Raised so far


Our goal


Get fit and fundraise at the same time!

Make a genuine difference to children with Sanfilippo syndrome, a devastating form of childhood dementia where most of the children affected do not live to adulthood.

All you need to do is to sign up and commit to walking, jogging, running, cycling or swimming 5km every day during the month of May. If you plan on walking, for most people this is only 6500 steps! Improve your health and fitness and rally friends, family and colleagues to join in. Get your walking shoes on and your sponsors ready. 

Help us raise funds for vital medical research and together, we can turn heartbreak into hope for families impacted by Sanfilippo syndrome.

Register now

How it works

STEP 1: Sign up

Register and set up your fundraising goals

STEP 2: Shout about it

Share what you are doing to get support or ask your friends to join you


Get moving and track your kms as you go

Get Started