I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
I am hiking the Larapinta Trail in June 2021! It's going to be a big challenge. I have a lot of work to do to get fit enough to finish the challenge. But it's nothing compared to the challenge facing kids with Sanfilippo. Our little Granddaughter Matilda (Tilly) has this condition and if by hiking Larapinta I can raise funds for research then I will give it my best shot. I will need as much encouragement as you can offer. Your donations will be very much appreciated. If you would like to hold a fundraiser please do, if you would like to join me on my training walks I would love it. I need you all to keep me true to the course.
Peter and I will pay for all the costs of the trip so 100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to my Sponsors
Frose Bar Fundraiser
Containers For Change - Aunty Robyn, Ell & Joey's Engagement, Great Grandparents Betty & Paddy
Aunty Sue's Exmouth Sales
Containers For Change