OUR UPDATES

2019-2020 Annual Update

Horror Bushfires, Coronavirus, economic turmoil... 2020 began with more than a few challenges. This Annual Update looks back at the many achievements of 2019 and at our ambitious plans for the year ahead despite the disruptions. While some of our events have been postponed our research agenda remains strong.

Amazing progress is being made, and results from several studies are bringing us closer to finding effective treatments. Thank you to our much-valued supporters, donors, sponsors, suppliers, families, volunteers and our incredible network of researchers and clinicians. 

On the cover are twins Jobe and Tate. Jobe (pictured left) is battling Sanfilippo Syndrome.

Download a PDF of our 2019-2020 Annual Update