I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
It's going to be a challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
I am going to cut all my hair off into a pixie cut. I'm going to donate my hair to the rapunzel foundation to make wigs for kids who need them. But I want to raise money to help Jobe too.
100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.