I am fundraising for a future where no child suffers from Sanfilippo Syndrome.
Two years ago, my dear nephew, Jobe, was diagnosed with Sanfilippo (MPS-IIIA), a terminal illness, a rare generic disease, where affected children will not live to see adulthood. Not a day goes by that I don’t think of Jobe and his family, and what this devastating disease will take away.
Jobe is such a sweet, funny, and bright little boy who’ll charm the socks off everyone he meets!! I’m heartbroken for what he and his family will go through because currently there is no treatment or cure for Sanfilippo .
SO, I am doing STEPS FOR SANFILIPPO this November! It's going to be a big challenge. But it's nothing compared to the challenge facing Jobe and the kids living with Sanfilippo.
100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
Thank you to my Sponsors
Raymond Henson & Marissa Aquino
Issy, Olivia, Georgia And Tommi
Rebecca Henson Meagher