I am fundraising for a future without Sanfilippo Syndrome
2021 as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever.
Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of one day finding a cure but to also reach other families and know they are not alone.
I am doing 5km a Day in May to support the work of Sanfilippo Children’s Foundation! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
Your donation will fund vital research projects that show real promise in halting the progression of the disease; repairing damage caused by the condition; or improving the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to my Sponsors
$262.50
The Boxing Collector
$262.50
Troy Errington
Hey mate, all of you are awesome. If you need ANYTHING please reach out mate.
$250
Anonymous
$157.50
Nikos Alexopoulos
Great work buddy
$105
Warren Johnson
Kye could not have better parents. 😀👊🙏
$105
Jeremy Borzillo
$105
Joel Horne
$105
Josh Ong
Kye couldn’t have better parents! Much love
$105
Anonymous
$105
Reece Vella
Love you guys so much
$52.50
Jack Hardman
$52.50
Billy Settineri
Great job mate keep it up from Billy and Luca 🥊
$52.50
Sean & Jess Finnerty
Great work legends ❤️ ❤️
$52.50
Ibrahim Massri
$52.50
Eli
$52.50
Stephen Arhipoff
$52.50
Cameron Meani
Love to you and Kristen. Love from Cam, Kay, Saxon and Hudson!
$52.50
Scott Holman
$50
Jude
Good on you legend.
$26.25
Josh Ing
Amazing effort! Much love kye
$26.25
Hannah Casey
Amazing! Well done Jack and all the team!
$26.25
Trevor Boci King
Hood oos lahd
$26.25
Olivia Kimble
Great work Jack oxo
$26.25
Annie Henry
Sending hugs and prayers to Kye and his family.
$21
Max Brownson
Hey mate, I know $20 isn't much but I hope even this little bit helps. Best of luck to you and your family.
$10.50
Dimitri Alexopoulos
Great work jack, keep it up !
$10.50
To the best and strongest family!