Research News
Research News
Dr Emma Parkinson-Lawrence
Meet Dr Emma Parkinson-Lawrence, a researcher at the University of South Australia who works on Sanf...
Tuesday, 4th Apr 23
Research News
Investigating vision loss in Sanfilippo type C mice
A recently published study has investigated the effects of Sanfilippo on the retina—a layer of cel...
Friday, 31st Mar 23
Research News
Sanfilippo syndrome Brain in a Dish project to continue with...
We are thrilled to announce that the Sanfilippo Brain in a Dish research team have been awarded a $7...
Wednesday, 15th Mar 23
Fundraising News
Fundraising News
82 years young and smashing 5km a day in May
Ron Hosking turned 82 years old in March this year. Instead of putting his feet up he is putting on ...
Thursday, 18th May 23
Research News
From misdiagnosis to early diagnosis: can we rewrite the sto...
Improving early diagnosis would remove the long, distressing diagnostic odyssey for families. It wou...
Monday, 27th Jun 22
Fundraising News
Tom's Tent Time
Long-time supporter of the foundation Tom Miles has set himself a lockdown challenge. For a whole mo...
Sunday, 29th Aug 21
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
