Research News
Research News
Profile a Sanfilippo Researcher: Ewan Gerken
Meet Ewan Gerken, a PhD Candidate at The University of Adelaide. Ewan uses zebrafish models of Sanfi...
Thursday, 16th Nov 23
Research News
Inaugural Australian Lysosomal Disease Summit
The Sanfilippo Children’s Foundation team were delighted to be a part of the inaugural Lysosomal D...
Tuesday, 7th Nov 23
Research News
Insights into the economic impact of Sanfilippo syndrome
Sanfilippo syndrome is a rare and fatal disease with no current treatment or cure. It not only affec...
Tuesday, 10th Oct 23
Fundraising News
Fundraising News
Join the cast of 'Adventure All Stars' and support our work!
In exciting news Sanfilippo Children's Foundation is a charity partner for the next season of Advent...
Wednesday, 16th Aug 23
Fundraising News
82 years young and smashing 5km a day in May
Ron Hosking turned 82 years old in March this year. Instead of putting his feet up he is putting on ...
Thursday, 18th May 23
Research News
From misdiagnosis to early diagnosis: can we rewrite the sto...
Improving early diagnosis would remove the long, distressing diagnostic odyssey for families. It wou...
Monday, 27th Jun 22
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
