Meckenzie is a social butterfly and full of personality and giggles. Her favourite thing to do is meet and greet new people. Meckenzie's big brother Kyle treasures every day he has left with his little sister.
On 23rd May 2013 we received the most shocking news we had ever been presented with, it was never expected. Meckenzie had Sanfilippo Syndrome Type A. We were still trying to absorb the diagnosis of a mild intellectual disability; it was now the prognosis of a degenerative road to certain death before adulthood.
Our devastation is and always will be beyond measure. We will never give up hope that a treatment will become available and we have faith that the researchers and scientists will never stop trying until they find the cure.
All things aside, Meckenzie, our beautiful social butterfly, will always remain perfect to us.
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A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Peter Chalouhy Mps 3b
Daphne, Sang, Sammi, Ella & Aria
Christmas E-card 8/12/16