Peter Chalouhy
Peter had Sanfilippo Syndrome Type B. Sadly, Peter passed away in May 2022, aged 13. By contributing to our campaign to raise funds for research into this childhood dementia you can ensure other families don't haver to suffer the same heartbreak.
We got Peter’s diagnosis four days before his fourth birthday, while I was heavily pregnant with our third child Natalie. The impact of Sanfilippo on our family life was tough.
Peter had a lot of behavioural issues but his behaviour quietened down as the disease progressed. It took it's toll on his siblings but they continued to shower him with love and affection.
Sanfilippo stole Peter's words, his ability to walk and eventually his life, but thoughout it all, his smile and his shining eyes never left him. We watche old videos remembering the way he was.
We need a cure. We need all children with Sanfilippo to live! We hope and pray that one day a treatment will come.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit, PayPal or Apple Pay.
Host a fundraiser
There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Anonymous
$105
Ann Nguyen
$26
Anonymous
May the son of the living God protect you and cure you. NEVER LOOSE FAITH 🙏💕
$150
Shamiran Warda
May god bless you and your family always.
$105
Milana Brankovic
$26
Shelli Chalmers
Ode to Hope. Godbless you Peter. Gorgeous little man x 🙏🙏🙏
$11
Debbie Chalmers
Happy birthday 🥳 beautiful. May God bless you over and over
$21
Tracey Maxwell
Sending hugs and kisses to you Peter. Xxoooxxx
$26
Jane Keating
Best wishes Peter.
$16
Jack Tarchichi - Facebook Fundraiser
$100
Jeanette Smith
$105
Anonymous
$2
Antoinette Massoud Daoud
$100
Katia Jeitani
$100
Joanne Caracogila
$100
Ramia El Azzi
$100
Kathy Khalil
$100
Kathy K
$100
Catherine Saad
$100
J&b Dimassy
$100
Abou Yaghi
$100
Mounir Abou Yaghi
$100
Dany Hourani
$100
Georges Daoud
$100
Dany Sammour
$100
Oscar & Billie
$100
George & Amal Hammoura
$100
Jessie Abousleiman
$100
Houda Taouk
$100
George Khouzame Group
$100
Mary
$100
Ramzi And Helen Korkees
$100
Norman And Mariam El-chaloui
$100
Chung Yee
$100
Christine Chalouhi
$100
Tiksha
$100
Max Employment Box Hill
$120
Condell Park Discount Drug Store
$132
High Flyer Hotel
$147
Angelina, Joseph And Grace Fares
$150
David & Nadima Daoud & Family
$200
Nancy Daoud Ansara
$200
Haifa & Tony Barakat
$200
Anonymous
$250
Angelina, Joseph And Grace Fares
$250
R
$250
Nawal Khouzame
$267
Caroline Daoud
$300
City2surf Walk For Peter Funds
$330
Cake Stall
$400
Knafee (condell Park )
$437
Ashty Khouzame
$500
Mps Awareness Day
$680
People Scout
$1,000
Natalie & Eliya Pub2pub Run (hope For Peter)
$1.17k
Nawal - Surf Coast Century Run
$2.97k
Joumana
$100
Anthony Daoud
$100
Megan Cassidy
$9
Anonymous
$9
Lamia Tarchichi
$9
Felecia Wood
$10
Chris
$10
Anonymous
$10
Martha Hill
$10
Ingrid Maack
$10
Natasha
$10
Skyla Brown
$15
Carmel
$18
Ingrid Maack
$20
Lorianne Trinh (australian Hearing)
$20
Jessica X
$20
Kimberly
$20
Karen
$20
Amanda
$20
Kerry N
$20
Julie Ryan
$20
Anon
$20
Effie Paterson
$20
Flavia
$25
Sally Asfour
$25
Rosie
$25
Anonymous
$25
Katie Yeaman
$25
Yousseff Joahar Tauok
$25
Anon
$25
Silvana Armaly
$25
Max Employment Bankstown
$45
Nawal Khouzame
$50
Joseph Bonello
$50
Anonymous
$50
Anonymous
$50
Alvira Haa
$50
Jamila Naous
$50
Chu
$50
Jihan
$50
Nina El Abboud
$50
Miranda Nairouz
$50
Chris
$50
Mahmoud Kassem
$50
