Jack Hardman

I am fundraising for a future without Sanfilippo Syndrome

2021 as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever. 

Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of  one day finding a cure but to also  reach other families and know they are not alone.

I  am doing 5km a Day in May to support the work of Sanfilippo Children’s Foundation! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.

Your donation will fund vital research projects that show real promise in halting the progression of the disease; repairing damage caused by the condition; or improving the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.