I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
I am hiking the Larapinta Trail in June 2021! This is personal, having lost our gorgeous son Dylan at age 12 to Sanfilippo. It's going to be a big challenge, particularly given my joint disease. But it's nothing compared to the challenge facing kids with Sanfilippo and their families.
Matt and I are covering the cost of the trip so 100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to my Sponsors
$262.50
Matt Klohs
$262.50
Angela Brookes
You will nail it. Love the Brookes tribe
$100
Rebecca Sleath
Have an awesome adventure while you're at it guys.
$84
Mary Hassall
Good on you Lou and Matt! Good luck! Love from us all 😘
$78.75
Rosslyn
Good luck with the fundraising.
$52.50
Greg Grebert
Good on you and good luck!
$52.50
Julie & Paul Griscti
Glad to help, make sure you take care of yourself. See you both soon xx
$52.50
Daniella Lavan
Good Luck Louise...❤️💋❤️
$52.50
Kerri Hamilton
To my gorgeous sister, love you ❤️.
$26.25
Nathaniel Askew
$26.25
Julie Hounslow
All the very best wishes for you Louise. Good luck reaching your goal. Love to your beautiful Dylan.
$26.25
Maree Mcgee
You are inspiration Gorgeous City Cuz xxx
$21
Louise Jessop
$10.50
Donna Cox
All the very best for the hike and fundraising. Donna Cox
You’ll be amazing Louise! What a great cause and in loving memory of Dylan. Happy to contribute in a small way.