Dialog Box


Blue Skies  for Skye

The Sanfilippo Children's Foundation (SCF) launched the Hope for Skye campaign in Feburary, introducing five-year-old Skye Robson and her family to the Sanfilippo and wider communities. Skye’s middle name is “Nongnaphat” which is a Thai word for Angel. 

This little angel who lives in Ballarat, Victoria, will touch your heart.  If you haven’t already read about, please read about Skye’s journey to diagnosis and family story on our website.


The Robsons have joined the SCF’s efforts to fund scientific research and have done so with gusto. Skye’s father, Mark Robson, was the former general manager of global travel company Urban Adventures. His former Urban Adventure colleagues kick-started a social media campaign using the two hashtags #blueSkyforSkye and #hopeforskye, encouraging travel staff to collectively post photos of blue skies and donate funds on international Rare Disease Day (28 February).


Urban Adventures will donate all proceeds collected on Rare Disease Day from its tours in the following cities: Rio de Janeiro, Toronto, Hong Kong, Lima, St Petersburg, Tokyo, Prague, Philadelphia and Paris, raising a total $2,300.  

Photographs were shared of the skies above from as far afield as down-town Toronto, a village in Morocco, the ski slopes of Japan, beaches in Brazil and even Kathmandu. SCF supporters also enthusiastically got on board, posting photos of blue skies in Brisbane, Sydney, Bathurst and Ballarat. Check out the gallery of amazing gallery of collected #BlueSkyforSkye images.  There was also an article about the social media initiative in Skye's local newspaper, The Ballarat Courier. Click to read here.


Mark is a teacher at Ballarat Clarendon College and in March the school hosted a range of fundraisers including a purple dress day, sausage sizzles and cake stall raising $1,300 for the SCF.  An article, entitled 'College opts for purple fun day', was also published in The Ballarat Courier. Click to read here.


Donate to Skye's campaign in her honour here