We're fundraising for a future where no child suffers from Sanfilippo Syndrome.
We are hiking the Larapinta Trail in June 2021! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo, a rare genetic condition that causes fatal brain damage. A type of childhood dementia and most children never reach adulthood. There is currently no treatment or cure available to children diagnosed with this devastating disease. But there is HOPE!!
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to our Sponsors
Goninan Family Foundation
Shawline Pty Ltd
Tania & Paul Picone
Travel On Capri
Lyns & Don
Jeff And Jodie Airey
The Alice Springs Taxi Driver