View a collection of our media highlights
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Media Highlights
Families’ heartache as tragic disease robs kids of memorie...
Noah’s Legacy of Love & Hope
For Brisbane couple, Julie and Craig Bevan, the pain of the loss o...
Wednesday, 21st Apr 21
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Media Highlights
All for Jane (The Border Mail)
The Border Mail - All for Jane: Jill Kohne is raising awareness of Sanfilippo Syndome, a rare form...
Saturday, 31st Oct 20
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Media Highlights
SHEPP LIFE RADIO SHOW & PODCAST: ANN THOMPSON'S SANFILIPPO S...
Ann Thompson shared her Sanfiilppo story in the Backstory segment on the SheppLife Radio Show and Po...
Monday, 12th Oct 20
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Media Highlights
ABC Radio National: Earshot podcast - "Beyond the Cure"
Listen to the ABC Radio National Earshot piece ‘Beyond The Cure - how one family went from a devas...
Saturday, 25th Jul 20
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Media Highlights
McCoombes family’s heartbreak and hope for four-year-old O...
The parents of a young boy dying of a rare and frightening genetic disease are calling on people to ...
Sunday, 28th Jun 20
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Media Highlights
The Project 2020 - Childhood Dementia
Network 10's 'The Project' revisited the Donnell family with an update on work of the Foundation and...
Thursday, 25th Jul 19
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Media Highlights
VIDEO: Childhood Dementia: Heartbreak and Hope (TEDx)
Executive Director, Megan Donnell, recently delivered a powerful talk as part of aTedX Youth event i...
Thursday, 11th Jul 19
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Media Highlights
A symphony of hope for Tilly (6PR Radio WA)
Kate Page, mother to Matilda Page, who is battling Sanfilippo Syndrome talks to radio presenter Chri...
Wednesday, 26th Jun 19
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Media Highlights
RADIO: ABC Radio Focus program on gene therapy (ABC Radio)
ABC RADIO interview with Megan Donnell, and Elizabeth Finkel, science journalist, founder of Cosmos ...
Friday, 7th Jun 19
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Media Highlights
VIDEO: Elizabeth Finkel on gene therapy (National Press Club...
Science journalist, 2019 Australian Society for Medical Research (ASMR) Medalist and Cosmos Magazine...
Wednesday, 5th Jun 19
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Media Highlights
Hope for Jobe Viral Video
Hope for Jobe Launched on 15 May (international MPS Awareness Day), the Koistinen family are part of...
Wednesday, 15th May 19
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Media Highlights
Chasing the Miracle (The Monthly)
"For Megan Donnell’s family, the DNA-altering revolution cannot come soon enough." Written by Scie...
Monday, 25th Feb 19
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Media Highlights
VIDEO: Channel 7 Sunrise Program
Channel 7's Sunrise program featured a television segment on the Donnell family and the TGA announce...
Friday, 12th May 17
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Media Highlights
VIDEO: The Sanfilippo Children's Foundation - Our Story so f...
Sanfilippo Children's Foundation... Our story so far! Meet the people behind the Foundation. This s...
Friday, 12th May 17
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Media Highlights
The Audacity of Hope (Good Weekend Magazine)
Why time is running out for the Donnell family... Meg and Al Donnell's two children have a devastati...
Tuesday, 7th Feb 17
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Media Highlights
VIDEO: 60 Minutes: Parent Power
Parent Power: A parent's love knows no bounds, especially when a child is diagnosed with a deadly di...
Tuesday, 7th Feb 17
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Media Highlights
Strong Foundations (Nature Journal)
In 2016 freelance science writer, James Mitchell Crowe, had this article published in the British m...
Thursday, 22nd Sep 16
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Media Highlights
VIDEO: The Project (Network 10) 'Race Against Time'
In 2014, The Project (Network 10) turned the spotlight on Sanfilippo with a story, entitled 'Race Ag...
Tuesday, 20th Oct 15
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Media Highlights
VIDEO: 'This Woman's Work' (Hope for Isla and Jude)
Please go to http://www.hopeforislaandjude.com to buy the song "This Woman's Work" and donate. Isla ...
Friday, 5th Dec 14