Pamela Koistinen

STEPS FOR SANFILIPPO

I am fundraising for a future where no child suffers from Sanfilippo Syndrome.

Two years ago, my dear nephew, Jobe, was diagnosed with Sanfilippo (MPS-IIIA), a terminal illness, a rare generic disease, where affected children will not live to see adulthood. Not a day goes by that I don’t think of Jobe and his family, and what this devastating disease will take away. 

Jobe is such a sweet, funny, and bright little boy who’ll charm the socks off everyone he meets!! I’m heartbroken for what he and his family will go through because currently there is no treatment or cure for Sanfilippo . 

SO, I am doing STEPS FOR SANFILIPPO this November! It's going to be a big challenge. But it's nothing compared to the challenge facing Jobe and the kids living with Sanfilippo.


100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.

Thank you to my Sponsors

$525

Raymond Henson & Marissa Aquino

With love - From Uncle Ray and Auntie Marissa

$105

Issy, Olivia, Georgia And Tommi

Go Aunty Pam!! What a great job you are doing! Xxx

$53.75

Pamela Koistinen

$52.50

Rebecca Henson Meagher

$52.50

Natalie Williams

Go Pam!!!

$52.50

Alyssa Hurst

Amazing Pam, best wishes to Jobe, and all kids affected xx

$52.50

Nanna

Great effort Pam ! A wonderful way to support Jobe 😘

$52.50

Jobe Koistinen

You are amazing Aunty Pam! Thank you for stepping up for me! We love you so much! Xo

$52.50

Sally Danger

With you Pam and gorgeous Jobe and family xx

$50

Ray

$30

Anonymous

Well done Pam

$26.25

Dee Samuel

$26.25

Lisa

$26.25

Clare Marantelli

$26.25

Maria Tobolov

$26.25

Dylan/vittoria Preata