Pamela Koistinen


I am fundraising for a future where no child suffers from Sanfilippo Syndrome.

Two years ago, my dear nephew, Jobe, was diagnosed with Sanfilippo (MPS-IIIA), a terminal illness, a rare generic disease, where affected children will not live to see adulthood. Not a day goes by that I don’t think of Jobe and his family, and what this devastating disease will take away. 

Jobe is such a sweet, funny, and bright little boy who’ll charm the socks off everyone he meets!! I’m heartbroken for what he and his family will go through because currently there is no treatment or cure for Sanfilippo . 

SO, I am doing STEPS FOR SANFILIPPO this November! It's going to be a big challenge. But it's nothing compared to the challenge facing Jobe and the kids living with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.

Thank you to my Sponsors


Raymond Henson & Marissa Aquino

With love - From Uncle Ray and Auntie Marissa


Issy, Olivia, Georgia And Tommi

Go Aunty Pam!! What a great job you are doing! Xxx


Pamela Koistinen


Rebecca Henson Meagher


Natalie Williams

Go Pam!!!


Alyssa Hurst

Amazing Pam, best wishes to Jobe, and all kids affected xx



Great effort Pam ! A wonderful way to support Jobe 😘


Jobe Koistinen

You are amazing Aunty Pam! Thank you for stepping up for me! We love you so much! Xo


Sally Danger

With you Pam and gorgeous Jobe and family xx





Well done Pam


Dee Samuel




Clare Marantelli


Maria Tobolov


Dylan/vittoria Preata