an important update on the future

of the Sanfilippo Children's Foundation

 

A message from the Chair of our Board of Directors   

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What is Sanfilippo?

Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most children never reach adulthood. There is currently no treatment or cure available to children diagnosed with this devastating disease. But there is hope. 

Read more about Sanfilippo Syndrome

With your help we've directed over $7.5 million to 41 projects in the search for treatments and a cure for Sanfilippo

Read more about our research strategy and the projects that your generous support makes possible.

Giving hope to children with Sanfilippo