Hope for Matilda

By Alan Ramsay

My Activity Tracking


My target 20 kms

Solo Rottnest Channel swim

Hello! Thanks for reading. 

I am undertaking the Rottnest Channel Swim in Feb Solo! I’ll be using this opportunity to raise money for finding a cure for Sanfilippo, as this is a cause close to our family. 

Kate and Lachlan have been family friends having known Emily (my wife) since their teens. 
We have celebrated many of each others milestones and we’re delighted to when Kate and Lachlan welcomed beautiful Tilly into their lives 💖 
When we heard of Tillys diagnosis we were heartbroken for their family and knew we would do whatever we could to support them. 
Kate and Lachlan are very resilient and don’t ask for anything so the least we can do is use this opportunity to raise money to support the research in finding a cure for Sanfilipo. 
We hope that with Tilly’s lifetime we can find a cure for Sanfilipo. 

I'm going sporty for this great cause

I am fundraising for a future where no child suffers from Sanfilippo Syndrome.

I'm doing a challenge and it's going to be tough! But it's nothing compared to the challenge facing kids with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.