I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
In memory of our gorgeous son Dylan, I am taking on the 2021 Hike for Hope Larapinta in June!
This is personal, having watched Dylan slow down over time and die in our arms at age 12 due to Sanfilippo. It's going to be tough - 5 days, trekking over 66 km in the Australian outback. But it's nothing compared to the challenge facing kids with Sanfilippo, and their families.
Sanfilippo is a rare genetic condition that causes fatal brain damage. Children with this condition have an enzyme deficiency which means they are unable to process the waste that builds up in their cells, causing damage throughout the body, especially the brain. Sanfilippo is a type of childhood dementia with no treatment or cure. Life expectancy is just 12-20 years, and most patients never reach adulthood. But there is hope.
Hubby Matt and I are covering the cost of the trip so 100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
Times are tough, so any donations are greatly appreciated and will help make a difference!
Thanks so much for your support.
Thank you to my Sponsors
$1,000
Mps Society
$500
Millie And Chloe
xoxo
$385
D&d Squash Buddies
$262.50
Warren Joyce
$262.50
Matt Klohs
You’ll be amazing Louise! What a great cause and in loving memory of Dylan. Happy to contribute in a small way.
$262.50
Angela Brookes
You will nail it. Love the Brookes tribe
$155.15
Patrons Of Bayrische Beach Bar & Cafe
$149.10
One Community
One Community is very happy to be able to support Louise as part of this campaign. We hope that overall this campaign is hugely successful.
$105
Kerri Hamilton
With love to my gorgeous sister. Big hug xx
$105
Jarrad And James
In memory of Big D. Xx
$105
Andrew Rourke
Go well.
$105
Anonymous
Nice one Louise - amazing strength you guys have - total inspiration to me XXX
$105
Michelle Coleman
It will be an emotional trek, and so brave of you to do this - Dylan will be looking down on you with so much love and support. Love to all the Jessops, and here is to finding a treatment and cure xx
$105
Digby And Elaine
Enjoy a memorable trek with precious Dylan. Blessings Louise. Keep well and safe. Digby and Elainexx
$105
Sharlene
Love to you all from your cousin xxxx
$105
Harrick Family
Go Louise! You are such an inspirational woman. You’ve got this and Dylan will be with you every step of the way❤️
$100
Leanne Liesegang
Good Luck Louise. Proud of u
$100
Rebecca Sleath
Have an awesome adventure while you're at it guys.
$100
Sharon Johnson
Beautiful memories of gently holding Dylan’s hand. Go for it you powerhouse 💜
$100
Briallen Paine
Thank you xx
$100
Deirdre Teague & Derek Ward
$100
Peter And Penny Lister
Best wishes for your endeavour Louise 👍I’m sure Dylan will be with you every step of the way. Xxx
$100
Cathy And David. Young
Well done supporting all those wonderful parents and siblings of our special kids . Remembering Sam .
$84
Mary Hassall
Good on you Lou and Matt! Good luck! Love from us all 😘
$78.75
Rosslyn
Good luck with the fundraising.
$52.50
Michelle Orszacxky
Best wishes Louise x
$52.50
Robert Horvat
$52.50
Ronald Hamilton
All the best Louise. Love Father xx
$52.50
Lauren Mcgovern
Best of luck with the adventure. Lots of love x
$52.50
Kiki Fong Lim
Good luck with the trek. Enjoy the stars. Wear good socks.
$52.50
The Mckinnon Clan
Well done Louise
$52.50
Sam Clark
Last one I think to your goal Lou. Awesome work!
$52.50
Greg Grebert
Good on you and good luck!
$52.50
Asti & Mick Hughes
$52.50
Kylie Seward
You go girl!!!
$52.50
Julie & Paul Griscti
Glad to help, make sure you take care of yourself. See you both soon xx
$52.50
Peeled Onions Pry Ltd
All the best Louise.
$52.50
Daniella Lavan
Good Luck Louise...❤️💋❤️
$52.50
Kerri Hamilton
To my gorgeous sister, love you ❤️.
$52.50
Romana Toson
So great you are undertaking this challenge. X
$52.50
Tracey Briggs
Good o. you Louise
$52.50
Jeanie Nicholson
🥾🥾👏👏👏👏🤗🧞♀️
$52.50
Sonia Toson
Go Louise!! Your strength and determination are in one word... remarkable!!! XX
$52.50
Beth M Hawes
Love your heart Lou. You've got this and Dylan is trekking right along with you.
$52.50
Craig Lambert
$52.50
Shelley & Grant Elliott
What an amazing way to honour your beautiful boy ! All the best x
$52.50
Finn And Anika Kane
All the best for the trek Lou xx we’ll be thinking of you on the challenge 😘 love always
$52.50
Jacques & Christine
All the best! Well done for taking this on and raising awareness!
$52.50
Nico & Elfra Visser
$52.50
Zee, Jack & Olive
We never got to meet Dylan but we know he would have been an incredible person just like the rest of your beautiful family oxox Good luck with the trek!
$52.50
A L Ducasse-bradstock
What a wonderful tribute for your beautiful son, Dylan!💙 Keeping you in my prayers & thoughts🙏🏽
$52.50
Jarred & Rach Lawrence
Amazing Louise! You guys are an inspiration, all of you! Much Love the Lawrence’s
$52.50
Angela Horvat
You are amazing Lou, an inspiration. God love you! xxx
$52.50
Tania Nasr
A worthy cause good luck ❤️
$50
Aristo Avgoustatos
$50
Frank Watson
Wonderful way to honour Dylan, well done!
$50
Jones Family
Remembering gorgeous Dylan - such a beautiful walk to be doing in his memory.
$45.65
Ian, Rhonda And Bindi
$31.50
Ann Leinster
Well done Louise.
$26.25
Kylie Bevan
💜
$26.25
Rhiannon Spencer
$26.25
Jane Hudson
Good luck 😉 and congratulations
$26.25
Nathaniel Askew
$26.25
Julie Hounslow
All the very best wishes for you Louise. Good luck reaching your goal. Love to your beautiful Dylan.
$26.25
Eva Asi
All the best Louise!
$26.25
Joel Calder
$26.25
Laura Clark
$26.25
Julie Bevan
Best of luck Louise. Do it for our gorgeous boys. 💜🐝
$26.25
Trish
Thinking of you Louise xx
$26.25
Linda Small
$26.25
Pauline
Louise good luck on your journey.
$26.25
Sinéad
Best of luck Louise
$26.25
Sheryl Mackenzie
$26.25
Jenni Reading
Good luck xxxx
$26.25
Tracy Brown
$26.25
Mulraney Family
Good luck Louise and have an amazing time.
$26.25
Jodi Wolthers
Wishing you all the best for your trek and hoping for a great result from the research.
$26.25
Maree Mcgee
You are inspiration Gorgeous City Cuz xxx
$26.25
Nicole Forbes-hood
Good luck Louise. A very worthy cause ♥️
$25
Virginia Haynes
Best Wishes Louise
$25
Lisa Wells
You go, girl!! We will be thinking of you xxxx
$25
Robbie Murray
Go well with each step Lou, we are behind you in spirit. When the going gets tough know that we are sending you strength to continue trekking forward. hugs from your sisters in life.
$21
Carol Thorne
Wishing a safe and happy adventure
$21
Louise Jessop
$20
Julie Callingham
Hi Louise All the best for your walk. Will be thinking of you..
$10.50
Donna Cox
All the very best for the hike and fundraising. Donna Cox
$10
The MPS Society wishes you all the best as you take on this amazing trek. We know you do this with your beautiful Dylan in your heart along with the many other MPS/ML kiddos'.