Connie Johnston


My Activity Tracking


My target 300000 Steps

I am fundraising for a future where no child suffers from Sanfilippo Syndrome.

I am doing STEPS FOR SANFILIPPO this November! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.

Thank you to my Sponsors


Melissa Kerr

Great effort, Connie. Thinking of little Kyuss and hope our donation helps a bit xx


Connie Johnston


Maria Simeone

you go girl 😀


Chantelle Cuffe

Good luck xx