RESEARCH NEWS

Read the latest information about our research program and global research developments. 

Research News

Orchard Therapeutics Update: First patient treated

Incredible news out of the UK with the announcement that the first Sanfilippo patient has been treat...
Wednesday, 29th Apr 20
Research News

COVID-19 Impact on Sanfilippo families and researchers

During this unprecedented time, we want to update you on how the COVID-19 situation is impacting chi...
Wednesday, 15th Apr 20
Research News

Digital Divides: Hacking the Human Genome (2SER All Things E...

LISTEN to this powerful 2SER All Things Equal podcast entitled 'Digital Divides: Hacking the Human G...
Thursday, 19th Mar 20
Research News

Rare disease in spotlight with National Strategic Action Pla...

The Hon Greg Hunt, Federal Minister for Health, has today announced $3.3 million to implement the fi...
Wednesday, 26th Feb 20
Research News

Biotechnology company, Allievex Corporation, enters licensin...

BioMarin has licenced its enzyme replacement therapy that is in clinical trial for Sanfilippo type B...
Friday, 25th Oct 19
Research News

Nature Journal: What to do when your grant is rejected

Our Foundation's research manager, Kristina Elvidge, is quoted in this article about the medical gra...
Friday, 25th Oct 19
Research News

New Abeona trial for older children

The original Abeona Sanfilippo Type A gene therapy trial (ABT-001) changed its criteria at the begin...
Wednesday, 18th Sep 19
Research News

Brain in a Dish: Adelaide's landmark study to cure child dem...

The Adelaide Advertiser: South Australian researchers will grow brain cells in a dish to fast-track ...
Monday, 26th Aug 19
Research News

VIDEO: Channel 10 Brain in a Dish project

Channel 10 National News Broadcast about the Sanfilippo Children's Foundation's $2.5 million 'Brain ...
Monday, 26th Aug 19
Research News

RESEARCH UPDATE: Study discovers best way to deliver gene th...

In 2016 the Sanfilippo Children’s Foundation awarded AUD$90,000 towards a project to improve deliv...
Monday, 26th Aug 19
Research News

$2.5 million for project to tackle Sanfilippo Syndrome

The Sanfilippo Children’s Foundation is thrilled to secure AUD$2 million of Government funding and...
Saturday, 24th Aug 19
Research News

The gene therapy revolution is here (Medical Xpress)

Gene therapy, for so long something that belonged to the future, has just hit the streets. Medical X...
Wednesday, 5th Jun 19
Research News

The gene therapy revolution is here. Medicine scrambling to ...

This article is an edited extract from Elizabeth Finkel’s address 'Gene therapy: cure but at what ...
Wednesday, 5th Jun 19
Research News

Collaborative Brain In A Dish Project to Search for New Trea...

Research Australia's journal 'Inspire' shares news of the Sanfilippo Children's Foundation's MRFF go...
Wednesday, 5th Jun 19
Research News

VIDEO: Seven News: Eugene Labs

Channel 7 News told the story of Matilda Page in a news story about the launch of an at-home, clinic...
Wednesday, 5th Jun 19
Research News

Eugene Labs launches home kit for parents to test for geneti...

Genetic and health start-up Eugene Labs has launched its at-home, clinical-grade genetic test servic...
Wednesday, 5th Jun 19
Research News

VIDEO: Future Proof: Genetic Screening (Channel 9 News)

Our Executive Director, Megan Donnell, shared her personal story with Channel 9 News yesterday for a...
Wednesday, 5th Jun 19
Research News

Research study: Is the eye a window to the brain for Sanfili...

Researchers in Adelaide have started an exciting research project to investigate changes in the eyes...
Wednesday, 5th Jun 19
Research News

SCF Advocacy award win

Megan Donnell, executive director of the Sanfilippo Children's Foundation, whose fight to progress r...
Wednesday, 5th Jun 19
Media Highlights

Chasing the Miracle (The Monthly)

"For Megan Donnell’s family, the DNA-altering revolution cannot come soon enough." Written by Scie...
Monday, 25th Feb 19
Research News

WORLD Symposium Report 2019

In February Sanfilippo Children’s Foundation Executive Director Megan Donnell and Research Manager...
Wednesday, 20th Feb 19
Media Highlights

Strong Foundations (Nature Journal)

In 2016 freelance science writer, James Mitchell Crowe, had this article published in the British m...
Thursday, 22nd Sep 16