Killi Family

Sanfilippo is a devastating diagnosis to receive for families where they are told to love their child for as long as possible. 

Due to the rarity of the disease and the limited research there is no cure yet. We would like to contribute to and support the scientific community working really hard to support kids in all the ways possible to manage the disease and to ultimately find a cure. 

All your contributions, including raising awareness, are highly appreciated. 

We are immensely thankful for your contributions.

You can help

Make an online donation

Donating online is a fast, easy and safe way to donate for donors who would like to pay via credit card or PayPal.

Host a fundraiser

There are lots of ways you can fundraise. We have plenty of ideas for you in our A-Z of fundraising ideas & you can set up your own fundraising page here

A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal

Nagarajan Swaminathan


Praveen Killi


Rodolfo Plata


Yasoda Satapathi




Narendra Deo Killi

To help with research to bring a better future on behalf of and for my granddaughter Naomika.




Maja Baranowska


Roshan Kumar Bantupalli