McCoombes family’s heartbreak and hope for four-year-old Oliver with Sanfilippo syndrome (Courier Mail)

28 Jun 2020

OLIVER is just four-years-old but in the years to come it’s likely he will forget who his parents are. The Ipswich boy has been diagnosed with a type of childhood dementia, Sanfilippo syndrome, a condition so rare some doctors have not even heard of it.

Phillip and Catherine McCoombes received the life-changing diagnosis in March after a nine month journey to investigate developmental delays.

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