I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
I am hiking the Larapinta Trail in June 2021! This is personal, having lost our gorgeous son Dylan at age 12 to Sanfilippo. It's going to be a big challenge, particularly given my joint disease. But it's nothing compared to the challenge facing kids with Sanfilippo and their families.
Matt and I are covering the cost of the trip so 100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to my Sponsors
Millie And Chloe
Julie & Paul Griscti