I'm doing something sporty for this great cause
I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
I am a carer for beautiful siblings with Sanfilippo Syndrome, Isla and Jude, who inspire me every single day with their gorgeous smiles and ongoing fight. This October I will be running 12km at the RunWest fun run to try raise vital funds and awareness for this awful childhood dementia.
100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.