Our story is the same as everyone else’s battling this disease: we walked into that appointment with a slightly delayed child and walked out with one who was terminally ill. Our world came crashing down, we were stunned. My wife is Thai, born in Kanchanaburi, Thailand and I was born in Melbourne, Australia. This condition has been traced back to the Dutch and the odds of us both being carriers is, well, crazy. A trip to the Metabolic Clinic at the Royal Children’s Hospital the next day and a blood test confirmed that Skye has MPS III B.
Since Skye’s diagnosis we still have times where tears are shed, but we are determined to bring her love, happiness and quality of life not to mention to seek out a cure. At the same time, we have our son Luke to raise, who is an amazing big brother to Skye; always looking out for the welfare of his little sister.
Skye likes swimming, dress-ups, AFL and playing with big brother Luke. She has a bubbly and vibrant personality and is always up to mischief. Her family fear everything she will one day lose.
Luke and Skye are our little Angels and always will be.
You can help
Make an online donation
Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit or PayPal.
Host a fundraiser
There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal
Steps For Skye 2023
$20.14k
Kalilah Smith
Hoping this small donation leads to a breakthrough with a cure! Always rooting for you Skye!
$11
Steps For Skye - 2022
$42.14k
Bee Pearman
Love from Bee,Jeff,Xander and Sloane
$50
Julia, Monique And Lily
Thanks for being a great teacher, all the best!
$75
Steps For Skye
$27.18k
Marleen On Behalf Of Tol
$11
Anonymous
$53
Faii Wannisa
$105
Steps For Skye
$12.84k
Connor Tabbitt
#HopeforSkye
$26
Teghan Henderson
Monthly debit for Hopeforskye with love from Teghan
$26
Emma Kirkman
$2
Emma Kirkman
$2
Emma Kirkman
$2
Teghan Henderson
Love you my little monkey xx
$26
Alister Robson
$100
Joly
Wishing you all the very best Mark. I can’t believe it’s been so long since I took you in your Intrepid training trip!
$105
Sandra Morris Morris
I have the pleasure of teaching at BSS and spending time with Skye
$21
Ron Mclean
$250
Barbara Myers
$21
Jane Keating
Best wishes Skye and enjoy watching the AFL :)
$16
Kirsten Lopez
$53
Anonymous
$2
Clarendon College Roses Fundraiser
$525
Peter R Lemon
$400
Fundraising Garbutt House - Ballarat Clarendon College
$488
Asantee Soap Sales - Hope For Soap
$900
Alan Richards
$1,000
Great Aunt Penelope
$1,000
John Daniel Powell
$1,000
Best Wishes From Great Aunt Penelope
$1,000
Soap For Hope
$1.19k
Asantee Herbal Soap (soap For Hope)
$1.28k
Thailand Tigers
$1.32k
Muay Thai Boxing Event
$2.21k
Thailand Tigers
$2.37k
Jack Pitts
$2.61k
Alfred Long
$3k
Urban Adventures
$3.08k
The Long Family
$10k
John And Heather Mcmahon
$10k
Anonymous
$50
The Jarred Family
$50
Rasika Amarasiri
$50
Bee, Jeff And Xander Pearman
$50
Anonymous
$50
Tim And Julie Bingley Rokewood
$50
Tony And Marisa Colman
$50
Anonymous
$50
Peter Thomas
$50
Jim Fidge
$50
Ti M Dennis
$50
Hope-johnstone
$50
Suse & Ollie
$50
Smith/cole
$50
Anne & David Sears
$50
Jock & Robbie Forbes
$50
Eliza Anderson And Tim Melching
$50
S??bastien Izambard Official Fan Club
$50
Na Koong Melbourne
$50
Nanthawan
$50
Ando
$50
Milligan Family
$50
A & Jboatman
$60
John Nevett
$60
Colleen Baker
$100
Cecilia Cambero
$100
Klaudija Janzelj
$100
Couters Fans
$100
Kaye & Ray Smith
$100
D & D
$100
Anna And Mike
$100
Jeremy And Felicity Gaylard
$100
Don & Felicity Lawson
$100
Barry And Ro Christian
$100
Andy & Sandy De Crespigny
$100
Gareth Andrews
$100
Michael & Ginny Palmer
$100
Jason Luong
$100
Don & Di Mccann
$100
Isaree Nakhayuenyongsuk
$125
Thailand Tigers
$140
Mandie And Chris Mitchell
$150
Ballarat & Clarendon College Fundraiser
$185
Kingjan Jirasathidporn (lemongrass Thai Restaurant)
$200
Paula Nipitkul (brown Grain Thai Restaurant)
$200
Pete, Dtor, Louie And Rosie
$200
Simon And Jean Hood
$200
Anonymous
$200
Anonymous
$250
Donna (teague) Damien & Tommy Cosgrave
$250
Simon Shepherd (morgans Financial Chatswood)
$250
Jane Sheahan
$250
David And Annie Young
$250
Heather & Peter Wells
$250
Peter L
$250
Thailand Tigers
$300
Nas Family
$10
B
$20