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Every dollar funds research into treatments for Sanfilippo Syndrome

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What is Sanfilippo?

Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most children never reach adulthood. There is currently no treatment or cure available to children diagnosed with this devastating disease. But there is hope. 

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With your help we've committed $4.7 million to 24 projects in the search for a cure for Sanfilippo

Read more about our research strategy and the projects that your generous support makes possible.

Giving hope to children with Sanfilippo

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Become a regular giver

Join our Sanfilippo supporters making a regular donation to our research program. 

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Include a gift in your will

Give hope to children with Sanfilippo and their families by including a gift in your will.

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Host a (virtual) birthday fundraiser

Whatever you're celebrating, consider asking for a donation in lieu of a gift

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Volunteer from home

Whether it's a few hours or a few days, we have skilled volunteering opportunities available now.

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