Research News
Research News
New research on Sanfilippo type B enzyme replacement therapy
Research led by Prof. Patricia Dickson, based at The Lundquist Institute and Washington University h...
Monday, 10th May 21
Research News
New research shows high rates of hip problems in Sanfilippo ...
While there is a significant focus on neurodegenerative symptoms, it is important to recognise that ...
Thursday, 22nd Apr 21
Research News
Research sheds light on brain health of Sanfilippo carriers
Associate Professor Kim Hemsley and her team of researchers from South Australia have published rese...
Monday, 22nd Mar 21
Fundraising News
Fundraising News
These kids are the future of philanthropy
School students, Milla Funnell, Mattie & Tudor Middleton, have been involved in an amazing fundrais...
Monday, 3rd May 21
Fundraising News
Superstar Supporters Swimming for Sanfilippo
Read about the amazing Alan Ramsay and his team of Sanfilippo Superstars making their second attempt...
Friday, 19th Mar 21
Fundraising News
Supporters complete their STEPS FOR SANFILIPPO
89 of our Sanfilippo Supporters set themselves a goal to complete their STEPS FOR SANFILIPPO this No...
Tuesday, 1st Dec 20
Media Highlights
Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
