Thomas Mooney has Sanfilippo Syndrome (Type B). Sanfilippo has already stolen Thomas' words but this young man is defying the odds. He lives with his family in Cairns. In honour of Thomas, you can help by contributing to our campaign to raise funds for research into this heartbreaking childhood dementia.
Thomas was born in 2000, so our family joke is that he was the only one who caught the Y2K bug! Thomas turned 20 this year. Thomas loves to keep busy and spends a lot of time going for drives or walking along the beach. The rest of the time he loves to sleep in and hang out with his family and watch movies. We're a close-knit family – a true team, or as we like to say: "Team Thomas".
You can help
Make an online donation
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Host a fundraiser
A big thank you to our Supporters
The real heroes who are kindly helping us achieve our goal