Research News
Research News
World Sanfilippo Awareness Day
November 16 is World Sanfilippo Awareness Day. Now in its second year, this international day aims t...
Thursday, 12th Nov 20
Research News
Sanfilippo clinical trial factsheets now available
The Foundation recently developed Sanfilippo clinical trial factsheets for families, which are avail...
Thursday, 8th Oct 20
Research News
Exciting Progress For Our Community
Exciting progress for our community and a new chapter for Meg Donnell and the Sanfilippo Children’...
Tuesday, 25th Aug 20
Fundraising News
Fundraising News
Super sibling Sienna Morrice steps up
Super sibling Sienna Morrice is stepping up this November in honour of her little brother Alec who i...
Wednesday, 25th Nov 20
Fundraising News
Kirkman Kids do Kms for Sanfilippo
Wednesday, 18th Nov 20
Fundraising News
Philippa Silva Steps for Sanfilippo
Philippa Silva is the Foundation's family engagement person. She is also the mother of grown-up trip...
Friday, 6th Nov 20
Media Highlights
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
Fundraising News
How an insidious, untreatable disease broke the heart of a B...
STEPS FOR SKYE bumps Covid-19 off the front page in ‘The Ballarat Courier’. Thank you to this r...
Tuesday, 28th Jul 20
