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Our Mission

The mission of the Sanfilippo Children’s Foundation is to fund medical research so a cure can be found in time for children battling Sanfilippo today, and for those born with it tomorrow.

 

This will be achieved by:

  • Funding research which might halt progression of the condition, reverse damage caused or improve quality of life for patients with the condition; 

  • Providing clear, accurate and up-to-date information to diagnosed families regarding the disease, therapeutic avenues and current research programs;

  • Raising awareness of the disease amongst the community, including the medical profession;

  • Advocating for improved outcomes for the Sanfilippo patient community;

 

  • Improving the diagnosis path - more accurate and earlier diagnosis to enable appropriate treatment.