Mia & Luke


We're fundraising for a future where no child suffers from Sanfilippo Syndrome.

We are doing STEPS FOR SKYE this August! It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.

Thank you to our Sponsors


Ethan Watts


Steve & Tina Linane

Luv Mum and Dad


Mia Linane


Luke Kinnersly


Rhys Ryan


Clare (nan) Linane

Luv from Nanny Linane


Mia K


Nicole Jeffrey


Peter .