Research News
Research News
Research helps explain autism-like symptoms in Sanfilippo
Research published in the prestigious journal Nature Communications has helped reveal what causes so...
Wednesday, 21st Jul 21
Research News
Brain signalling in early-stage Sanfilippo: new insights fro...
A study led by Professor Alexey Pshezhetsky (University of Montreal) has investigated the role of sy...
Wednesday, 14th Jul 21
Research News
A Spotlight on Attenuated Sanfilippo
Research into attenuated forms of Sanfilippo Syndrome has been given a boost with recent funding to ...
Thursday, 8th Jul 21
Fundraising News
Fundraising News
Meet the Larapinta Ladies
These four ladies are taking on the challenge of the Larapinta trail and trying to raise much needed...
Wednesday, 2nd Jun 21
Fundraising News
Samantha is hiking in honour of her sister Jessie Mei Mei
Sammy is taking on the Hike for Hope in Larapinta in a couple of weeks in honour of her sister Jessi...
Tuesday, 18th May 21
Fundraising News
These kids are the future of philanthropy
School students, Milla Funnell, Mattie & Tudor Middleton, have been involved in an amazing fundrais...
Monday, 3rd May 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
