Our Purpose

The purpose of the Sanfilippo Children’s Foundation is to drive research for a world without Sanfilippo Syndrome.

 

This will be achieved by:

  • Funding research which might halt progression of the condition, reverse damage caused or improve quality of life for patients with the condition;
  • Providing clear, accurate and up-to-date information to diagnosed families regarding the disease, therapeutic avenues and current research programs;
  • Raising awareness of the disease amongst the community, including the medical profession;
  • Advocating for improved outcomes for the Sanfilippo patient community;
  • Improving the diagnosis path - more accurate and earlier diagnosis to enable appropriate treatment.