Research News
Research News
Gene-corrected neural stem cells show promise in Sanfilippo ...
US researchers have used a combined stem cell and gene therapy approach in a mouse model of Sanfilip...
Monday, 30th Jan 23
Research News
Can resveratrol activate autophagy in Sanfilippo?
Researchers at the University of Gdansk in Poland have studied naturally occurring molecules that ac...
Wednesday, 11th Jan 23
Research News
The Year in Review: a year of progress and achievements
As 2022 draws to a close we take a look at the year’s highlights and look forward to what next yea...
Thursday, 29th Dec 22
Fundraising News
Research News
From misdiagnosis to early diagnosis: can we rewrite the sto...
Improving early diagnosis would remove the long, distressing diagnostic odyssey for families. It wou...
Monday, 27th Jun 22
Fundraising News
Tom's Tent Time
Long-time supporter of the foundation Tom Miles has set himself a lockdown challenge. For a whole mo...
Sunday, 29th Aug 21
Fundraising News
Meet the Larapinta Ladies
These four ladies are taking on the challenge of the Larapinta trail and trying to raise much needed...
Wednesday, 2nd Jun 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
