Research News
Research News
Orchard Therapeutics Update: First patient treated
Incredible news out of the UK with the announcement that the first Sanfilippo patient has been treat...
Wednesday, 29th Apr 20
Research News
COVID-19 Impact on Sanfilippo families and researchers
During this unprecedented time, we want to update you on how the COVID-19 situation is impacting chi...
Wednesday, 15th Apr 20
Research News
Digital Divides: Hacking the Human Genome (2SER All Things E...
LISTEN to this powerful 2SER All Things Equal podcast entitled 'Digital Divides: Hacking the Human G...
Thursday, 19th Mar 20
Fundraising News
Fundraising News
McCoombes family’s heartbreak and hope for four-year-old O...
The parents of a young boy dying of a rare and frightening genetic disease are calling on people to ...
Sunday, 28th Jun 20
Fundraising News
Grandparent Power: Sanfilippo's Secret Weapon (Source Kids M...
There are many services available to help children with disabilities and their parents in Australia,...
Sunday, 27th Oct 19
Fundraising News
Border Charity Night raising hope Jobe will defy the odds (B...
On Friday night Wodonga restaurant Miss Amelie will host a fundraiser for Sanfilippo and #hopeforjob...
Wednesday, 3rd Jul 19
Media Highlights
Media Highlights
VIDEO: Childhood Dementia: Heartbreak and Hope (TEDx)
Executive Director, Megan Donnell, recently delivered a powerful talk as part of aTedX Youth event i...
Thursday, 11th Jul 19
Media Highlights
RADIO: ABC Radio Focus program on gene therapy (ABC Radio)
ABC RADIO interview with Megan Donnell, and Elizabeth Finkel, science journalist, founder of Cosmos ...
Friday, 7th Jun 19
Media Highlights
VIDEO: Elizabeth Finkel on gene therapy (National Press Club...
Science journalist, 2019 Australian Society for Medical Research (ASMR) Medalist and Cosmos Magazine...
Wednesday, 5th Jun 19
