Hope for Kyuss
Kyuss has Sanfilippo Syndrome. Without treatment, he will not live to adulthood. You can help children like Kyuss by contributing to our campaign to raise funds for research into this childhood dementia.
Kyuss loves his pet dog 'Hope' and visiting his grandparents farm. Kyuss no longer talks but still charms everyone he meets. His family live in hope. All they want is for Kyuss to live beyond his current life expectancy.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
Thare are lots of ways you can fundraise for the Hope for Alec campaign. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
$1,000
Nanyi & Hoppa
$10
Anonymous
Praying for you all, best wishes for happy moments and continued efforts :)
$1,000
Nanyi & Hoppa
Keep those little smiles coming KyMan .they mean the world … always hugs and kisses for you … xxxxc
$1,000
Nanyi & Hoppa
Big hugs and lots of kisses to Kyuss & all the sanfilippo kids and families xxxx.
$1.05k
Nanyi & Hoppa
Always big hugs and kisses to Ky & all the Sanfilippo kids & families … xxxx
$1,000
Nanyi & Hoppa
Big hugs & kisses to our dear Kyuss and all the Sanfilippo kids and families …. xxxx
$26
Chloë’s Baby
A Gemmi giraffe gift for a precious baby boy 💙 Nikki & Kyuss xx
$1,000
Nanyi & Hoppa
Biggest Hugs & Kisses to Kyuss and all the Sanfilippo Kids & families … xxx
$1.05k
Nanyi & Hoppa
Big hugs to Kyuss and all the Sanfilippo kids and families … xxxxx
$63
Janelle Baker
A donation requested by our dad, Steven Baker, for Father’s Day as he cares greatly about this cause.
$1,000
Nanyi & Hoppa
More hugs and lots of kisses to our KyMan … we miss seeing you during COVID little champ … we love you very much and can't wait to see you soon !!!!!!!
$105
Brad Martin
All our love and hope.
$2k
Nanyi & Hoppa
More hugs & kisses coming your way KyMan … and all the Sanfilippo kids and families wherever you are …. xxxxxx
$630
Valley Vicious Auction
$3k
Nanyi & Hoppa
Much love, hugs & kisses to our little tiger Kyuss and all of the Sanfilippo kids & families … xxxxx
$16
Jane Keating
Best wishes Kyuss.
$2
Anonymous
$100
Greg Lacey
Love from Uncle Greg to the Kyman xx
$1.05k
Nanyi & Hoppa
Happy bday Kyuss … with all our love today and always … xxxxxx
$25
Anonymous
Love, hugs and hope xo
$1,000
Alastair And Nova Robinson
Our love to Kyuss and family. Thinking of all the Sanfilippo children.
$26
Annabelle Parker
Sending love and hope xx
$105
Bobby Morse Gill
For Kyuss xx
$105
Beck Goodlet
$26
Christie Black
❤️❤️❤️
$53
Natalie Geddes
$26
Kronk
Sending all my love always
$25
The Gilmore's
Much love and hope always xxx
$105
Melly Martin
Love you guys, thinking of you today 💕
$105
Natalie Roberts
Dear Nikki and Kyuss, thinking of you two today and your family. I am so sorry that this long word exists as well. Take care and know that I am thinking of you. Love Nat from Uni
$53
Liz Wintle
$200
Stephanie Garay
For Kyuss x
$1.05k
Graeme Johnson
Much love to Ky, Nik & Mike …. and to all the Sanfilippo kids and families wherever you are … xxx
$63
Milli
I'm sorry I have not donated until now. Thinking of you all.
$23k
The Ky Cup Fundraiser
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa.
$1,000
Nanyi &hoppa.
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1,000
Nanyi & Hoppa
$1.39k
Future Metals
$1.5k
Nanyi & Hoppa
$1.66k
Nanyi & Hop
$1.73k
Seville Cricket Club (members And Players)
$1.9k
Rotary Club Of Wandin
$2k
Rotary Club Of Wandin
$2k
Wilson & Bradley
$2k
Golden Opportunity Shop - Anglican Parish Wandin, Seville & Mt. Evelyn
$2.5k
Robbie Heritage
$2.55k
Renee Gilmore
$2.65k
Jodie Goodlet/cricket
$3.21k
5 Wishes Birthday Campaign
$10k
Nan & Hop
$12.17k
Kyt Fundraiser
$15.26k
Ladies' Night Fundraiser
$500
Signpoint Australia
$500
Anonymous
$500
Aunty Gwen
$500
Alastair Robinson
$500
Hystress Timber & Trusses
$500
Dad
$502
Footy Auction
$570
Mikes Memorabilia
$580
Michael Johnson
$610
Footy Auction
$634
Sammys Online Fundraiser
$700
Sammy & Mikes Memorabilia Fundraiser
$738
Whitehorse Cake Bakers & Munchers
$757
Winhort - Women In Horticulture Yarra Ranges
$769
Mt Evelyn Primary School Fundraiser
$854
Cameo Night
$1,000
Manny & Hop
$1,000
Nanna & Hop
$1,000
Lori Sanfilippo Awareness Gig
$1,000
Nanna & Hop
$1,000
Nan & Hop
$1,000
Nan & Hop
$1,000
Nan & Hop
$1,000
Nan & Hop
$1,000
Nanyana & Hop .... (little Tiger Speak)
$1,000
Nanyi & Hop
$1,000
Nana & Hop
$1,000
Nanyi & Hop
$1,000
Alastair And Nova Robinson
$1,000
Wilson & Bradley
$1,000
Nanyi & Hop
$1,000
Nanyi & Hop
$1,000
Nanyi & Hop
$1,000
Big hugs & kisses to our little tiger Kyman … xxxx