Research News
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Research News
Australian Government says Sanfilippo syndrome is not ready ...
Hopes for a pathway for early diagnosis for Sanfilippo syndrome (MPS III) have been dealt a blow wit...
Tuesday, 23rd Jul 24
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Research News
Research into new gene therapy technology for Sanfilippo typ...
Researchers in the USA have explored the potential of a new gene therapy for Sanfilippo type C in th...
Monday, 22nd Jul 24
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Research News
Heparan Sulfate accepted as a biomarker to support Sanfilipp...
In February 2024, a vital workshop was held by the Reagan-Udall Foundation for the Food and Drug Adm...
Monday, 22nd Jul 24
Fundraising News
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Fundraising News
Join the cast of 'Adventure All Stars' and support our work!
In exciting news Sanfilippo Children's Foundation is a charity partner for the next season of Advent...
Wednesday, 16th Aug 23
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Fundraising News
82 years young and smashing 5km a day in May
Ron Hosking turned 82 years old in March this year. Instead of putting his feet up he is putting on ...
Thursday, 18th May 23
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Research News
From misdiagnosis to early diagnosis: can we rewrite the sto...
Improving early diagnosis would remove the long, distressing diagnostic odyssey for families. It wou...
Monday, 27th Jun 22
Media Highlights
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Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
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Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
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Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20