My Activity Tracking
My target 155 kms
My first ever blog post.8 days in and so far, lots of walking and a little bit of running.
I am fundraising for a future without Sanfilippo Syndrome
5 km a day in May. It seems an easy path to walk compared to the families who walk the journey of having a child with San Fillippo. I know. I watched my bother and his wife and their children love their boy tirelessly. I watched my parents walk the journey alongside them. Medical research is discovering life changing things but still it needs funding, so this little bit will help. X
am doing 5km a Day in May to support the work of the Sanfilippo Children’s Foundation! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
Your donation will fund vital research projects that show real promise in halting the progression of the disease; repairing damage caused by the condition; or improving the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.