Research News
Research News
New mouse model helps researchers see into the Sanfilippo ty...
Recently, researchers in the USA, in collaboration with biotech company Phoenix Nest Inc, developed ...
Friday, 21st Jan 22
Research News
Supporting patients with Sanfilippo using music
A study led by researchers at the University of Deusto in Spain has described three patients with Sa...
Wednesday, 5th Jan 22
Research News
Profile a Sanfilippo Researcher: Dr. Elvira De Leonibus
We are very grateful to all the researchers around the world working tirelessly to solve Sanfilippo....
Wednesday, 8th Dec 21
Fundraising News
Fundraising News
Tom's Tent Time
Long-time supporter of the foundation Tom Miles has set himself a lockdown challenge. For a whole mo...
Sunday, 29th Aug 21
Fundraising News
Meet the Larapinta Ladies
These four ladies are taking on the challenge of the Larapinta trail and trying to raise much needed...
Wednesday, 2nd Jun 21
Fundraising News
Samantha is hiking in honour of her sister Jessie Mei Mei
Sammy is taking on the Hike for Hope in Larapinta in a couple of weeks in honour of her sister Jessi...
Tuesday, 18th May 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
