Macquarie
Sony Music Australia
Dance For Hope Kids Disco (freshwater) Aug 2015
Sun Run 2015
Edgell Gems Run For Hope (sponsorship + Cake Stall) Bathurst Aug 2015
Pub2pub Fun Run (team Total) Aug 2015
Sun Run - Morgan And Oscar
Paddle For Isla & Jude - Fit State Of Mind Fundraiser
Back To School Trivia Night
Totally 80s Trivia
Donations Prior To January 2015
Oscar, Emma & Huey Stevenson
Violet, Jasmine And Zico
Nols, Stodd, Bella, Benny & Stitchy ??