Research News

Important Update on the Sanfilippo Children's Foundation
Tuesday, 14th Jan 25

Improving communication in Sanfilippo - and how families can...
Friday, 22nd Nov 24

Study into speech and language in Sanfilippo
Friday, 11th Oct 24

Sanfilippo syndrome behavioural symptoms can benefit from pe...
Wednesday, 9th Oct 24

A fifth subtype of Sanfilippo?
Friday, 27th Sep 24

A comparison of gut microbiomes provides clues into GI sympt...
Friday, 13th Sep 24

Research into the effects of different gene therapy routes o...
Friday, 30th Aug 24

The impact of infection on neurodegeneration in Sanfilippo
Monday, 26th Aug 24

The impact of Sanfilippo on the respiratory system
Monday, 26th Aug 24

Australian Government says Sanfilippo syndrome is not ready ...
Tuesday, 23rd Jul 24
Fundraising News
Media Highlights

Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21

Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20

Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20