Research News
Research News
The importance of caregivers’ perspectives when evaluating...
A recent study has collected data from caregivers of patients with Sanfilippo to support clinical ou...
Tuesday, 17th May 22
Research News
Clinical trial updates from WORLDSymposium
The annual international Lysosomal Storage Diseases conference WORLDSymposium was held in San Diego ...
Wednesday, 20th Apr 22
Research News
A study of Fluoxetine in mice with Sanfilippo type A
Researchers from TIGEM, Federico II University, and IBBC in Italy, have studied a molecule called Fl...
Wednesday, 30th Mar 22
Fundraising News
Fundraising News
Tom's Tent Time
Long-time supporter of the foundation Tom Miles has set himself a lockdown challenge. For a whole mo...
Sunday, 29th Aug 21
Fundraising News
Meet the Larapinta Ladies
These four ladies are taking on the challenge of the Larapinta trail and trying to raise much needed...
Wednesday, 2nd Jun 21
Fundraising News
Samantha is hiking in honour of her sister Jessie Mei Mei
Sammy is taking on the Hike for Hope in Larapinta in a couple of weeks in honour of her sister Jessi...
Tuesday, 18th May 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
