Elil Sasee

I am fundraising for a future where no child suffers from Sanfilippo Syndrome.

STEPS FOR SKYE is raising funds this August to support children living with Sanfilippo Syndrome — a rare, genetic, and currently fatal neurodegenerative disease.

Sanfilippo gradually robs children of their abilities: they lose the power to walk, talk, and eventually even eat. There is no cure yet — but research is offering real hope.

Donations will fund promising projects focused on slowing the disease, repairing damage, and improving quality of life for affected children and their families.

All donations over AU $2 are fully tax deductible.

Thank you for your support — every step counts.