Speaker opportunity at virtual NORD conference

13 Jan 2021

Interested in presenting at the 2021 Living Rare, Living Stronger NORD Patient and Family Forum?

The National Organization for Rare Disorders (NORD), ased in the USA, is seeking individuals willing to share real-life experiences with rare diseases to speak at its upcoming virtual Living Rare, Living Stronger NORD Patient and Family Forum.

The interactive, patient-focused forum will be held online June 26-27. The deadline to apply for a speaking role is Jan. 15 2021.

Go here to apply.

This impactant annual conference provides patients and families with practical tools for living fully with a rare disease, with an emphasis on newly diagnosed and long-term patients, and caregivers. 

Opportunities to speak will include addressing all international conference participants as well as those in wellness, which aim to inspire and empower patients and families through examples of physician and patient collaboration, and stories about surmounting challenges

For more information, write to events@rarediseases.org. Please also keep the Sanfilippo Children’s Foundation in the loop regarding your submission.