As a rare condition, attracting research funding from larger funding bodies can be a challenge. Our program aims to ensure that this devastating disease receives the research attention it requires and deserves.
Our Approach
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Aims to maximise the impact of the funds we invest by identifying the research that has the potential to deliver the greatest impact for our families.
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Defines three focus areas: halt disease progression, repair damage and improve quality of life. We believe that investment in these areas is essential to bring desperately needed treatments to market.
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Applications for research grants are assessed via a robust review process to ensure we fund the most promising research.
We plan to invest between AUD$500,000-$700,000 in our research program annually across three grant types:
- Translational research grants
- Incubator grants
- Scholarships and fellowships
You can view and download a PDF of our Research Strategy below.
Research Focus Areas
Our Research Strategy focuses on three priority areas, and our Research Funding Program will consider projects that address the following areas:
Note: future funding focus areas may include: prevention (including pre-conception), diagnosis and prognosis research.
Research Principles
The following principles underpin our Research Strategy and apply to each focus area:
