Research News
Research News
Rare disease in spotlight with National Strategic Action Pla...
The Hon Greg Hunt, Federal Minister for Health, has today announced $3.3 million to implement the fi...
Wednesday, 26th Feb 20
Research News
Biotechnology company, Allievex Corporation, enters licensin...
BioMarin has licenced its enzyme replacement therapy that is in clinical trial for Sanfilippo type B...
Friday, 25th Oct 19
Research News
Nature Journal: What to do when your grant is rejected
Our Foundation's research manager, Kristina Elvidge, is quoted in this article about the medical gra...
Friday, 25th Oct 19
Fundraising News
Fundraising News
Grandparent Power: Sanfilippo's Secret Weapon (Source Kids M...
There are many services available to help children with disabilities and their parents in Australia,...
Sunday, 27th Oct 19
Fundraising News
Border Charity Night raising hope Jobe will defy the odds (B...
On Friday night Wodonga restaurant Miss Amelie will host a fundraiser for Sanfilippo and #hopeforjob...
Wednesday, 3rd Jul 19
Fundraising News
A symphony of hope for Tilly (6PR Radio WA)
Kate Page, mother to Matilda Page, who is battling Sanfilippo Syndrome talks to radio presenter Chri...
Wednesday, 26th Jun 19
Media Highlights
Media Highlights
VIDEO: Childhood Dementia: Heartbreak and Hope (TEDx)
Executive Director, Megan Donnell, recently delivered a powerful talk as part of aTedX Youth event i...
Thursday, 11th Jul 19
Media Highlights
RADIO: ABC Radio Focus program on gene therapy (ABC Radio)
ABC RADIO interview with Megan Donnell, and Elizabeth Finkel, science journalist, founder of Cosmos ...
Friday, 7th Jun 19
Media Highlights
VIDEO: Elizabeth Finkel on gene therapy (National Press Club...
Science journalist, 2019 Australian Society for Medical Research (ASMR) Medalist and Cosmos Magazine...
Wednesday, 5th Jun 19
