Skye Robson

Skye has Sanfilippo Syndrome. Without a treatment, she will not live to adulthood. You can help children like Skye by contributing to our campaign to raise funds for research into this childhood dementia.

Our story is the same as everyone else’s battling this disease: we walked into that appointment with a slightly delayed child and walked out with one who was terminally ill. Our world came crashing down, we were stunned. My wife is Thai, born in Kanchanaburi, Thailand and I was born in Melbourne, Australia. This condition has been traced back to the Dutch and the odds of us both being carriers is, well, crazy. A trip to the Metabolic Clinic at the Royal Children’s Hospital the next day and a blood test confirmed that Skye has MPS III B.

Since Skye’s diagnosis we still have times where tears are shed, but we are determined to bring her love, happiness and quality of life not to mention to seek out a cure. At the same time, we have our son Luke to raise, who is an amazing big brother to Skye; always looking out for the welfare of his little sister.

Skye likes swimming, dress-ups, AFL and playing with big brother Luke. She has a bubbly and vibrant personality and is always up to mischief. Her family fear everything she will one day lose.

Luke and Skye are our little Angels and always will be.

You can help

Make an online donation

Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit or PayPal.

Host a fundraiser

There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here

Follow Skye's FB page here

$159,498

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A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal

Steps For Skye 2023

$20.14k

Kalilah Smith

Hoping this small donation leads to a breakthrough with a cure! Always rooting for you Skye!

$11

Steps For Skye - 2022

$42.14k

Bee Pearman

Love from Bee,Jeff,Xander and Sloane

$50

Julia, Monique And Lily

Thanks for being a great teacher, all the best!

$75

Steps For Skye

$27.18k

Marleen On Behalf Of Tol

$11

Anonymous

$53

Faii Wannisa

$105

Steps For Skye

$12.84k

Connor Tabbitt

#HopeforSkye

$26

Teghan Henderson

Monthly debit for Hopeforskye with love from Teghan

$26

Emma Kirkman

Teghan Henderson

Love you my little monkey xx

$26

Alister Robson

$100

Joly

Wishing you all the very best Mark. I can’t believe it’s been so long since I took you in your Intrepid training trip!

$105

Sandra Morris Morris

I have the pleasure of teaching at BSS and spending time with Skye

$21

Ron Mclean

$250

Barbara Myers

$21

Jane Keating

Best wishes Skye and enjoy watching the AFL :)

$16

Kirsten Lopez

$53

$10

B

$20