Research News
Research News
Testing optimised gene therapy for Sanfilippo type B
Newly-published research, led by Professor Coy Heldermon at the University of Florida, and partly fu...
Monday, 12th Sep 22
Research News
The effects of high heparan sulfate levels in the lung in Sa...
A recently-published study, led by a team in France, has looked at how elevated HS in disorders like...
Tuesday, 23rd Aug 22
Research News
Prof Kim Hemsley and Dr Adeline Lau: Celebrating 20 years wo...
Twenty years ago, Kim Hemsley and Adeline Lau began their work at the Women’s and Children’s Hos...
Wednesday, 17th Aug 22
Fundraising News
Research News
From misdiagnosis to early diagnosis: can we rewrite the sto...
Improving early diagnosis would remove the long, distressing diagnostic odyssey for families. It wou...
Monday, 27th Jun 22
Fundraising News
Tom's Tent Time
Long-time supporter of the foundation Tom Miles has set himself a lockdown challenge. For a whole mo...
Sunday, 29th Aug 21
Fundraising News
Meet the Larapinta Ladies
These four ladies are taking on the challenge of the Larapinta trail and trying to raise much needed...
Wednesday, 2nd Jun 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
